Re: Re: Jingle Bell Walk/Run

[Guest guest]

Hi , I thought I would chime in here, for n and are

so similar. n has been battling JRA and missing school, too.

We brought her to the rheumy last week, and he gave her three

options. Up the mtx, go on steroids, or go back on enbrel. She chose

the enbrel. We will give it 2-4 weeks, and then we will move to

kineret. n has missed well over the 10 days allowed per

semester. She is like your daughter, in that 5 days of school a week

is too much for her.

Things are complicated with this disease, but it looks like n

may be fighting depression. Seven years of battling systemic has

taken its toll on her. We are going to get her some counseling

starting tomorrow. Many of her dreams have had to be changed with

this disease, regarding high jumping and college. (n, 17,

systemic)

On Nov 13, 2006, at 9:59 AM, sonia1md wrote:

> Good weekend...bad Monday. Woke up with sorethroat and sore wrists,

> fingers, knees, ankles, toes! :-(

>

> Still haven't made it a week in school without an absence. ugh!

>

> sonia (drea 11 systemic jra/gerd)

>

>

> > >

> > > Hi everyone:

> > >

> > > This morning our family and friends participated in the

> > Arthritis Foundation Jingle Bell Walk/Run. We had 17 people on our

> > team all walking for Hannah! Our team name was Hannah's Holiday

> > Heroes and Hannah raised $380.00 on her own for the Arthritis

> > Foundation.

> > >

> > > It was at our local zoo and even though it was really cold, we

> > had a blast. As soon as Georgina approved our pictures, check out

> > Hannah's album on the group site. You will see a picture of our

> > team. Hannah is in the wheelchair and I am standing to her right

> > with the red/green Christmas hat on; Mike is right behind me in

> the

> > Santa hat and Jay is on the left of picture in the black winter

> > hat. The other 2 pictures are close-ups of our team tshirts,

> > modeled by Hannah.

> > >

> > > Beth

> > >

> > >

> > >

[Guest guest]

Hi ,

She is doing okay in school, but the missed days do take a toll. She

has a 3.7, but it is hard to maintain being sick a lot. She is

applying to some hard colleges, so the pressure is on her to keep the

grades up. We want her to go on the West coast, but her dream

college is Brown. Rhode Island is not very close to Oregon. Her

second choice is the University of Washington, which I am hoping for.

I worry about n, and this last bump has been tough on me. I

continue to run. I have also taken up rock climbing. Maybe, it is

middle age crisis. I enjoy the climbing, for you really have to

concentrate while climbing. You can't think about your problems at

all. When I run, I still think. So needless to say, I am getting

pretty lean and mean. I am the oldest woman climbing at this

particular gym by about two decades. The young ones kind of just

look at me. No telling what they think. I have signed up for

another half marathon next May. It gives me something to works

towards. Take care,

On Nov 13, 2006, at 2:02 PM, wrote:

>

> Hi ,

>

> I¹m sorry that n is not doing well. Is she keeping up with her

> schoolwork, or is she not able to do so? Can she get a home tutor?

> Ezra has

> been on kineret for seven months now and is doing pretty well with

> it. The

> shot itself is painful, and that¹s hard for all of us. For the past

> two

> years Ezra has missed many, many days of school, and slept in

> school for

> most of the other days. He¹s missed a lot of learning time. This

> year has

> been better, thankfully. For the past year and a half Ezra has also

> been

> seeing a psychologist who has a special interest in chronically ill

> children. I don¹t think Ezra is depressed, but he certainly thinks

> and talks

> about things, like why people get sick, and how life is different

> for him,

> that he can¹t really talk about with other kids. I think it¹s much

> more

> difficult for a teenager like n who is starting to think about

> her life

> plans. I hope she finds the psychologist helpful, but it takes

> time. How are

> you feeling about this? Are you still running? Best wishes.

> (and Ezra,

> 10, systemic)

>

> On 11/13/06 2:24 PM, " Price " <bc.price@...> wrote:

>

> >

> >

> >

> >

> > Hi , I thought I would chime in here, for n and are

> > so similar. n has been battling JRA and missing school, too.

> > We brought her to the rheumy last week, and he gave her three

> > options. Up the mtx, go on steroids, or go back on enbrel. She chose

> > the enbrel. We will give it 2-4 weeks, and then we will move to

> > kineret. n has missed well over the 10 days allowed per

> > semester. She is like your daughter, in that 5 days of school a week

> > is too much for her.

> >

> > Things are complicated with this disease, but it looks like n

> > may be fighting depression. Seven years of battling systemic has

> > taken its toll on her. We are going to get her some counseling

> > starting tomorrow. Many of her dreams have had to be changed with

> > this disease, regarding high jumping and college. (n, 17,

> > systemic)

> > On Nov 13, 2006, at 9:59 AM, sonia1md wrote:

> >

> >> > Good weekend...bad Monday. Woke up with sorethroat and sore

> wrists,

> >> > fingers, knees, ankles, toes! :-(

> >> >

> >> > Still haven't made it a week in school without an absence. ugh!

> >> >

> >> > sonia (drea 11 systemic jra/gerd)

> >> >

> >> >

> >>>> > > >

> >>>> > > > Hi everyone:

> >>>> > > >

> >>>> > > > This morning our family and friends participated in the

> >>> > > Arthritis Foundation Jingle Bell Walk/Run. We had 17 people

> on our

> >>> > > team all walking for Hannah! Our team name was Hannah's

> Holiday

> >>> > > Heroes and Hannah raised $380.00 on her own for the Arthritis

> >>> > > Foundation.

> >>>> > > >

> >>>> > > > It was at our local zoo and even though it was really

> cold, we

> >>> > > had a blast. As soon as Georgina approved our pictures,

> check out

> >>> > > Hannah's album on the group site. You will see a picture of

> our

> >>> > > team. Hannah is in the wheelchair and I am standing to her

> right

> >>> > > with the red/green Christmas hat on; Mike is right behind

> me in

> >> > the

> >>> > > Santa hat and Jay is on the left of picture in the black

> winter

> >>> > > hat. The other 2 pictures are close-ups of our team tshirts,

> >>> > > modeled by Hannah.

> >>>> > > >

> >>>> > > > Beth

> >>>> > > >

> >>>> > > >

> >>>> > > >

[Guest guest]

Thanks Helen, I will tell her. She had a major bummer of a day today so that

will make her feel better.

Beth

hburger64 <hburger64@...> wrote:

-Hi Beth,

WTG on your walk. Tell Hannah we are really proud of her for raising

funds and raising awareness. Thanks for sharing the photos!!

Our walk here is not until March, but we are busy busy busy with the

planning. We are having a kick off and have invited all past team

leaders to Applebees on Thursday to get them all pumped up. We want

to make this years JAM the biggest and the best yet!!!

Hugs Helen and (9,systemic)

-- In , Beth Yohnk <yohnkmom@...> wrote:

>

> Hi everyone:

>

> This morning our family and friends participated in the

Arthritis Foundation Jingle Bell Walk/Run. We had 17 people on our

team all walking for Hannah! Our team name was Hannah's Holiday

Heroes and Hannah raised $380.00 on her own for the Arthritis

Foundation.

>

> It was at our local zoo and even though it was really cold, we

had a blast. As soon as Georgina approved our pictures, check out

Hannah's album on the group site. You will see a picture of our

team. Hannah is in the wheelchair and I am standing to her right

with the red/green Christmas hat on; Mike is right behind me in the

Santa hat and Jay is on the left of picture in the black winter

hat. The other 2 pictures are close-ups of our team tshirts,

modeled by Hannah.

>

> Beth

>

>

>