Re: Jingle Bell Walk/Run/ Cindy

[Guest guest]

-,

Im so sorry things are not going well for n, she has overcome

so much this year. I hope the enbrel kicks in quickly and works

wonders for her.

n is such a wonder to keep her GPA up so high with all that is

going on. I can only imagine her heartache at broken dreams, I

remember how excited she was about high jumping. Hopefully talking

to someone will help and perhapd she can find another dream to

follow.

hugs Helen and (9,systemic)

-- In , Price <bc.price@...> wrote:

>

> Hi ,

>

> She is doing okay in school, but the missed days do take a toll.

She

> has a 3.7, but it is hard to maintain being sick a lot. She is

> applying to some hard colleges, so the pressure is on her to keep

the

> grades up. We want her to go on the West coast, but her dream

> college is Brown. Rhode Island is not very close to Oregon. Her

> second choice is the University of Washington, which I am hoping

for.

>

> I worry about n, and this last bump has been tough on me. I

> continue to run. I have also taken up rock climbing. Maybe, it

is

> middle age crisis. I enjoy the climbing, for you really have to

> concentrate while climbing. You can't think about your problems

at

> all. When I run, I still think. So needless to say, I am

getting

> pretty lean and mean. I am the oldest woman climbing at this

> particular gym by about two decades. The young ones kind of just

> look at me. No telling what they think. I have signed up for

> another half marathon next May. It gives me something to works

> towards. Take care,

>

>

> On Nov 13, 2006, at 2:02 PM, wrote:

>

> >

> > Hi ,

> >

> > I¹m sorry that n is not doing well. Is she keeping up with

her

> > schoolwork, or is she not able to do so? Can she get a home

tutor?

> > Ezra has

> > been on kineret for seven months now and is doing pretty well

with

> > it. The

> > shot itself is painful, and that¹s hard for all of us. For the

past

> > two

> > years Ezra has missed many, many days of school, and slept in

> > school for

> > most of the other days. He¹s missed a lot of learning time.

This

> > year has

> > been better, thankfully. For the past year and a half Ezra has

also

> > been

> > seeing a psychologist who has a special interest in chronically

ill

> > children. I don¹t think Ezra is depressed, but he certainly

thinks

> > and talks

> > about things, like why people get sick, and how life is

different

> > for him,

> > that he can¹t really talk about with other kids. I think it¹s

much

> > more

> > difficult for a teenager like n who is starting to think

about

> > her life

> > plans. I hope she finds the psychologist helpful, but it takes

> > time. How are

> > you feeling about this? Are you still running? Best wishes.

> > (and Ezra,

> > 10, systemic)

> >

> > On 11/13/06 2:24 PM, " Price " <bc.price@...> wrote:

> >

> > >

> > >

> > >

> > >

> > > Hi , I thought I would chime in here, for n and

are

> > > so similar. n has been battling JRA and missing school,

too.

> > > We brought her to the rheumy last week, and he gave her three

> > > options. Up the mtx, go on steroids, or go back on enbrel. She

chose

> > > the enbrel. We will give it 2-4 weeks, and then we will move to

> > > kineret. n has missed well over the 10 days allowed per

> > > semester. She is like your daughter, in that 5 days of school

a week

> > > is too much for her.

> > >

> > > Things are complicated with this disease, but it looks like

n

> > > may be fighting depression. Seven years of battling systemic

has

> > > taken its toll on her. We are going to get her some counseling

> > > starting tomorrow. Many of her dreams have had to be changed

with

> > > this disease, regarding high jumping and college.

(n, 17,

> > > systemic)

> > > On Nov 13, 2006, at 9:59 AM, sonia1md wrote:

> > >

> > >> > Good weekend...bad Monday. Woke up with sorethroat and

sore

> > wrists,

> > >> > fingers, knees, ankles, toes! :-(

> > >> >

> > >> > Still haven't made it a week in school without an absence.

ugh!

> > >> >

> > >> > sonia (drea 11 systemic jra/gerd)

> > >> >

> > >> >

> > >>>> > > >

> > >>>> > > > Hi everyone:

> > >>>> > > >

> > >>>> > > > This morning our family and friends participated in

the

> > >>> > > Arthritis Foundation Jingle Bell Walk/Run. We had 17

people

> > on our

> > >>> > > team all walking for Hannah! Our team name was Hannah's

> > Holiday

> > >>> > > Heroes and Hannah raised $380.00 on her own for the

Arthritis

> > >>> > > Foundation.

> > >>>> > > >

> > >>>> > > > It was at our local zoo and even though it was

really

> > cold, we

> > >>> > > had a blast. As soon as Georgina approved our pictures,

> > check out

> > >>> > > Hannah's album on the group site. You will see a picture

of

> > our

> > >>> > > team. Hannah is in the wheelchair and I am standing to

her

> > right

> > >>> > > with the red/green Christmas hat on; Mike is right

behind

> > me in

> > >> > the

> > >>> > > Santa hat and Jay is on the left of picture in the

black

> > winter

> > >>> > > hat. The other 2 pictures are close-ups of our team

tshirts,

> > >>> > > modeled by Hannah.

> > >>>> > > >

> > >>>> > > > Beth

> > >>>> > > >

> > >>>> > > >

> > >>>> > > >