Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Holly and I are going!! Holly is very excited, she is counting the days, hours and minutes until we leave! n and Holly (14) Systemic jra since 9/94 **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 geez, still sobbing cuz I wanted to be at the summit. Dang AF!!! Anyway those going, have a blast. If you are a first timer , you will learn so much.....Alia, you will be very busy!!! Have fun guys! Donna<BR><BR><BR>**************<BR>Ideas to please picky eaters. Watch video on AOL Living.<BR> (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/\ 2050827?NCID=aolcmp00300000002598)</HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 I want you to come too..............climb in an envelope and mail yourself.........cheap that way!!! **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2008 Report Share Posted February 22, 2008 and geez postage wouldnt be so bad..dang anyone know how I can gain a few pounds??? Since surgery last year I cant gain a pound. I was at 96, now at 103 and docs want me at 110...it aint as easy as ya think....lol Donna<BR><BR><BR>**************<BR>Ideas to please picky eaters. Watch video on AOL Living.<BR> (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/\ 2050827?NCID=aolcmp00300000002598)</HTML> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Hi Alia - I am not familiar with the Advocacy Summit. What is it and where is it? > > Hello Group - > > I am not sure if there has been a post or not, but who is going to > the Advocacy Summit? Caroline and I are going - it will be our first > one. We are very excited!!! > > For all you " old timers " , I am sorry we have been so absent. Welcome > to all the newbies - there are so many wonderful people here!!!! > > Here's a quick update on Caroline...... She just turned 7 (sniff > sniff), I can't believe we have been fighting this disease for 6 > years! Ugh. She is been on Humira for over a year and it seems to be > working fairly well, although lately she has had increase joint pain > and swelling as well as some fingers getting " stuck " . Her Uveitis has > been persistently stubborn. We just had kenalog injections done the > week before christmas, her fourth one's in 2008. We see her eye doc > and her eyes post injection are down to trace cells. Yea!! Her right > cataract is continuing to grow at a steady, but slow pace, and her > left cataract remains largely unchanged. Her pressure is still > hovering slight about normal, but we are happy with that for now..... > > I hope to catch up with many of you again.... > > Alia and Caroline, age 7, poly and uveitis > > Alan (DH), Evan (3), Greer (16 months) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Hi Alia! Welcome back! Glad to hear your update. It is good to hear the Humira seems to be working, and I sure hope those eyes improve. Been wondering how things have been with you all - it has been a while. How are the little ones doing? Great to " hear " from you, Michele ( 21, spondy) ________________________________ From: [mailto: ] On Behalf Of Alia Pranke Sent: Friday, February 13, 2009 9:01 AM Subject: Advocay Summit Hello Group - I am not sure if there has been a post or not, but who is going to the Advocacy Summit? Caroline and I are going - it will be our first one. We are very excited!!! For all you " old timers " , I am sorry we have been so absent. Welcome to all the newbies - there are so many wonderful people here!!!! Here's a quick update on Caroline...... She just turned 7 (sniff sniff), I can't believe we have been fighting this disease for 6 years! Ugh. She is been on Humira for over a year and it seems to be working fairly well, although lately she has had increase joint pain and swelling as well as some fingers getting " stuck " . Her Uveitis has been persistently stubborn. We just had kenalog injections done the week before christmas, her fourth one's in 2008. We see her eye doc and her eyes post injection are down to trace cells. Yea!! Her right cataract is continuing to grow at a steady, but slow pace, and her left cataract remains largely unchanged. Her pressure is still hovering slight about normal, but we are happy with that for now..... I hope to catch up with many of you again.... Alia and Caroline, age 7, poly and uveitis Alan (DH), Evan (3), Greer (16 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 unfortunately I will not be at the Summit this year but you will love it Alia! It is educational, rewarding and really lots of fun. I miss going to the Summit so much. My Congressman signed on to the APCCA as an original co-sponsor a few weeks ago! Have lots of fun and I know Caroline will do a fabuous job! Donna Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.