Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 I have a few questions to maybe help me with this waiting on a diagnosis thing, if i asked these before please forgive me! LOL I am a little nutso right now. LOL 1.) since your childs first sign that there was something wrong how long before you got a diagnosis 2.) were they sure of this diagnosis right away or change their minds 3.) has anyone thought of seeing if St Jude did any research for jra and has anyone tried getting in there if so. 4.) has anyone been treated at the Cleveland clinc 5.) do you encourage sencond opinions? 6.) with jra does your child at times seem ok them the next 5 minutes they are in alot of pain 7.) during a flare how long before you chils is up and moving during the day? Caleb on friday it was 130pm before he could walk then it was with a severe limp and today is a repeat of yesterday. now they want to try him off the naproxyn and this is what is happening i feel horrible for him and as a parent. I guess I am just getting upset with all of the road blocks and are looking to my jra moms and dads and grandmas for help. please give me any advise. I am just having a hard time with stress and the not knowing right now! Thanks in advance for all of your responses. and Caleb 7 ? systemic JRA Quote Link to comment Share on other sites More sharing options...
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