Guest guest Posted January 13, 2008 Report Share Posted January 13, 2008 Hello All, Its been a long time since I wrote about . She is 13 and was dx in 2001 with pauc jra, and then in 2004 she was dx with poly which was strange since I did know it could change, she also has chronic uvestis. In April 07 she was dx with kidney failure and kimura diease. With 6 months of chemo JEn is now on a meds so her body will not reject her own kidneys. Since Dec she has had a problem with her knee, but she can not take her arthritis meds because those meds go right thru the kidneys, so if she has flares she can only take tylenol. Jen's world has been tossed upside down but she has been doing a good job of talking about it and she has made the girls basketball team because she is not going to let anything get her down, I wish I could feel the same. I worry so much every time she gets a cold or aches I worry if she falls but I am trying to learn its her life and she can manage it because so far she has.She is so good about taking her meds which are yuk on her own. Always anf Lake in the hills illinois ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
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