Re: Rheumys at Valley Children's Hospital in Madera CA??

[Guest guest]

Hi Aly,

I can't help you with Valley Children's Hospital, but I was wondering

if Stanford would be a possibility for you since you now go to

Oakland? Our daughter has been seen by the chief pediatric rheumy at

Stanford, and we have been very, very impressed. We live in Oregon,

but our 18 year old systemic daughter goes to college in the San Fran

area, and we have to have an emergency doctor for her in California.

(n, 18, systemic)

On Jan 7, 2008, at 2:21 PM, alysonmacon wrote:

> Hi, I'm new to this forum. My name is Aly and I am in the process of

> getting a diagnosis for my 5 year old DD who we think has systemic

> onset JRA/JIA.

>

> We've been seeing a rheumy at Oakland Children's Hospital but are not

> very pleased with him. I'm considering going to Valley Children's

> Hospital in Madera to have DD see the Rheumy there. Has anyone's child

> seen any of the dr.'s there? What was your experience like? Any

> info on

> the hospital or dr.s would be great. Thanks!

> -Aly

>

>

>

[Guest guest]

Hi and thanks for your reply. I have thought about Stanford but

it's a longer trip than Oakland for us. We are already making weekly

trips to Oakland (3 hours away) and with a 5yr old & our other 2

younger children, well, it gets a bit much. (We sometimes leave the 2

younger ones with grandma but one is an infant and he doesn't take a

bottle well!) Madera would be a much easier and shorter drive, so I'm

just hoping it would work out. I won't hesitate to look into

Standford, but I'd love it if the dr. in Madera was a good one!

-Alyson

>

> > Hi, I'm new to this forum. My name is Aly and I am in the process

of

> > getting a diagnosis for my 5 year old DD who we think has systemic

> > onset JRA/JIA.

> >

> > We've been seeing a rheumy at Oakland Children's Hospital but are

not

> > very pleased with him. I'm considering going to Valley Children's

> > Hospital in Madera to have DD see the Rheumy there. Has anyone's

child

> > seen any of the dr.'s there? What was your experience like? Any

> > info on

> > the hospital or dr.s would be great. Thanks!

> > -Aly

> >

> >

> >

>

>

>

>

[Guest guest]

Hi Aly,

We are in Northern California as well and see the pediatric

rheumatologists at Stanford. We have been very impressed. My daughter

has not yet been diagnosed, but I feel like the doctors at Stanford

truly care about her and listen to our concerns. They have looked for

every possible option and have not given up finding an answer. Our

regular doctor is Dr. Tzielan Lee.

Hope that helps some. Unfortunately I am not familiar with Valley

Children's Hospital in Madera.

Good luck!

am

>

> Hi, I'm new to this forum. My name is Aly and I am in the process of

> getting a diagnosis for my 5 year old DD who we think has systemic

> onset JRA/JIA.

>

> We've been seeing a rheumy at Oakland Children's Hospital but are not

> very pleased with him. I'm considering going to Valley Children's

> Hospital in Madera to have DD see the Rheumy there. Has anyone's

child

> seen any of the dr.'s there? What was your experience like? Any info

on

> the hospital or dr.s would be great. Thanks!

> -Aly

>

[Guest guest]

I also am from Northern California. I currently am

treated at Stanford adult hospital because I'm 23.

However I was treated by Dr. Sanborge at Lucille

Packard Childrens Hospital (stanford childrens) and it

honestly was amazing being treated there. I miss my

pediatric rheumatology staff and the hospital is a

very nice facility too. I would consider Stanford..

I've heard UCSF is really good too. Not sure about

Valley Children's though sorry.

(JAS, 23 dx at 7)

--- maryamjn <maryamjn@...> wrote:

> Hi Aly,

>

> We are in Northern California as well and see the

> pediatric

> rheumatologists at Stanford. We have been very

> impressed. My daughter

> has not yet been diagnosed, but I feel like the

> doctors at Stanford

> truly care about her and listen to our concerns.

> They have looked for

> every possible option and have not given up finding

> an answer. Our

> regular doctor is Dr. Tzielan Lee.

>

> Hope that helps some. Unfortunately I am not

> familiar with Valley

> Children's Hospital in Madera.

>

> Good luck!

> am

>

>

>

> >

> > Hi, I'm new to this forum. My name is Aly and I am

> in the process of

> > getting a diagnosis for my 5 year old DD who we

> think has systemic

> > onset JRA/JIA.

> >

> > We've been seeing a rheumy at Oakland Children's

> Hospital but are not

> > very pleased with him. I'm considering going to

> Valley Children's

> > Hospital in Madera to have DD see the Rheumy

> there. Has anyone's

> child

> > seen any of the dr.'s there? What was your

> experience like? Any info

> on

> > the hospital or dr.s would be great. Thanks!

> > -Aly

> >

>

>

>

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