update Rheumy visit for Caleb

[Guest guest]

We saw Dr Passo today, we finally have a diagnosis. He said he was a

systemic JIA aka stills disease kid. Ok that is very surreal. In a

way we were prepared for a diagnosis any diagnosis but when you are

finally told you kid has a " disease " it really makes you sit down and

think wow now what, which we will decide all of that in 2 weeks. He

said that he wanted to hold off on steroids until after his eye appt

and he wants to discuss PT at the next visit. I am not sure if holding

off on the steriods will make a difference or not but I know that he

knows best so we will just go along for the ride until we feel we need

to question it. Another thing that he was a littlw concerned about was

Calebs weight gain he gained 2 1/2 pounds in 7 days and I know that

starting steroids that woould make him gain more weight. Better run

gotta get up for work in just a few short hours! Did anyone elses

rheumy call their JIA stills is it the same?

(mom to Caleb 7 systemic JIA/ aka stills)