Re: Re: spouse involvement?/

[Guest guest]

That is a really good perspective.

How is Andy doing these days??

and Rob 18 JAS

Re: spouse involvement?

> Hi everyone,

>

> I know there have been a lot of replies on this one, so I

> apologize if

> I am restating other posts.

>

> It can be frustrating when one spouse (husband or wife) isn't up to

> date and on the same page with regards to information. But I

> think we

> have to remember that some of us are good at some things and others

> are good at other things. I have the teachers and doctors down, while

> my husband has the finances and car. If I had to have work done

> on our

> car, I couldn't begin to tell you the last time it had an oil change.

> My husband, on the other hand, couldn't begin to name 1/2 of the

> medications Andy is on. Sure, it can be frustrating to me, but I'm

> sure he rolls his eyes just as much when it comes to other stuff that

> I do wrong.

>

> I created a sheet that has all of Andy's medication, dosage, doctors

> and phone numbers, pharmacy, SSN, insurance info, etc. all on one

> page. My mother, my father, the school, my husband and I all

> have this

> same info on file and we carry it with us. No one can be

> expected to

> remember everything, so better to be prepared than at a loss.

>

> I can relate to having more questions after the visit when my husband

> takes Andy to the doctor. I've just decided that is one thing

> that I'm

> better at, so I do it. I know it isn't always possible, so I

> make a

> list of questions and have him ask the doctor if I can't be there.

> None of this is a perfect situation, but we're human, and we can only

> do what we can do.

>

> Maybe these ideas will help.

>

> Wishing everyone health and happiness.

>

>

> (Andy, age 9, psoriatic)

>

>

>

>

> >

> > I have a a different question for everyone. Yesterday I

> had my

> > husband, Greg, take Grant to his eye doctor appt. All

> our appts are

> > a 2 hour drive for us into Mpls. so we have to take off at

> least a

> > half a day work.(sometimes a whole day) I just feel

> guilty taking

> > all that time off of work, when my husband could be helping

> out

> > some. So anyways thats why I have sent him on a couple

> eye appts.

> > and both times I have more questions after Greg explains

> things to

> > me than I did before the appt! What really made me

> realize how

> > uninvolved Greg is was yesterday he told me the Dr. asked

> about the

> > medications Grant was taking and Greg didn't know. He

> didn't even

> > know what medications he was taking!!!! I'm

> assuming that this is

> > just a " man " thing especially since I've noticed that this

> group is

> > composed primarily of women. Has anyone else had to deal

> with this

> > and how do you get them to be more involved? Do you send

> your

> > husbands to appts. w/out you? I guess I'm hoping that

> I'm not alone

> > in this. I think Greg realized yesterday that he needs

> to learn

> > more about this. Hopefully he will start reading the

> pages upon

> > pages of articles I've printed about JA and Uveitis.

> >

> > & Grant 10/PsA/Uveitis

> >

>

>

>