Conference and Digest Number 5379

[Guest guest]

I'm relatively new to the group and have been mostly lurking and learning from

you these days.

Beth and everyone...are you referring to the National Juvenile Arthritis

Conference in Costa Mesa this summer? I'm in CA (daughter is seen by rheumy at

UCLA) and should probably attend this one. What do you think?

My kiddo is 6 years old and not textbook either. She has chronic joint pain

(mostly at night, which I don't understand at all) in her ankles and, on bad

nights, it migrates to her wrists, knees, etc. Her WBC count, IgA, IgG, etc.

are low and controlled with IVIG. I'm so worried about us not preventing

progression of " it " and only doing pain management (which is a struggle as

well). Nights are treacherous and we are constantly struggling with " it " ...what

to do...how far to push her docs...are there answers to be had...

mom to 6 year old, JIA? CVID