RE: Flank Pain No Answers

[Guest guest]

did they check for mono?

>

> Hi Everyone,

> Its been a while since I have posted.My daughter Jordan 10, has

> systemic, she was diagnosed just over a year ago.Things have been

> pretty calm.She is on Naproxen and Kineret.Occasional stiffness

but

> that is usually the only sign of arthur.

> Our newest dilema though has me and all the doctors in the ED

> stumped. We were in the emergency room all night because Jordan

has

> had severe flank pain on her left side and has been overly tired

and

> sleepy,15 hours plus a day this has been going on for 5 days now.

> First they said it was a uti, but she has no burning when she

pees

> and no fever,they took a urine sample and said antibiotics will

help,

> I insisted on bloodwork being done because that gut feeling is

> there.Well blood work came back normal for her, which means a few

> things off because of the JRA but nothing pointing to what the new

> problem is.The doctor came in and said she is now stumped because

its

> definitly not a uti but nothing else is showing in the blood work.

So

> next she ordered a CT scan. Once again nothing showing. So at 5 am

> they send us home with no answers, Jordan is still hurting and

> feeling very sleepy.I feel like we are back to where we first

started

> before her diagnosis, back to the unknown.

> I was just wondering if anyone has had these symptoms or any

ideas

> would be greatly appreciated.

> Thank you,

> a and Jordan (10,SOJRA and MAS)

>

[Guest guest]

I'm trying to catch up on emails - how is Jordan doing today? Could it

be appendicitis? Please let us know how she's doing, Michele ( 20,

spondy)

________________________________

From: [mailto: ] On

Behalf Of paula

Sent: Thursday, January 03, 2008 1:35 PM

Subject: Flank Pain No Answers

Hi Everyone,

Its been a while since I have posted.My daughter Jordan 10, has

systemic, she was diagnosed just over a year ago.Things have been

pretty calm.She is on Naproxen and Kineret.Occasional stiffness but

that is usually the only sign of arthur.

Our newest dilema though has me and all the doctors in the ED

stumped. We were in the emergency room all night because Jordan has

had severe flank pain on her left side and has been overly tired and

sleepy,15 hours plus a day this has been going on for 5 days now.

First they said it was a uti, but she has no burning when she pees

and no fever,they took a urine sample and said antibiotics will help,

I insisted on bloodwork being done because that gut feeling is

there.Well blood work came back normal for her, which means a few

things off because of the JRA but nothing pointing to what the new

problem is.The doctor came in and said she is now stumped because its

definitly not a uti but nothing else is showing in the blood work. So

next she ordered a CT scan. Once again nothing showing. So at 5 am

they send us home with no answers, Jordan is still hurting and

feeling very sleepy.I feel like we are back to where we first started

before her diagnosis, back to the unknown.

I was just wondering if anyone has had these symptoms or any ideas

would be greatly appreciated.

Thank you,

a and Jordan (10,SOJRA and MAS)

[Guest guest]

Jordan is still having the pain today and sleeping even more, I had to wake her

at 1:30 this afternoon to go see our primary. He says appendix and gallbladder

are good.He was thinking pneumonia but her lungs are clear. He is really stumped

he was trying to get ahold of our rheumatologist in Boston and see if he has any

ideas. So once again its a waiting game. I feel like we are back to the

beginning again. a(Jordan,10,SOJRA and MAS)

I almost forgot , lol, when we were in the ER I had to explain MAS to the

attending and they asked me what bloodwork to run

" Tepper, Michele " <MTepper@...> wrote:

I'm trying to catch up on emails - how is Jordan doing today? Could it

be appendicitis? Please let us know how she's doing, Michele ( 20,

spondy)

________________________________

From: [mailto: ] On

Behalf Of paula

Sent: Thursday, January 03, 2008 1:35 PM

Subject: Flank Pain No Answers

Hi Everyone,

Its been a while since I have posted.My daughter Jordan 10, has

systemic, she was diagnosed just over a year ago.Things have been

pretty calm.She is on Naproxen and Kineret.Occasional stiffness but

that is usually the only sign of arthur.

Our newest dilema though has me and all the doctors in the ED

stumped. We were in the emergency room all night because Jordan has

had severe flank pain on her left side and has been overly tired and

sleepy,15 hours plus a day this has been going on for 5 days now.

First they said it was a uti, but she has no burning when she pees

and no fever,they took a urine sample and said antibiotics will help,

I insisted on bloodwork being done because that gut feeling is

there.Well blood work came back normal for her, which means a few

things off because of the JRA but nothing pointing to what the new

problem is.The doctor came in and said she is now stumped because its

definitly not a uti but nothing else is showing in the blood work. So

next she ordered a CT scan. Once again nothing showing. So at 5 am

they send us home with no answers, Jordan is still hurting and

feeling very sleepy.I feel like we are back to where we first started

before her diagnosis, back to the unknown.

I was just wondering if anyone has had these symptoms or any ideas

would be greatly appreciated.

Thank you,

a and Jordan (10,SOJRA and MAS)

[Guest guest]

a,

had this type of pain where we all thought it was Appendix and

then the Gall Bladder. All Tests came back Negative. The Ultra Sound was done

on the whole Abdomen as well and nothing still showed up.

She also had pain in the center of her chest. Which was later found out

that she had Arthritis in the rib's as well. The Pain in the side and abdomen

still comes and goes. The Dr never figuired it out and finally diagnosed it

with JRA related. She was also Diagnosed with CTD ( Connective Tissue Disease

) which can be related to this type of pain in the area as Muscle.

I would discuss this over with the Dr. He can do a Blood Test to check

the Muscle Enzymes. We have thought it was also her Kidneys as well. So maybe

checking this out as well.

With JA something can pop up and we think it is not related but in the

end we find that JA is more than we thought.

When was asked about the Pain she always said it feels different

than the JA pain.

She had a Bad Flare with this a couple of years ago. When taken to the ER

this one Doctor did extreme testing. He came back and said it was related to

the MCTD. I knew a lot about the CTD and knew so far she had the issue with

the Muscles in her arms and legs. But to see it act up in this way was totally

different.

Surprizingly JA has many angles in which it can attack. Not only the

Joints, But it can attack the eyes and Organs. I always say JA is like getting

on

a Roller Coaster and never getting off.

Hope this helps,

Robbin

Mom to age 20, Poly JA with Related Issues.

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Hi my name is Tricia, I chime in between Dr visits but read the blog almost

evernight. I am a massage therapist. My daughter is 2 and has alot of the same

issues. I do what they call a Myofascial release on her in between her ribs on

the costal cartlidges. It helps bring some relief. I also check for trigger

points. They are knots in the muscle that refer pain to other places. It seems

to help. When a person has inflamation in the joint, the muscle get " kinked "

and shortned. Iam not sure were you live But you can go on AMTA.org to find a

therapist or if your child goes to PT tell them they can do the same thing, or

mabey evan find a chiropractor that does Applied Keinsoilogy. Hope this helps.

It sucks when they dont feel good and there is nothing that you can do. We spent

all day yesterday in the ER, Kennas feet were so swollen they were a reddish./

purplish color. Anyway good luck

Tricia

sapphire <sapphire61768@...> wrote:

Jordan is still having the pain today and sleeping even more, I had to

wake her at 1:30 this afternoon to go see our primary. He says appendix and

gallbladder are good.He was thinking pneumonia but her lungs are clear. He is

really stumped he was trying to get ahold of our rheumatologist in Boston and

see if he has any ideas. So once again its a waiting game. I feel like we are

back to the beginning again. a(Jordan,10,SOJRA and MAS)

I almost forgot , lol, when we were in the ER I had to explain MAS to the

attending and they asked me what bloodwork to run

" Tepper, Michele " <MTepper@...> wrote:

I'm trying to catch up on emails - how is Jordan doing today? Could it

be appendicitis? Please let us know how she's doing, Michele ( 20,

spondy)

________________________________

From: [mailto: ] On

Behalf Of paula

Sent: Thursday, January 03, 2008 1:35 PM

Subject: Flank Pain No Answers

Hi Everyone,

Its been a while since I have posted.My daughter Jordan 10, has

systemic, she was diagnosed just over a year ago.Things have been

pretty calm.She is on Naproxen and Kineret.Occasional stiffness but

that is usually the only sign of arthur.

Our newest dilema though has me and all the doctors in the ED

stumped. We were in the emergency room all night because Jordan has

had severe flank pain on her left side and has been overly tired and

sleepy,15 hours plus a day this has been going on for 5 days now.

First they said it was a uti, but she has no burning when she pees

and no fever,they took a urine sample and said antibiotics will help,

I insisted on bloodwork being done because that gut feeling is

there.Well blood work came back normal for her, which means a few

things off because of the JRA but nothing pointing to what the new

problem is.The doctor came in and said she is now stumped because its

definitly not a uti but nothing else is showing in the blood work. So

next she ordered a CT scan. Once again nothing showing. So at 5 am

they send us home with no answers, Jordan is still hurting and

feeling very sleepy.I feel like we are back to where we first started

before her diagnosis, back to the unknown.

I was just wondering if anyone has had these symptoms or any ideas

would be greatly appreciated.

Thank you,

a and Jordan (10,SOJRA and MAS)