Jaye

January 20, 2008

Jaye has been doing ok. Today, we got a call that her dad's father passed

away. She is pretty close to her grandparents and so she is really pretty bummed

out. She is in pain nearly every day but not so bad that she can not keep going.

She has only missed one day of school this month due to her joints. She gets

frustrated some days because the pain moves from one place to another. This

month her main problem has been pain in her back, sholders and neck. She seems

to do better when it is her knees and ankles because I think she is used to

those areas hurting. For her knees & ankles they seem to feel better when she is

not walking so she gets relief. It seems that her back just bothers her all

day.?The stairs are bothering her again and of course she refused to use the

elevator at school. But she is doing so good at taking her meds. She is only on

Naproxin and Hydroxichloroquine for now. We have only been back on they

Hydroxichloroquine for about six weeks and I know it takes a long time to do the

job it is supposed to do. She does not complain about being stiff but I can tell

when she is getting around in the mornings that she is most often stiff. I think

stiff is just so normal now that she does not even realize it is there. Because

when I ask she will say no, not really and then if I ask why then are you moving

so slow she will think about it and say well maybe I am stiff. Fortunatly she is

not in severe pain. Her pain is just constant. We have had so much up and down

with the temperature that I just want it to stay one temp. But above 20. Each

time it goes below 20 degrees here the water to my toilet freezes and that is a

royal pain in the rear. I hate being cold but really think that if she felt

better with the cold I would adjust and be more accepting of it.?

?

Veri & Jaye 13 poly (will be 14 in 9 days)

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