A cure for their suffering

[Guest guest]

A cure for their suffering

http://www.countypress.com/stories/022008/loc_20080220010.shtml

PUBLISHED: Wednesday, February 20, 2008

HADLEY TWP-Like many 9-year-old boys, Andy Moy is outgoing, a prankster,

smart, and loves computers and animals.

But Moy often feels pain when he walks because of stiffness in his muscles

and joints caused by juvenile psoriatic arthritis.

Family and friends are having a benefit for the Waterford youth - once

called a " poster child " for the Arthristis Foundation - who is one of

Michigan's 2008 Statewide Walk Heroes. Friends and family are hoping to

garner the type off funds that will help find a cure for the disease March

15 at Boulder Pointe Golf and Banquet Center in Oxford.

" We wanted to do something fun, " said Moy, Andy's mother. " We have a

lot of silent auction items, sports stuff, golf packages, computer stuff - a

little bit of everything so everyone can have fun.

Steppin' Out With Andy will be held 5:30 p.m. to midnight March 15 at

Boulder Pointe. The event will include dinner, cocktails, dessert, dancing,

a silent auction, raffles, and door prizes. Cost is $50 with proceeds going

to help the Arthritis Foundation.

said part of the proceeds will go to Camp Dakota, a recreational camp

at Bear Lake that's put on annually by the Lions' Club for those with

arthritis.

For Andy, who also suffers from psoriasis, it can be hard to move around

throughout the day. While his school was closed Monday due to the snow, he

went to work with his father, Moy, at Compuware Corporation, where

there is on-site childcare. is a Web designer there.

" My arthritis sometimes hurts because when I'm sick I have to take a shot

twice a week, " Andy explained. " I don't have to cope with it if it's not

active. When active it gets to be really painful.

" I had a rough morning and had a hard time getting out of bed. I asked my

mom to help me up, " Andy said.

" When I get itchy it feels like a tickle then spreads to that itchy

feeling. "

The nature of the disease is it goes up and down said . " So many people

think arthritis is part of the aging process, " she said.

" This morning he spent a lot of time crawling around on the floor.

Hopefully, we'll find a cure and can provide research. His knees and hips

were especially hurting him this morning, but the more he moves the better

he'll feel. "

said her son's arthritis and psoriasis are controlled auto-immune

diseases that are helped substantially with bi-weekly shots of the drug

Embreo.

The benefit for Andy that has been planned with Deborah Lambourn, his Hadley

Township aunt. Lambourn said her great-nephew sometimes visits her at her

Hadley Township home.

" He was diagnosed when he was 5, " she said. " He takes nine pills a day. Some

days are better than others.

" We're hoping he'll be at the benefit. To look at this kid, you'd never know

he has arthritis. "

Andy said he's honored people are having a benefit on his behalf. " I think

it's a good idea, " he said. " It's not just helping me, but helping other

kids with arthritis. "

Tickets for the benefit are $50 each or purchase five tickets and the sixth

ticket is free. Reservations need to be made by March 1. All tickets will

accompany a $25 gift card for massage services. Tickets may be purchased

online at www.SteppinOutWIthAndy.com or by mail with a check made out to

Steppin' Out With Andy and mailed to P.O. Box 312, Holly, MI 48442-0312.

Items up for bid at the benefit will include a package for two to the Grand

Hotel on Mackinac Island, a tour Detroit package, sports memorabilia,

jewelry, gift certificates, professional photography services, artwork, golf

outings, and much more.

The Arthritis Foundation, Michigan Chapter is the only voluntary health

agency in the state providing for education, research, and improved

treatment for more than 100 forms of arthritis.

For more information contact Lambourn at (810) 797-4507.

[Guest guest]

biweekly shots of Embreo.. nice.... LOL....

On Sat, Feb 23, 2008 at 2:33 PM, Georgina <gmckin11@...> wrote:

> A cure for their suffering

> http://www.countypress.com/stories/022008/loc_20080220010.shtml

>

> PUBLISHED: Wednesday, February 20, 2008

>

> HADLEY TWP-Like many 9-year-old boys, Andy Moy is outgoing, a prankster,

> smart, and loves computers and animals.

>

> But Moy often feels pain when he walks because of stiffness in his muscles

>

> and joints caused by juvenile psoriatic arthritis.

>

> Family and friends are having a benefit for the Waterford youth - once

> called a " poster child " for the Arthristis Foundation - who is one of

> Michigan's 2008 Statewide Walk Heroes. Friends and family are hoping to

> garner the type off funds that will help find a cure for the disease March

>

> 15 at Boulder Pointe Golf and Banquet Center in Oxford.

>

> " We wanted to do something fun, " said Moy, Andy's mother. " We have a

>

> lot of silent auction items, sports stuff, golf packages, computer stuff -

> a

> little bit of everything so everyone can have fun.

>

> Steppin' Out With Andy will be held 5:30 p.m. to midnight March 15 at

> Boulder Pointe. The event will include dinner, cocktails, dessert,

> dancing,

> a silent auction, raffles, and door prizes. Cost is $50 with proceeds

> going

> to help the Arthritis Foundation.

>

> said part of the proceeds will go to Camp Dakota, a recreational

> camp

> at Bear Lake that's put on annually by the Lions' Club for those with

> arthritis.

>

> For Andy, who also suffers from psoriasis, it can be hard to move around

> throughout the day. While his school was closed Monday due to the snow, he

>

> went to work with his father, Moy, at Compuware Corporation, where

> there is on-site childcare. is a Web designer there.

>

> " My arthritis sometimes hurts because when I'm sick I have to take a shot

> twice a week, " Andy explained. " I don't have to cope with it if it's not

> active. When active it gets to be really painful.

>

> " I had a rough morning and had a hard time getting out of bed. I asked my

> mom to help me up, " Andy said.

>

> " When I get itchy it feels like a tickle then spreads to that itchy

> feeling. "

>

> The nature of the disease is it goes up and down said . " So many

> people

> think arthritis is part of the aging process, " she said.

>

> " This morning he spent a lot of time crawling around on the floor.

> Hopefully, we'll find a cure and can provide research. His knees and hips

> were especially hurting him this morning, but the more he moves the better

>

> he'll feel. "

>

> said her son's arthritis and psoriasis are controlled auto-immune

> diseases that are helped substantially with bi-weekly shots of the drug

> Embreo.

>

> The benefit for Andy that has been planned with Deborah Lambourn, his

> Hadley

> Township aunt. Lambourn said her great-nephew sometimes visits her at her

> Hadley Township home.

>

> " He was diagnosed when he was 5, " she said. " He takes nine pills a day.

> Some

> days are better than others.

>

> " We're hoping he'll be at the benefit. To look at this kid, you'd never

> know

> he has arthritis. "

>

> Andy said he's honored people are having a benefit on his behalf. " I think

>

> it's a good idea, " he said. " It's not just helping me, but helping other

> kids with arthritis. "

>

> Tickets for the benefit are $50 each or purchase five tickets and the

> sixth

> ticket is free. Reservations need to be made by March 1. All tickets will

> accompany a $25 gift card for massage services. Tickets may be purchased

> online at www.SteppinOutWIthAndy.com <http://www.steppinoutwithandy.com/>or by

mail with a check made out to

> Steppin' Out With Andy and mailed to P.O. Box 312, Holly, MI 48442-0312.

>

> Items up for bid at the benefit will include a package for two to the

> Grand

> Hotel on Mackinac Island, a tour Detroit package, sports memorabilia,

> jewelry, gift certificates, professional photography services, artwork,

> golf

> outings, and much more.

>

> The Arthritis Foundation, Michigan Chapter is the only voluntary health

> agency in the state providing for education, research, and improved

> treatment for more than 100 forms of arthritis.

>

> For more information contact Lambourn at (810) 797-4507.

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

[Guest guest]

That was even after I spelled it... twice!Not only that bu much of it was

taken out of context and " I don't have to cope with it when it's not active "

-- I don't think Andy even knows what that means! Only once he's been told

that he didn't have any active arthritis, and that didn't last long. He

doesn't even know what the word " cope " means.

We were thankful the story was written to maybe generate some ticket sales

to our fundraising event, but overall, I was quite disappointed. I'm a

journalism major and to have that many mistakes in one article is rather

unprofessional.

Also, another quick story another newspaper did was to publish the press

release I sent word for word and then write their own caption to a file

photo they had. Though the entire story was about Andy having arthritis, the

caption still read he had juvenile diabetes.

I guess we need to look at the greater good and realize that the information

may be incorrect, but they did accomplish the task of spreading awareness

about juvenile arthritis, and that is at least one area that could use some

press coverage.

(Andy, 9, psoriatic)

On Sun, Feb 24, 2008 at 6:21 AM, Issadora <FlyfreeIzzie@...> wrote:

> biweekly shots of Embreo.. nice.... LOL....

>

>

> On Sat, Feb 23, 2008 at 2:33 PM, Georgina

<gmckin11@...<gmckin11%40hawaiiantel.net>>

> wrote:

>

> > A cure for their suffering

> > http://www.countypress.com/stories/022008/loc_20080220010.shtml

> >

> > PUBLISHED: Wednesday, February 20, 2008

> >

> > HADLEY TWP-Like many 9-year-old boys, Andy Moy is outgoing, a prankster,

> > smart, and loves computers and animals.

> >

> > But Moy often feels pain when he walks because of stiffness in his

> muscles

> >

> > and joints caused by juvenile psoriatic arthritis.

> >

> > Family and friends are having a benefit for the Waterford youth - once

> > called a " poster child " for the Arthristis Foundation - who is one of

> > Michigan's 2008 Statewide Walk Heroes. Friends and family are hoping to

> > garner the type off funds that will help find a cure for the disease

> March

> >

> > 15 at Boulder Pointe Golf and Banquet Center in Oxford.

> >

> > " We wanted to do something fun, " said Moy, Andy's mother. " We have

> a

> >

> > lot of silent auction items, sports stuff, golf packages, computer stuff

> -

> > a

> > little bit of everything so everyone can have fun.

> >

> > Steppin' Out With Andy will be held 5:30 p.m. to midnight March 15 at

> > Boulder Pointe. The event will include dinner, cocktails, dessert,

> > dancing,

> > a silent auction, raffles, and door prizes. Cost is $50 with proceeds

> > going

> > to help the Arthritis Foundation.

> >

> > said part of the proceeds will go to Camp Dakota, a recreational

> > camp

> > at Bear Lake that's put on annually by the Lions' Club for those with

> > arthritis.

> >

> > For Andy, who also suffers from psoriasis, it can be hard to move around

> > throughout the day. While his school was closed Monday due to the snow,

> he

> >

> > went to work with his father, Moy, at Compuware Corporation,

> where

> > there is on-site childcare. is a Web designer there.

> >

> > " My arthritis sometimes hurts because when I'm sick I have to take a

> shot

> > twice a week, " Andy explained. " I don't have to cope with it if it's not

> > active. When active it gets to be really painful.

> >

> > " I had a rough morning and had a hard time getting out of bed. I asked

> my

> > mom to help me up, " Andy said.

> >

> > " When I get itchy it feels like a tickle then spreads to that itchy

> > feeling. "

> >

> > The nature of the disease is it goes up and down said . " So many

> > people

> > think arthritis is part of the aging process, " she said.

> >

> > " This morning he spent a lot of time crawling around on the floor.

> > Hopefully, we'll find a cure and can provide research. His knees and

> hips

> > were especially hurting him this morning, but the more he moves the

> better

> >

> > he'll feel. "

> >

> > said her son's arthritis and psoriasis are controlled auto-immune

> > diseases that are helped substantially with bi-weekly shots of the drug

> > Embreo.

> >

> > The benefit for Andy that has been planned with Deborah Lambourn, his

> > Hadley

> > Township aunt. Lambourn said her great-nephew sometimes visits her at

> her

> > Hadley Township home.

> >

> > " He was diagnosed when he was 5, " she said. " He takes nine pills a day.

> > Some

> > days are better than others.

> >

> > " We're hoping he'll be at the benefit. To look at this kid, you'd never

> > know

> > he has arthritis. "

> >

> > Andy said he's honored people are having a benefit on his behalf. " I

> think

> >

> > it's a good idea, " he said. " It's not just helping me, but helping other

> > kids with arthritis. "

> >

> > Tickets for the benefit are $50 each or purchase five tickets and the

> > sixth

> > ticket is free. Reservations need to be made by March 1. All tickets

> will

> > accompany a $25 gift card for massage services. Tickets may be purchased

> > online at www.SteppinOutWIthAndy.com <http://www.steppinoutwithandy.com/>or

> by mail with a check made out to

> > Steppin' Out With Andy and mailed to P.O. Box 312, Holly, MI 48442-0312.

> >

> > Items up for bid at the benefit will include a package for two to the

> > Grand

> > Hotel on Mackinac Island, a tour Detroit package, sports memorabilia,

> > jewelry, gift certificates, professional photography services, artwork,

> > golf

> > outings, and much more.

> >

> > The Arthritis Foundation, Michigan Chapter is the only voluntary health

> > agency in the state providing for education, research, and improved

> > treatment for more than 100 forms of arthritis.

> >

> > For more information contact Lambourn at (810) 797-4507.

> >

> >

> >

>

> --

> " Life- Like the flutter of wings... feel your hollow wings rushing... "

> (AFI-

> Silver and Cold).

>

> my Flight in life is a metamorphosis of growth and this flutter of wings

> is

> within me awaiting to find a space to find it's flow...

>

>

[Guest guest]

We have something in common...I have a journalism degree as well (before I

became a nurse). Articles like that drive me bananas! I also had a local paper

print my press release word for word but added their own ridiculous

misspellings...do they not have spell check??

Another article about Rob giving a talk to his grade school messed up several

facts as well. Is it that they just don't care enough to get it right?

I guess it is as you said, we just have to be glad that awareness is being

spread. The caption about the juvenile diabetes would have driven me nuts,

though!!

You are to be commended and admired for your efforts! You go girl!!

and Rob 18 JAS

Re: A cure for their suffering

> That was even after I spelled it... twice!Not only that bu much

> of it was

> taken out of context and " I don't have to cope with it when it's

> not active "

> -- I don't think Andy even knows what that means! Only once he's

> been told

> that he didn't have any active arthritis, and that didn't last

> long. He

> doesn't even know what the word " cope " means.

>

> We were thankful the story was written to maybe generate some

> ticket sales

> to our fundraising event, but overall, I was quite disappointed.

> I'm a

> journalism major and to have that many mistakes in one article

> is rather

> unprofessional.

>

> Also, another quick story another newspaper did was to publish

> the press

> release I sent word for word and then write their own caption to

> a file

> photo they had. Though the entire story was about Andy having

> arthritis, the

> caption still read he had juvenile diabetes.

>

> I guess we need to look at the greater good and realize that the

> informationmay be incorrect, but they did accomplish the task of

> spreading awareness

> about juvenile arthritis, and that is at least one area that

> could use some

> press coverage.

>

>

> (Andy, 9, psoriatic)

>

>

> On Sun, Feb 24, 2008 at 6:21 AM, Issadora

> <FlyfreeIzzie@...> wrote:

>

> > biweekly shots of Embreo.. nice.... LOL....

> >

> >

> > On Sat, Feb 23, 2008 at 2:33 PM, Georgina

> <gmckin11@...<gmckin11%40hawaiiantel.net>>> wrote:

> >

> > > A cure for their suffering

> > > http://www.countypress.com/stories/022008/loc_20080220010.shtml

> > >

> > > PUBLISHED: Wednesday, February 20, 2008

> > >

> > > HADLEY TWP-Like many 9-year-old boys, Andy Moy is outgoing,

> a prankster,

> > > smart, and loves computers and animals.

> > >

> > > But Moy often feels pain when he walks because of stiffness

> in his

> > muscles

> > >

> > > and joints caused by juvenile psoriatic arthritis.

> > >

> > > Family and friends are having a benefit for the Waterford

> youth - once

> > > called a " poster child " for the Arthristis Foundation - who

> is one of

> > > Michigan's 2008 Statewide Walk Heroes. Friends and family

> are hoping to

> > > garner the type off funds that will help find a cure for the

> disease> March

> > >

> > > 15 at Boulder Pointe Golf and Banquet Center in Oxford.

> > >

> > > " We wanted to do something fun, " said Moy, Andy's

> mother. " We have

> > a

> > >

> > > lot of silent auction items, sports stuff, golf packages,

> computer stuff

> > -

> > > a

> > > little bit of everything so everyone can have fun.

> > >

> > > Steppin' Out With Andy will be held 5:30 p.m. to midnight

> March 15 at

> > > Boulder Pointe. The event will include dinner, cocktails, dessert,

> > > dancing,

> > > a silent auction, raffles, and door prizes. Cost is $50 with

> proceeds> > going

> > > to help the Arthritis Foundation.

> > >

> > > said part of the proceeds will go to Camp Dakota, a

> recreational> > camp

> > > at Bear Lake that's put on annually by the Lions' Club for

> those with

> > > arthritis.

> > >

> > > For Andy, who also suffers from psoriasis, it can be hard to

> move around

> > > throughout the day. While his school was closed Monday due

> to the snow,

> > he

> > >

> > > went to work with his father, Moy, at Compuware

> Corporation,> where

> > > there is on-site childcare. is a Web designer there.

> > >

> > > " My arthritis sometimes hurts because when I'm sick I have

> to take a

> > shot

> > > twice a week, " Andy explained. " I don't have to cope with it

> if it's not

> > > active. When active it gets to be really painful.

> > >

> > > " I had a rough morning and had a hard time getting out of

> bed. I asked

> > my

> > > mom to help me up, " Andy said.

> > >

> > > " When I get itchy it feels like a tickle then spreads to

> that itchy

> > > feeling. "

> > >

> > > The nature of the disease is it goes up and down said .

> " So many

> > > people

> > > think arthritis is part of the aging process, " she said.

> > >

> > > " This morning he spent a lot of time crawling around on the floor.

> > > Hopefully, we'll find a cure and can provide research. His

> knees and

> > hips

> > > were especially hurting him this morning, but the more he

> moves the

> > better

> > >

> > > he'll feel. "

> > >

> > > said her son's arthritis and psoriasis are controlled

> auto-immune

> > > diseases that are helped substantially with bi-weekly shots

> of the drug

> > > Embreo.

> > >

> > > The benefit for Andy that has been planned with Deborah

> Lambourn, his

> > > Hadley

> > > Township aunt. Lambourn said her great-nephew sometimes

> visits her at

> > her

> > > Hadley Township home.

> > >

> > > " He was diagnosed when he was 5, " she said. " He takes nine

> pills a day.

> > > Some

> > > days are better than others.

> > >

> > > " We're hoping he'll be at the benefit. To look at this kid,

> you'd never

> > > know

> > > he has arthritis. "

> > >

> > > Andy said he's honored people are having a benefit on his

> behalf. " I

> > think

> > >

> > > it's a good idea, " he said. " It's not just helping me, but

> helping other

> > > kids with arthritis. "

> > >

> > > Tickets for the benefit are $50 each or purchase five

> tickets and the

> > > sixth

> > > ticket is free. Reservations need to be made by March 1. All

> tickets> will

> > > accompany a $25 gift card for massage services. Tickets may

> be purchased

> > > online at www.SteppinOutWIthAndy.com

> <http://www.steppinoutwithandy.com/>or> by mail with a check

> made out to

> > > Steppin' Out With Andy and mailed to P.O. Box 312, Holly, MI

> 48442-0312.

> > >

> > > Items up for bid at the benefit will include a package for

> two to the

> > > Grand

> > > Hotel on Mackinac Island, a tour Detroit package, sports

> memorabilia,> > jewelry, gift certificates, professional

> photography services, artwork,

> > > golf

> > > outings, and much more.

> > >

> > > The Arthritis Foundation, Michigan Chapter is the only

> voluntary health

> > > agency in the state providing for education, research, and

> improved> > treatment for more than 100 forms of arthritis.

> > >

> > > For more information contact Lambourn at (810) 797-4507.

> > >

> > >

> > >

> >

> > --

> > " Life- Like the flutter of wings... feel your hollow wings

> rushing... " > (AFI-

> > Silver and Cold).

> >

> > my Flight in life is a metamorphosis of growth and this

> flutter of wings

> > is

> > within me awaiting to find a space to find it's flow...

> >

> >