Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I had my 8 y.o. daughter (P.A.) to the rheumy for swollen ankles yesterday. While there I asked her to look at my 4 y.o. son's eye. I have been thinking he also has P.A.. She said she noticed how bloodshot/red it was when she walked into the room and was actually going to ask me about him. She looked and saw nail pits on him and asked some questions. She looked at his eye and said she thinks it's uveitis. Now I already looked into that on the internet since I saw it was red to see if there was a connection with P.A. She wants him to see the eye specialist asap.... tomorrow we are going. Just wondering if anyone has already gone through this type of problem. We are going for blood work Friday to see if anything shows in his labs like JRA. Weird thing is years ago (before diagnosing my daughter) she used to get what they called pink eye/conjunctivitis and kept giving her stronger and stronger antibiotics that never seemed to work. It would last for at least a month at a time. Now come to find out that it was probably uveitis. I read left untreated could cause blindness. A miracle that nothing like that happened to her since she was not treated properly at the time. And it would go on for a month at a time... over and over. Jenn from Penn mom to Grace-9-PA & Jeff-4-PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Hi Jenn, Uveitis with Psoriatic Arthritis does happen. I can't remember for sure, but there are certain meds that work better for that flavor of arthritis. I think humira is one, and possibly remicade is another. Are your children hla-b27? If they are, the uveitis can ping from one eye to another, and sometimes nsaids can help to diffuse that type of inflammation. Sorry this is a quick one, but its homework help time! A great website to read up on this type of thing is at www.uosg.org, and google psa uveitis. There is also a place to ask Dr. a question if you still have answers after you read. Wish you well, ' & a 12 jia/uveitis myamazing1 <myamazing1@...> wrote: I had my 8 y.o. daughter (P.A.) to the rheumy for swollen ankles yesterday. While there I asked her to look at my 4 y.o. son's eye. I have been thinking he also has P.A.. She said she noticed how bloodshot/red it was when she walked into the room and was actually going to ask me about him. She looked and saw nail pits on him and asked some questions. She looked at his eye and said she thinks it's uveitis. Now I already looked into that on the internet since I saw it was red to see if there was a connection with P.A. She wants him to see the eye specialist asap.... tomorrow we are going. Just wondering if anyone has already gone through this type of problem. We are going for blood work Friday to see if anything shows in his labs like JRA. Weird thing is years ago (before diagnosing my daughter) she used to get what they called pink eye/conjunctivitis and kept giving her stronger and stronger antibiotics that never seemed to work. It would last for at least a month at a time. Now come to find out that it was probably uveitis. I read left untreated could cause blindness. A miracle that nothing like that happened to her since she was not treated properly at the time. And it would go on for a month at a time... over and over. Jenn from Penn mom to Grace-9-PA & Jeff-4-PA --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Hi Jenn! My son has PA and Uveitis. His started with the uveitis that went undetected for years. Grant never has had any symptoms that an inflammation is occurring. When he was 5 he needed glasses and the optomotrist mentioned that he had scar tissue in his eye and asked if he had ever been hit in the eye. (he hadn't) but then the doc went on to say that it wasn't a big deal. 4 years later we switched optomotrists and she immediately referred us to an opthmaologist who diagnosed grant with old uveitis. He has the beginnings of a cataract and other damage to one eye along with a slight inflammation. On a check up with this opth about 6 months later, both of his eyes were in a flare and then we were referred on to a ped opth. We had no idea of Grant having arthritis at this point in fact we knew it was a possiblilty and didn't even consider it because he had no pain. Well when we were referred to a ped rheumy to see if something elso systemically was going on with him, he found 3 swollen joints! Since the pred forte drops were not taking care of all his inflammation Grant was put on mtx pills in Nov. in Jan we switched to the mtx injection and within 3 weeks all inflammation was gone in his eyes. That has been a very exciting event for us. We are now very slowly weaning Grant off the pred drops. There are so few doctors out there that know about uveitis and how to treat it. It is very important to find a good ped rheumy who deals with this often. Most opth think that drops are the only way to treat this and that is not true. It takes a joint effort with the ped opth and the ped rheumy. The drops make me so nervous because of their side affects. Cataracts/ glaucoma among a few of them. Its like a double edge sword left untreated you can get those side effects too! It makes me so mad to think about these eye doctors that don't know what uveitis is or how to treat it. They are the ones who went to school for this and they don't even know! I would have Grace's eyes checked as well! Wish you the best! Keep us posted! & Grant(11,Uveitis/PsA) > I had my 8 y.o. daughter (P.A.) to the rheumy for swollen ankles > yesterday. While there I asked her to look at my 4 y.o. son's eye. I > have been thinking he also has P.A.. She said she noticed how > bloodshot/red it was when she walked into the room and was actually > going to ask me about him. She looked and saw nail pits on him and > asked some questions. She looked at his eye and said she thinks it's > uveitis. Now I already looked into that on the internet since I saw it > was red to see if there was a connection with P.A. She wants him to see > the eye specialist asap.... tomorrow we are going. Just wondering if > anyone has already gone through this type of problem. We are going for > blood work Friday to see if anything shows in his labs like JRA. Weird > thing is years ago (before diagnosing my daughter) she used to get what > they called pink eye/conjunctivitis and kept giving her stronger and > stronger antibiotics that never seemed to work. It would last for at > least a month at a time. Now come to find out that it was probably > uveitis. I read left untreated could cause blindness. A miracle that > nothing like that happened to her since she was not treated properly at > the time. And it would go on for a month at a time... over and over. > Jenn from Penn > mom to Grace-9-PA & Jeff-4-PA > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Hi Jenn, My daughter Maggie has Uveitis and was diagnosed with this along with JIA Poly, in the spring of 2007. At her appointment 4 weeks ago her eye doc (who specializes in Uveitis) decided to try to decrease her steroid eye drops to see if the Methotrexate she is on would allow for this finally. At her appointment this last Tuesday she now has pressure behind both eyes (secondary Glaucoma) which could be caused from the steroid eye drops, her increased oral steroids (because of a recent flare up) or he explained to us on Tuesday the disease itself can cause this if it is not under close watch. Maggie was under close watch, still this happend because there really are no symptoms from what I understand. She also has white cells that float behind the lens in her eyes. They measure this on a scale of 1-4. She was at a level 3 with 4 being a whole lot of cells and 1 being very few. She used to always have a pink tinge to the whites of her eyes, almost as if she was in a room filled with smoke, but this time that didn't happen. She was a little more sensitive to bright lights and the sun glaring off of the snow, but she has had much worse issues with a lot lower number. So back up on the eye drops she goes! From what I understand being kind of new to this, you can actually have no symptoms at all and still have Uveitis. The changes my daughter has gone through just since last spring is two lens changes in her eye glasses from inflammation, lots of ups and downs of drops because of floating cells and now this Secondary Glaucoma. She will spend a whole lot more time with her eye doctor, thank God they like each other. The Methotrexate injections have helped her, but she had to stop for two months because of a different illness. She has started back up now but it hasn't kicked in full force yet, hopefully it will help her once again when it does! I know everyone is different, but maybe this will help. I find this group very comforting when things seem to start flying left and right in the medical field!! Take Care, Diane and Maggie age 10(OI,CP,Poly JIA, inflammatory arthritis,Uveitis) --- myamazing1 <myamazing1@...> wrote: > I had my 8 y.o. daughter (P.A.) to the rheumy for > swollen ankles > yesterday. While there I asked her to look at my 4 > y.o. son's eye. I > have been thinking he also has P.A.. She said she > noticed how > bloodshot/red it was when she walked into the room > and was actually > going to ask me about him. She looked and saw nail > pits on him and > asked some questions. She looked at his eye and said > she thinks it's > uveitis. Now I already looked into that on the > internet since I saw it > was red to see if there was a connection with P.A. > She wants him to see > the eye specialist asap.... tomorrow we are going. > Just wondering if > anyone has already gone through this type of > problem. We are going for > blood work Friday to see if anything shows in his > labs like JRA. Weird > thing is years ago (before diagnosing my daughter) > she used to get what > they called pink eye/conjunctivitis and kept giving > her stronger and > stronger antibiotics that never seemed to work. It > would last for at > least a month at a time. Now come to find out that > it was probably > uveitis. I read left untreated could cause > blindness. A miracle that > nothing like that happened to her since she was not > treated properly at > the time. And it would go on for a month at a > time... over and over. > Jenn from Penn > mom to Grace-9-PA & Jeff-4-PA > > ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Ahhhh yes. I took Jeff to the eye specialist today. The redness supposedly is not uveitis/iritis. He thinks it is because Jeff sleeps with his eyes lids slightly open. HE stained the surface of his eyes because they were very dry. He said they are all scratched up on the surface. He did dilate them thought to see better inside. All seems to be as it should be for now. He gave us gel to put in the eyes before bed to help keep them moist if he does not keep the lids closed all the way. And as for Grace... she was already seen. They took pics of the insides of her eyes... not Jeff's though. I assume this is because Grace has pseudo-papilledema... and not Jeff. Thanks for all the info from everyone on the uveitis/iritis though. I like to stay as informed as possible incase something comes up. Then I know what to look for. --------------------------------- Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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