Waking up in the middle of night

[Guest guest]

My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

waking up in the middle of the night and is crying. She is partly

still asleep and just crys and crys and will not communicate what it

wrong. I'm thinking it's her legs but not sure. I ended up getting

her on the counter in the kitchen and running warm water over her legs

to help soothe them. After that she calmed down and I went ahead an

gave her her dose of Naproxen a little earlier. She doesn't do this

every night just maybe every 3 nights or so.

I would love to know if anyone else's child is doing this too? Is

there anything I can do to help her sleep? I feel so lost because she

is just 2 and I can't really tell how bad she feels.

BTW, I love this group! It's so helpful.

Thanks,

(daughter 2 1/2, JRA)

[Guest guest]

Hi ,

When was having this issue. I would massage her legs until she

drifted back off to sleep. When this did not work I would put a Heating pad on

her legs and made sure when she was sleeping to take it off her legs. Another

thing was propping her legs up on a pillow.

I have tried the Creams on her like Bengay and other brands but could not

continue as these can cause the skin to burn and break out on JA kid's.

When she got into this as something that was to continue. We made sure we

did self help stuff. HOT bath before bed. Making sure the pillow was under

her legs. Then if needed a Massage. Soft music playing to relax her is always

good. You can get the Nature sounds on Disc. Heating pad is another thing

which was a great help. Sometimes she would rather put her legs up on my hip and

she would drift off to sleep.

Robbin

**************Ideas to please picky eaters. Watch video on AOL Living.

(http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/

2050827?NCID=aolcmp00300000002598)

[Guest guest]

My heart goes out to you and . My daughter was also just 2

when she first had symptoms of JRA (dx 4 mos. later). I remember

those night all too well and it just breaks your heart.

Have you tried a heating pad before bedtime or hot water bottle. We

would wrap it around her knee about an hour before bedtime and during

storytime. A lot of moms do the bath before bed and again in the

morning too. Make sure she wears pajama bottoms and not just a

nightie. It always helped and keeping the joints warm is key (weird

since it seems like the opposite would be true).

Also make sure you only give her the Naprosyn when she has food in

her tummy since it can easily cause a stomach lining problems later

(and intestinal) if not taken with food. Actually Isabelle had to

stop that med after only a few months because of how sick she felt on

it. She was throwing up and gagging constantly. She switched back

to Ibuprofen 3 times per day, then we had a steroid injection which

was FANTASTIC (no need for meds for a long time), then the JRA spread

to both ankles and the other knee and we put her on Methotrexate.

She also had a lot of PT and now has been in a " medicated remission "

for almost a year now (knock on my head).

Prayers to you and I so hope that you find something that works for

at night. It is a huge weight on a mother's shoulders to

feel so helpless when our child is in pain.

Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what

it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her

legs

> to help soothe them. After that she calmed down and I went ahead

an

> gave her her dose of Naproxen a little earlier. She doesn't do

this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because

she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

[Guest guest]

hi

my little girl Dakota who will be 2 in May, she too has nights when she wakes,

and seems to be in pain, we are only using Ibuprofen 3 times aday, rather than

naprosyn, Dakota has the arthritis in her R knee, i have been massaging just

before bed, and i have been putting tights on her under her pj bottoms, seems to

help with the waking..but still is very reluctant to use her leg first thing in

the morning, until i massage her..

we are seeing a natropath tomorow to see if there are foods to eat or avoid,

etc

wendy

hadley_messner <hmessner@...> wrote:

My heart goes out to you and . My daughter was also just 2

when she first had symptoms of JRA (dx 4 mos. later). I remember

those night all too well and it just breaks your heart.

Have you tried a heating pad before bedtime or hot water bottle. We

would wrap it around her knee about an hour before bedtime and during

storytime. A lot of moms do the bath before bed and again in the

morning too. Make sure she wears pajama bottoms and not just a

nightie. It always helped and keeping the joints warm is key (weird

since it seems like the opposite would be true).

Also make sure you only give her the Naprosyn when she has food in

her tummy since it can easily cause a stomach lining problems later

(and intestinal) if not taken with food. Actually Isabelle had to

stop that med after only a few months because of how sick she felt on

it. She was throwing up and gagging constantly. She switched back

to Ibuprofen 3 times per day, then we had a steroid injection which

was FANTASTIC (no need for meds for a long time), then the JRA spread

to both ankles and the other knee and we put her on Methotrexate.

She also had a lot of PT and now has been in a " medicated remission "

for almost a year now (knock on my head).

Prayers to you and I so hope that you find something that works for

at night. It is a huge weight on a mother's shoulders to

feel so helpless when our child is in pain.

Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what

it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her

legs

> to help soothe them. After that she calmed down and I went ahead

an

> gave her her dose of Naproxen a little earlier. She doesn't do

this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because

she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

, I look forward to hearing what your naturopath says. We are working

with one and I think

it is a great way to go. Get rid of the cause of the disease vs. just

treating the symptoms.

All my best.

Joann

_____

From: [mailto: ] On Behalf

Of

Sent: Monday, March 03, 2008 7:17 PM

Subject: Re: Re: Waking up in the middle of night

hi

my little girl Dakota who will be 2 in May, she too has nights when she

wakes, and seems to be in pain, we are only using Ibuprofen 3 times aday,

rather than naprosyn, Dakota has the arthritis in her R knee, i have been

massaging just before bed, and i have been putting tights on her under her

pj bottoms, seems to help with the waking..but still is very reluctant to

use her leg first thing in the morning, until i massage her..

we are seeing a natropath tomorow to see if there are foods to eat or avoid,

etc

wendy

hadley_messner <hmessnerverizon (DOT) <mailto:hmessner%40verizon.net> net>

wrote:

My heart goes out to you and . My daughter was also just 2

when she first had symptoms of JRA (dx 4 mos. later). I remember

those night all too well and it just breaks your heart.

Have you tried a heating pad before bedtime or hot water bottle. We

would wrap it around her knee about an hour before bedtime and during

storytime. A lot of moms do the bath before bed and again in the

morning too. Make sure she wears pajama bottoms and not just a

nightie. It always helped and keeping the joints warm is key (weird

since it seems like the opposite would be true).

Also make sure you only give her the Naprosyn when she has food in

her tummy since it can easily cause a stomach lining problems later

(and intestinal) if not taken with food. Actually Isabelle had to

stop that med after only a few months because of how sick she felt on

it. She was throwing up and gagging constantly. She switched back

to Ibuprofen 3 times per day, then we had a steroid injection which

was FANTASTIC (no need for meds for a long time), then the JRA spread

to both ankles and the other knee and we put her on Methotrexate.

She also had a lot of PT and now has been in a " medicated remission "

for almost a year now (knock on my head).

Prayers to you and I so hope that you find something that works for

at night. It is a huge weight on a mother's shoulders to

feel so helpless when our child is in pain.

Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what

it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her

legs

> to help soothe them. After that she calmed down and I went ahead

an

> gave her her dose of Naproxen a little earlier. She doesn't do

this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because

she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

Hi Joann,

the Natropath has decided that we should cut out all sugar (as best possible)

and put her on a high protein diet, except no lamb or beef..to much acid in

those red meats. so you know chicken, tuna, salmon other fish..etc.. her immune

system seem all out..

anyway we will do this for 6 to 8 weeks then go back and see him again

wendy

Joann Bullock <joann@...> wrote:

, I look forward to hearing what your naturopath says. We are

working

with one and I think

it is a great way to go. Get rid of the cause of the disease vs. just

treating the symptoms.

All my best.

Joann

_____

From: [mailto: ] On Behalf

Of

Sent: Monday, March 03, 2008 7:17 PM

Subject: Re: Re: Waking up in the middle of night

hi

my little girl Dakota who will be 2 in May, she too has nights when she

wakes, and seems to be in pain, we are only using Ibuprofen 3 times aday,

rather than naprosyn, Dakota has the arthritis in her R knee, i have been

massaging just before bed, and i have been putting tights on her under her

pj bottoms, seems to help with the waking..but still is very reluctant to

use her leg first thing in the morning, until i massage her..

we are seeing a natropath tomorow to see if there are foods to eat or avoid,

etc

wendy

hadley_messner <hmessnerverizon (DOT) <mailto:hmessner%40verizon.net> net>

wrote:

My heart goes out to you and . My daughter was also just 2

when she first had symptoms of JRA (dx 4 mos. later). I remember

those night all too well and it just breaks your heart.

Have you tried a heating pad before bedtime or hot water bottle. We

would wrap it around her knee about an hour before bedtime and during

storytime. A lot of moms do the bath before bed and again in the

morning too. Make sure she wears pajama bottoms and not just a

nightie. It always helped and keeping the joints warm is key (weird

since it seems like the opposite would be true).

Also make sure you only give her the Naprosyn when she has food in

her tummy since it can easily cause a stomach lining problems later

(and intestinal) if not taken with food. Actually Isabelle had to

stop that med after only a few months because of how sick she felt on

it. She was throwing up and gagging constantly. She switched back

to Ibuprofen 3 times per day, then we had a steroid injection which

was FANTASTIC (no need for meds for a long time), then the JRA spread

to both ankles and the other knee and we put her on Methotrexate.

She also had a lot of PT and now has been in a " medicated remission "

for almost a year now (knock on my head).

Prayers to you and I so hope that you find something that works for

at night. It is a huge weight on a mother's shoulders to

feel so helpless when our child is in pain.

Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what

it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her

legs

> to help soothe them. After that she calmed down and I went ahead

an

> gave her her dose of Naproxen a little earlier. She doesn't do

this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because

she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

That sounds great. We have cut out all sugars (fructose, sucralose, etc)

and artificial sweeteners but have also cut out a ton of other things, Corn

being a biggie.

If she likes it, you may want to try the Rice Dream line of milks. The

vanilla is delicious and the Carob is my kiddos favorite.

All my best with this.

Joann

_____

From: [mailto: ] On Behalf

Of

Sent: Thursday, March 06, 2008 3:10 AM

Subject: RE: Re: Waking up in the middle of night

Hi Joann,

the Natropath has decided that we should cut out all sugar (as best

possible) and put her on a high protein diet, except no lamb or beef..to

much acid in those red meats. so you know chicken, tuna, salmon other

fish..etc.. her immune system seem all out..

anyway we will do this for 6 to 8 weeks then go back and see him again

wendy

Joann Bullock <joann@... <mailto:joann%40pnd.com> > wrote:

, I look forward to hearing what your naturopath says. We are working

with one and I think

it is a great way to go. Get rid of the cause of the disease vs. just

treating the symptoms.

All my best.

Joann

_____

From: @group <mailto: %40> s.com

[mailto: @group <mailto: %40> s.com] On

Behalf

Of

Sent: Monday, March 03, 2008 7:17 PM

@group <mailto: %40> s.com

Subject: Re: Re: Waking up in the middle of night

hi

my little girl Dakota who will be 2 in May, she too has nights when she

wakes, and seems to be in pain, we are only using Ibuprofen 3 times aday,

rather than naprosyn, Dakota has the arthritis in her R knee, i have been

massaging just before bed, and i have been putting tights on her under her

pj bottoms, seems to help with the waking..but still is very reluctant to

use her leg first thing in the morning, until i massage her..

we are seeing a natropath tomorow to see if there are foods to eat or avoid,

etc

wendy

hadley_messner <hmessnerverizon (DOT) <mailto:hmessner%40verizon.net> net>

wrote:

My heart goes out to you and . My daughter was also just 2

when she first had symptoms of JRA (dx 4 mos. later). I remember

those night all too well and it just breaks your heart.

Have you tried a heating pad before bedtime or hot water bottle. We

would wrap it around her knee about an hour before bedtime and during

storytime. A lot of moms do the bath before bed and again in the

morning too. Make sure she wears pajama bottoms and not just a

nightie. It always helped and keeping the joints warm is key (weird

since it seems like the opposite would be true).

Also make sure you only give her the Naprosyn when she has food in

her tummy since it can easily cause a stomach lining problems later

(and intestinal) if not taken with food. Actually Isabelle had to

stop that med after only a few months because of how sick she felt on

it. She was throwing up and gagging constantly. She switched back

to Ibuprofen 3 times per day, then we had a steroid injection which

was FANTASTIC (no need for meds for a long time), then the JRA spread

to both ankles and the other knee and we put her on Methotrexate.

She also had a lot of PT and now has been in a " medicated remission "

for almost a year now (knock on my head).

Prayers to you and I so hope that you find something that works for

at night. It is a huge weight on a mother's shoulders to

feel so helpless when our child is in pain.

Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what

it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her

legs

> to help soothe them. After that she calmed down and I went ahead

an

> gave her her dose of Naproxen a little earlier. She doesn't do

this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because

she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

hello,

My daughter is 19 months, and she will also cry at night, and

wake up from the pain. You just keep doing what you feel is best for

her. Maybe she would like the heating pads they sell. I think they are

called therma-care. They last about 8 hrs. I have used they on .

They stick on the skin, so you can put them almost anywhere. I also

like how they don't hurt coming off.

hope it helps

Lani

-- In , " rl_ahmgt " <5063@...> wrote:

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her legs

> to help soothe them. After that she calmed down and I went ahead an

> gave her her dose of Naproxen a little earlier. She doesn't do this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

[Guest guest]

Hi

Is corn not so good for them? Dakota loves corn on the cob, she will just sit

there for ages chewing at it...

wendy

Joann Bullock <joann@...> wrote:

That sounds great. We have cut out all sugars (fructose, sucralose,

etc)

and artificial sweeteners but have also cut out a ton of other things, Corn

being a biggie.

If she likes it, you may want to try the Rice Dream line of milks. The

vanilla is delicious and the Carob is my kiddos favorite.

All my best with this.

Joann

_____

From: [mailto: ] On Behalf

Of

Sent: Thursday, March 06, 2008 3:10 AM

Subject: RE: Re: Waking up in the middle of night

Hi Joann,

the Natropath has decided that we should cut out all sugar (as best

possible) and put her on a high protein diet, except no lamb or beef..to

much acid in those red meats. so you know chicken, tuna, salmon other

fish..etc.. her immune system seem all out..

anyway we will do this for 6 to 8 weeks then go back and see him again

wendy

Joann Bullock <joann@... <mailto:joann%40pnd.com> > wrote:

, I look forward to hearing what your naturopath says. We are working

with one and I think

it is a great way to go. Get rid of the cause of the disease vs. just

treating the symptoms.

All my best.

Joann

_____

From: @group <mailto: %40> s.com

[mailto: @group <mailto: %40> s.com] On

Behalf

Of

Sent: Monday, March 03, 2008 7:17 PM

@group <mailto: %40> s.com

Subject: Re: Re: Waking up in the middle of night

hi

my little girl Dakota who will be 2 in May, she too has nights when she

wakes, and seems to be in pain, we are only using Ibuprofen 3 times aday,

rather than naprosyn, Dakota has the arthritis in her R knee, i have been

massaging just before bed, and i have been putting tights on her under her

pj bottoms, seems to help with the waking..but still is very reluctant to

use her leg first thing in the morning, until i massage her..

we are seeing a natropath tomorow to see if there are foods to eat or avoid,

etc

wendy

hadley_messner <hmessnerverizon (DOT) <mailto:hmessner%40verizon.net> net>

wrote:

My heart goes out to you and . My daughter was also just 2

when she first had symptoms of JRA (dx 4 mos. later). I remember

those night all too well and it just breaks your heart.

Have you tried a heating pad before bedtime or hot water bottle. We

would wrap it around her knee about an hour before bedtime and during

storytime. A lot of moms do the bath before bed and again in the

morning too. Make sure she wears pajama bottoms and not just a

nightie. It always helped and keeping the joints warm is key (weird

since it seems like the opposite would be true).

Also make sure you only give her the Naprosyn when she has food in

her tummy since it can easily cause a stomach lining problems later

(and intestinal) if not taken with food. Actually Isabelle had to

stop that med after only a few months because of how sick she felt on

it. She was throwing up and gagging constantly. She switched back

to Ibuprofen 3 times per day, then we had a steroid injection which

was FANTASTIC (no need for meds for a long time), then the JRA spread

to both ankles and the other knee and we put her on Methotrexate.

She also had a lot of PT and now has been in a " medicated remission "

for almost a year now (knock on my head).

Prayers to you and I so hope that you find something that works for

at night. It is a huge weight on a mother's shoulders to

feel so helpless when our child is in pain.

Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what

it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her

legs

> to help soothe them. After that she calmed down and I went ahead

an

> gave her her dose of Naproxen a little earlier. She doesn't do

this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because

she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

my holistic person had me on no sugar.... can tey stevia cause that IS a

plant unlike splenda which is really a bad bad chemical.

He also had me on as much raw foods as possible... raw corn was fine..

anuthing that i could eat rw but discouraged nightshade stuff.. potatots...

eggplants.... there are other things because these are believed to aggrivate

inflammation.

I do juicing as well.. carrots, beets, some other stuff and it helps keep my

stomach in much better shape since im on narcotic pain medication.

I cant afford to do all of the raw stuff .. wish i could but i do as much as

I can and I do feel better for it. Its nothing of a miracle but it sure does

make eating process food nasty!!! When I was on it really well, I couldnt

even stand the taste of most candies! I think its naturally healthy for the

body nd gut...

at least for helping when it comes to being on so much medication.. it helps

the body keep washing out chemicals/toxins.

im not pushing anything.. just adding my expereince so far...

Izie

On Thu, Mar 6, 2008 at 9:16 PM, <wendy.taylor26@...>

wrote:

> Hi

> Is corn not so good for them? Dakota loves corn on the cob, she will just

> sit there for ages chewing at it...

> wendy

>

> Joann Bullock <joann@... <joann%40pnd.com>> wrote:

> That sounds great. We have cut out all sugars (fructose, sucralose, etc)

> and artificial sweeteners but have also cut out a ton of other things,

> Corn

> being a biggie.

>

> If she likes it, you may want to try the Rice Dream line of milks. The

> vanilla is delicious and the Carob is my kiddos favorite.

>

> All my best with this.

>

> Joann

>

> _____

>

> From: < %40> [mailto:

> < %40>] On Behalf

> Of

> Sent: Thursday, March 06, 2008 3:10 AM

> < %40>

> Subject: RE: Re: Waking up in the middle of night

>

> Hi Joann,

>

> the Natropath has decided that we should cut out all sugar (as best

> possible) and put her on a high protein diet, except no lamb or beef..to

> much acid in those red meats. so you know chicken, tuna, salmon other

> fish..etc.. her immune system seem all out..

> anyway we will do this for 6 to 8 weeks then go back and see him again

> wendy

>

> Joann Bullock <joann@... <joann%40pnd.com> <mailto:joann%40pnd.com> >

> wrote:

> , I look forward to hearing what your naturopath says. We are working

> with one and I think

> it is a great way to go. Get rid of the cause of the disease vs. just

> treating the symptoms.

>

> All my best.

>

> Joann

>

> _____

>

> From: @group <mailto: %40> s.com

> [mailto: @group <mailto: %40> s.com] On

> Behalf

> Of

> Sent: Monday, March 03, 2008 7:17 PM

> @group <mailto: %40> s.com

> Subject: Re: Re: Waking up in the middle of night

>

> hi

> my little girl Dakota who will be 2 in May, she too has nights when she

> wakes, and seems to be in pain, we are only using Ibuprofen 3 times aday,

> rather than naprosyn, Dakota has the arthritis in her R knee, i have been

> massaging just before bed, and i have been putting tights on her under her

> pj bottoms, seems to help with the waking..but still is very reluctant to

> use her leg first thing in the morning, until i massage her..

> we are seeing a natropath tomorow to see if there are foods to eat or

> avoid,

> etc

>

> wendy

>

> hadley_messner <hmessnerverizon (DOT) <mailto:hmessner%40verizon.net> net>

> wrote:

> My heart goes out to you and . My daughter was also just 2

> when she first had symptoms of JRA (dx 4 mos. later). I remember

> those night all too well and it just breaks your heart.

>

> Have you tried a heating pad before bedtime or hot water bottle. We

> would wrap it around her knee about an hour before bedtime and during

> storytime. A lot of moms do the bath before bed and again in the

> morning too. Make sure she wears pajama bottoms and not just a

> nightie. It always helped and keeping the joints warm is key (weird

> since it seems like the opposite would be true).

>

> Also make sure you only give her the Naprosyn when she has food in

> her tummy since it can easily cause a stomach lining problems later

> (and intestinal) if not taken with food. Actually Isabelle had to

> stop that med after only a few months because of how sick she felt on

> it. She was throwing up and gagging constantly. She switched back

> to Ibuprofen 3 times per day, then we had a steroid injection which

> was FANTASTIC (no need for meds for a long time), then the JRA spread

> to both ankles and the other knee and we put her on Methotrexate.

> She also had a lot of PT and now has been in a " medicated remission "

> for almost a year now (knock on my head).

>

> Prayers to you and I so hope that you find something that works for

> at night. It is a huge weight on a mother's shoulders to

> feel so helpless when our child is in pain.

>

> Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

>

> >

> > My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> > waking up in the middle of the night and is crying. She is partly

> > still asleep and just crys and crys and will not communicate what

> it

> > wrong. I'm thinking it's her legs but not sure. I ended up getting

> > her on the counter in the kitchen and running warm water over her

> legs

> > to help soothe them. After that she calmed down and I went ahead

> an

> > gave her her dose of Naproxen a little earlier. She doesn't do

> this

> > every night just maybe every 3 nights or so.

> >

> > I would love to know if anyone else's child is doing this too? Is

> > there anything I can do to help her sleep? I feel so lost because

> she

> > is just 2 and I can't really tell how bad she feels.

> >

> > BTW, I love this group! It's so helpful.

> >

> > Thanks,

> >

> > (daughter 2 1/2, JRA)

> >

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

I believe it is the sugary starch of it that supports yeast growth in the

body. Also, it doesn't digest very well. Zoe loves corn on the cob a ton

and is hating that she cannot have it right now. I personally miss my bowl

of grits in the morning. My natural prozac started the day of well, now I

am trying to find a new substitute.

Joann

_____

From: [mailto: ] On Behalf

Of

Sent: Friday, March 07, 2008 12:17 AM

Subject: RE: Re: Waking up in the middle of night

Hi

Is corn not so good for them? Dakota loves corn on the cob, she will just

sit there for ages chewing at it...

wendy

Joann Bullock <joann@... <mailto:joann%40pnd.com> > wrote:

That sounds great. We have cut out all sugars (fructose, sucralose, etc)

and artificial sweeteners but have also cut out a ton of other things, Corn

being a biggie.

If she likes it, you may want to try the Rice Dream line of milks. The

vanilla is delicious and the Carob is my kiddos favorite.

All my best with this.

Joann

_____

From: @group <mailto: %40> s.com

[mailto: @group <mailto: %40> s.com] On

Behalf

Of

Sent: Thursday, March 06, 2008 3:10 AM

@group <mailto: %40> s.com

Subject: RE: Re: Waking up in the middle of night

Hi Joann,

the Natropath has decided that we should cut out all sugar (as best

possible) and put her on a high protein diet, except no lamb or beef..to

much acid in those red meats. so you know chicken, tuna, salmon other

fish..etc.. her immune system seem all out..

anyway we will do this for 6 to 8 weeks then go back and see him again

wendy

Joann Bullock <joann@... <mailto:joann%40pnd.com>

<mailto:joann%40pnd.com> > wrote:

, I look forward to hearing what your naturopath says. We are working

with one and I think

it is a great way to go. Get rid of the cause of the disease vs. just

treating the symptoms.

All my best.

Joann

_____

From: @group <mailto: %40> s.com

[mailto: @group <mailto: %40> s.com] On

Behalf

Of

Sent: Monday, March 03, 2008 7:17 PM

@group <mailto: %40> s.com

Subject: Re: Re: Waking up in the middle of night

hi

my little girl Dakota who will be 2 in May, she too has nights when she

wakes, and seems to be in pain, we are only using Ibuprofen 3 times aday,

rather than naprosyn, Dakota has the arthritis in her R knee, i have been

massaging just before bed, and i have been putting tights on her under her

pj bottoms, seems to help with the waking..but still is very reluctant to

use her leg first thing in the morning, until i massage her..

we are seeing a natropath tomorow to see if there are foods to eat or avoid,

etc

wendy

hadley_messner <hmessnerverizon (DOT) <mailto:hmessner%40verizon.net> net>

wrote:

My heart goes out to you and . My daughter was also just 2

when she first had symptoms of JRA (dx 4 mos. later). I remember

those night all too well and it just breaks your heart.

Have you tried a heating pad before bedtime or hot water bottle. We

would wrap it around her knee about an hour before bedtime and during

storytime. A lot of moms do the bath before bed and again in the

morning too. Make sure she wears pajama bottoms and not just a

nightie. It always helped and keeping the joints warm is key (weird

since it seems like the opposite would be true).

Also make sure you only give her the Naprosyn when she has food in

her tummy since it can easily cause a stomach lining problems later

(and intestinal) if not taken with food. Actually Isabelle had to

stop that med after only a few months because of how sick she felt on

it. She was throwing up and gagging constantly. She switched back

to Ibuprofen 3 times per day, then we had a steroid injection which

was FANTASTIC (no need for meds for a long time), then the JRA spread

to both ankles and the other knee and we put her on Methotrexate.

She also had a lot of PT and now has been in a " medicated remission "

for almost a year now (knock on my head).

Prayers to you and I so hope that you find something that works for

at night. It is a huge weight on a mother's shoulders to

feel so helpless when our child is in pain.

Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what

it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her

legs

> to help soothe them. After that she calmed down and I went ahead

an

> gave her her dose of Naproxen a little earlier. She doesn't do

this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because

she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

izie, I agree that stevia is great and natural, but if a naturopath/holistic

practitioner is taking Dakota off all sugar, Stevia is comparable to

sucrose, fructose, etc. All these are things that we are avoiding.

Raw veggies are great, and try to go with fruits with an edible skin. They

are lower in sugar also.

Joann

_____

From: [mailto: ] On Behalf

Of Issadora

Sent: Friday, March 07, 2008 12:52 AM

Subject: Re: Re: Waking up in the middle of night

my holistic person had me on no sugar.... can tey stevia cause that IS a

plant unlike splenda which is really a bad bad chemical.

He also had me on as much raw foods as possible... raw corn was fine..

anuthing that i could eat rw but discouraged nightshade stuff.. potatots...

eggplants.... there are other things because these are believed to aggrivate

inflammation.

I do juicing as well.. carrots, beets, some other stuff and it helps keep my

stomach in much better shape since im on narcotic pain medication.

I cant afford to do all of the raw stuff .. wish i could but i do as much as

I can and I do feel better for it. Its nothing of a miracle but it sure does

make eating process food nasty!!! When I was on it really well, I couldnt

even stand the taste of most candies! I think its naturally healthy for the

body nd gut...

at least for helping when it comes to being on so much medication.. it helps

the body keep washing out chemicals/toxins.

im not pushing anything.. just adding my expereince so far...

Izie

On Thu, Mar 6, 2008 at 9:16 PM, <wendy.taylor26@

<mailto:wendy.taylor26%40> >

wrote:

> Hi

> Is corn not so good for them? Dakota loves corn on the cob, she will just

> sit there for ages chewing at it...

> wendy

>

> Joann Bullock <joann@... <mailto:joann%40pnd.com> <joann%40pnd.com>>

wrote:

> That sounds great. We have cut out all sugars (fructose, sucralose, etc)

> and artificial sweeteners but have also cut out a ton of other things,

> Corn

> being a biggie.

>

> If she likes it, you may want to try the Rice Dream line of milks. The

> vanilla is delicious and the Carob is my kiddos favorite.

>

> All my best with this.

>

> Joann

>

> _____

>

> From: @group <mailto: %40> s.com

< %40> [mailto:

> @group <mailto: %40> s.com

< %40>] On Behalf

> Of

> Sent: Thursday, March 06, 2008 3:10 AM

> @group <mailto: %40> s.com

< %40>

> Subject: RE: Re: Waking up in the middle of night

>

> Hi Joann,

>

> the Natropath has decided that we should cut out all sugar (as best

> possible) and put her on a high protein diet, except no lamb or beef..to

> much acid in those red meats. so you know chicken, tuna, salmon other

> fish..etc.. her immune system seem all out..

> anyway we will do this for 6 to 8 weeks then go back and see him again

> wendy

>

> Joann Bullock <joann@... <mailto:joann%40pnd.com> <joann%40pnd.com>

<mailto:joann%40pnd.com> >

> wrote:

> , I look forward to hearing what your naturopath says. We are working

> with one and I think

> it is a great way to go. Get rid of the cause of the disease vs. just

> treating the symptoms.

>

> All my best.

>

> Joann

>

> _____

>

> From: @group <mailto: %40> s.com

> [mailto: @group <mailto: %40> s.com] On

> Behalf

> Of

> Sent: Monday, March 03, 2008 7:17 PM

> @group <mailto: %40> s.com

> Subject: Re: Re: Waking up in the middle of night

>

> hi

> my little girl Dakota who will be 2 in May, she too has nights when she

> wakes, and seems to be in pain, we are only using Ibuprofen 3 times aday,

> rather than naprosyn, Dakota has the arthritis in her R knee, i have been

> massaging just before bed, and i have been putting tights on her under her

> pj bottoms, seems to help with the waking..but still is very reluctant to

> use her leg first thing in the morning, until i massage her..

> we are seeing a natropath tomorow to see if there are foods to eat or

> avoid,

> etc

>

> wendy

>

> hadley_messner <hmessnerverizon (DOT) <mailto:hmessner%40verizon.net> net>

> wrote:

> My heart goes out to you and . My daughter was also just 2

> when she first had symptoms of JRA (dx 4 mos. later). I remember

> those night all too well and it just breaks your heart.

>

> Have you tried a heating pad before bedtime or hot water bottle. We

> would wrap it around her knee about an hour before bedtime and during

> storytime. A lot of moms do the bath before bed and again in the

> morning too. Make sure she wears pajama bottoms and not just a

> nightie. It always helped and keeping the joints warm is key (weird

> since it seems like the opposite would be true).

>

> Also make sure you only give her the Naprosyn when she has food in

> her tummy since it can easily cause a stomach lining problems later

> (and intestinal) if not taken with food. Actually Isabelle had to

> stop that med after only a few months because of how sick she felt on

> it. She was throwing up and gagging constantly. She switched back

> to Ibuprofen 3 times per day, then we had a steroid injection which

> was FANTASTIC (no need for meds for a long time), then the JRA spread

> to both ankles and the other knee and we put her on Methotrexate.

> She also had a lot of PT and now has been in a " medicated remission "

> for almost a year now (knock on my head).

>

> Prayers to you and I so hope that you find something that works for

> at night. It is a huge weight on a mother's shoulders to

> feel so helpless when our child is in pain.

>

> Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

>

> >

> > My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> > waking up in the middle of the night and is crying. She is partly

> > still asleep and just crys and crys and will not communicate what

> it

> > wrong. I'm thinking it's her legs but not sure. I ended up getting

> > her on the counter in the kitchen and running warm water over her

> legs

> > to help soothe them. After that she calmed down and I went ahead

> an

> > gave her her dose of Naproxen a little earlier. She doesn't do

> this

> > every night just maybe every 3 nights or so.

> >

> > I would love to know if anyone else's child is doing this too? Is

> > there anything I can do to help her sleep? I feel so lost because

> she

> > is just 2 and I can't really tell how bad she feels.

> >

> > BTW, I love this group! It's so helpful.

> >

> > Thanks,

> >

> > (daughter 2 1/2, JRA)

> >

>

> ---------------------------------

> Never miss a thing. Make your homepage.

>

>

[Guest guest]

Hi

Thanks heaps for your help, i am still new at this, but whatever i can do to

help Dakota is worh it...she probably ist as bad as alot of the other kids i

have been reading about, but its hard enough to watch her every morning

struggling to walk, breaks my heart.

wendy

Joann Bullock <joann@...> wrote:

I believe it is the sugary starch of it that supports yeast growth in

the

body. Also, it doesn't digest very well. Zoe loves corn on the cob a ton

and is hating that she cannot have it right now. I personally miss my bowl

of grits in the morning. My natural prozac started the day of well, now I

am trying to find a new substitute.

Joann

_____

From: [mailto: ] On Behalf

Of

Sent: Friday, March 07, 2008 12:17 AM

Subject: RE: Re: Waking up in the middle of night

Hi

Is corn not so good for them? Dakota loves corn on the cob, she will just

sit there for ages chewing at it...

wendy

Joann Bullock <joann@... <mailto:joann%40pnd.com> > wrote:

That sounds great. We have cut out all sugars (fructose, sucralose, etc)

and artificial sweeteners but have also cut out a ton of other things, Corn

being a biggie.

If she likes it, you may want to try the Rice Dream line of milks. The

vanilla is delicious and the Carob is my kiddos favorite.

All my best with this.

Joann

_____

From: @group <mailto: %40> s.com

[mailto: @group <mailto: %40> s.com] On

Behalf

Of

Sent: Thursday, March 06, 2008 3:10 AM

@group <mailto: %40> s.com

Subject: RE: Re: Waking up in the middle of night

Hi Joann,

the Natropath has decided that we should cut out all sugar (as best

possible) and put her on a high protein diet, except no lamb or beef..to

much acid in those red meats. so you know chicken, tuna, salmon other

fish..etc.. her immune system seem all out..

anyway we will do this for 6 to 8 weeks then go back and see him again

wendy

Joann Bullock <joann@... <mailto:joann%40pnd.com>

<mailto:joann%40pnd.com> > wrote:

, I look forward to hearing what your naturopath says. We are working

with one and I think

it is a great way to go. Get rid of the cause of the disease vs. just

treating the symptoms.

All my best.

Joann

_____

From: @group <mailto: %40> s.com

[mailto: @group <mailto: %40> s.com] On

Behalf

Of

Sent: Monday, March 03, 2008 7:17 PM

@group <mailto: %40> s.com

Subject: Re: Re: Waking up in the middle of night

hi

my little girl Dakota who will be 2 in May, she too has nights when she

wakes, and seems to be in pain, we are only using Ibuprofen 3 times aday,

rather than naprosyn, Dakota has the arthritis in her R knee, i have been

massaging just before bed, and i have been putting tights on her under her

pj bottoms, seems to help with the waking..but still is very reluctant to

use her leg first thing in the morning, until i massage her..

we are seeing a natropath tomorow to see if there are foods to eat or avoid,

etc

wendy

hadley_messner <hmessnerverizon (DOT) <mailto:hmessner%40verizon.net> net>

wrote:

My heart goes out to you and . My daughter was also just 2

when she first had symptoms of JRA (dx 4 mos. later). I remember

those night all too well and it just breaks your heart.

Have you tried a heating pad before bedtime or hot water bottle. We

would wrap it around her knee about an hour before bedtime and during

storytime. A lot of moms do the bath before bed and again in the

morning too. Make sure she wears pajama bottoms and not just a

nightie. It always helped and keeping the joints warm is key (weird

since it seems like the opposite would be true).

Also make sure you only give her the Naprosyn when she has food in

her tummy since it can easily cause a stomach lining problems later

(and intestinal) if not taken with food. Actually Isabelle had to

stop that med after only a few months because of how sick she felt on

it. She was throwing up and gagging constantly. She switched back

to Ibuprofen 3 times per day, then we had a steroid injection which

was FANTASTIC (no need for meds for a long time), then the JRA spread

to both ankles and the other knee and we put her on Methotrexate.

She also had a lot of PT and now has been in a " medicated remission "

for almost a year now (knock on my head).

Prayers to you and I so hope that you find something that works for

at night. It is a huge weight on a mother's shoulders to

feel so helpless when our child is in pain.

Hugs, Hadley (Isabelle, 4 yrs. JRA)

>

> My 2 yr old has been newly diagnosed w/ JRA. Occasionally she is

> waking up in the middle of the night and is crying. She is partly

> still asleep and just crys and crys and will not communicate what

it

> wrong. I'm thinking it's her legs but not sure. I ended up getting

> her on the counter in the kitchen and running warm water over her

legs

> to help soothe them. After that she calmed down and I went ahead

an

> gave her her dose of Naproxen a little earlier. She doesn't do

this

> every night just maybe every 3 nights or so.

>

> I would love to know if anyone else's child is doing this too? Is

> there anything I can do to help her sleep? I feel so lost because

she

> is just 2 and I can't really tell how bad she feels.

>

> BTW, I love this group! It's so helpful.

>

> Thanks,

>

> (daughter 2 1/2, JRA)

>

---------------------------------

Never miss a thing. Make your homepage.