a/Jordan

[Guest guest]

Hi, a. I haven't seen any recent news and I was wondering how Jordan

is doing? Was anything figured out about her pain?

Send an update when you can, Michele ( 20, spondy)

[Guest guest]

Hi Michele,

Sorry I havent been back on to update, been working nights the past few days

so my schedule is all messed up.

After last talking Jordan was admitted to the hospital on the 6th and they

kept her for 4 days.The bloodwork they did that night showed her white cell

count had skyrocketd when it had been normal 3 days before when we were in the

ER, so this time they believed there was something wrong. They gave her a huge

dose of morphine for her pain but it didnt touch it.They did a CT scan with

contrast and chest xrays. There concern was the MAS was rearing its ugly

head.This time the ER doctor actually was very caring and was in contact with

the rheumatologist and our primary.

Well the morphine didnt work for the pain,the Ct scan and xrays showed

nothing so we were admitted.Theythen put her on toridal which finally took away

the flank pain.She was only on that for a few days and then put her on

indomethicin , which gave her an upset stomache . In the end they sent us home

saying they have no idea what was wrong with her because her white count

returned to normal and everything else looked as normal as it usually gets for

her.So there final diagnosis was that it was her JRA.

Now she is feeling better, back on her naproxen and back in school.Her only

complaint is the blisters she now has in the roof of her mouth that have been

coming and going since thursday,.

So we are back to the mystery patient...lol

Thanks for the concern, Im off to work again, only 2 more nights yay....

a and Jordan (9, systemic)

" Tepper, Michele " <MTepper@...> wrote:

Hi, a. I haven't seen any recent news and I was wondering how

Jordan

is doing? Was anything figured out about her pain?

Send an update when you can, Michele ( 20, spondy)

[Guest guest]

thanks for the update he has been rough for both of us the past few

weeks! at least we have this board as " shoulders to lean on " keep us

posted

> Hi, a. I haven't seen any recent news and I was

wondering how Jordan

> is doing? Was anything figured out about her pain?

>

> Send an update when you can, Michele ( 20, spondy)

>

>

[Guest guest]

a,

I remember reading your post about Jordan when this first began - is it normal

for systemic jra kids to have their white cells increase dramatically for no

reason? It seems so odd, now with the blisters in the roof of her mouth as

well. Was an infectious disease doc called in?

JRA kids seem to do their fair share of stumping medical community. I hope

Jordan continues to feel better with no return of her previous symptoms.

(, 17, poly, cvid, migraines)

sapphire <sapphire61768@...> wrote: Hi

Michele,

Sorry I havent been back on to update, been working nights the past few

days so my schedule is all messed up.

After last talking Jordan was admitted to the hospital on the 6th and they

kept her for 4 days.The bloodwork they did that night showed her white cell

count had skyrocketd when it had been normal 3 days before when we were in the

ER, so this time they believed there was something wrong. They gave her a huge

dose of morphine for her pain but it didnt touch it.They did a CT scan with

contrast and chest xrays. There concern was the MAS was rearing its ugly

head.This time the ER doctor actually was very caring and was in contact with

the rheumatologist and our primary.

Well the morphine didnt work for the pain,the Ct scan and xrays showed

nothing so we were admitted.Theythen put her on toridal which finally took away

the flank pain.She was only on that for a few days and then put her on

indomethicin , which gave her an upset stomache . In the end they sent us home

saying they have no idea what was wrong with her because her white count

returned to normal and everything else looked as normal as it usually gets for

her.So there final diagnosis was that it was her JRA.

Now she is feeling better, back on her naproxen and back in school.Her only

complaint is the blisters she now has in the roof of her mouth that have been

coming and going since thursday,.

So we are back to the mystery patient...lol

Thanks for the concern, Im off to work again, only 2 more nights yay....

a and Jordan (9, systemic)

" Tepper, Michele " <MTepper@...> wrote:

Hi, a. I haven't seen any recent news and I was wondering how

Jordan

is doing? Was anything figured out about her pain?

Send an update when you can, Michele ( 20, spondy)

[Guest guest]

's white blood cell amt would increase dramatically with a flare - but

didn't often drop as quickly.? He went for months with his wbc elevated before

we were at a level of good control.

Val

Rob's Mom (10, systemic)

Re: a/Jordan

a,

I remember reading your post about Jordan when this first began - is it normal

for systemic jra kids to have their white cells increase dramatically for no

reason? It seems so odd, now with the blisters in the roof of her mouth as well.

Was an infectious disease doc called in?

JRA kids seem to do their fair share of stumping medical community. I hope

Jordan continues to feel better with no return of her previous symptoms.

(, 17, poly, cvid, migraines)

sapphire <sapphire61768@...> wrote: Hi Michele,

Sorry I havent been back on to update, been working nights the past few days so

my schedule is all messed up.

After last talking Jordan was admitted to the hospital on the 6th and they kept

her for 4 days.The bloodwork they did that night showed her white cell count had

skyrocketd when it had been normal 3 days before when we were in the ER, so this

time they believed there was something wrong. They gave her a huge dose of

morphine for her pain but it didnt touch it.They did a CT scan with contrast and

chest xrays. There concern was the MAS was rearing its ugly head.This time the

ER doctor actually was very caring and was in contact with the rheumatologist

and our primary.

Well the morphine didnt work for the pain,the Ct scan and xrays showed nothing

so we were admitted.Theythen put her on toridal which finally took away the

flank pain.She was only on that for a few days and then put her on indomethicin

, which gave her an upset stomache . In the end they sent us home saying they

have no idea what was wrong with her because her white count returned to normal

and everything else looked as normal as it usually gets for her.So there final

diagnosis was that it was her JRA.

Now she is feeling better, back on her naproxen and back in school.Her only

complaint is the blisters she now has in the roof of her mouth that have been

coming and going since thursday,.

So we are back to the mystery patient...lol

Thanks for the concern, Im off to work again, only 2 more nights yay....

a and Jordan (9, systemic)

" Tepper, Michele " <MTepper@...> wrote:

Hi, a. I haven't seen any recent news and I was wondering how Jordan

is doing? Was anything figured out about her pain?

Send an update when you can, Michele ( 20, spondy)

[Guest guest]

Glad to see the update. I am sorry she is still a mystery however. I

can't remember what if any meds Jordan may take for the JRA, but when

would get mouth sores from taking the MTX, he found rinsing his

mouth with Listerine would help. They have all sorts of flavors now;

maybe one would help Jordan? Just a thought, and please keep us updated,

Michele ( 20, spondy)

________________________________

From: [mailto: ] On

Behalf Of sapphire

Sent: Tuesday, January 15, 2008 5:45 PM

Subject: Re: a/Jordan

Hi Michele,

Sorry I havent been back on to update, been working nights the past few

days so my schedule is all messed up.

After last talking Jordan was admitted to the hospital on the 6th and

they kept her for 4 days.The bloodwork they did that night showed her

white cell count had skyrocketd when it had been normal 3 days before

when we were in the ER, so this time they believed there was something

wrong. They gave her a huge dose of morphine for her pain but it didnt

touch it.They did a CT scan with contrast and chest xrays. There concern

was the MAS was rearing its ugly head.This time the ER doctor actually

was very caring and was in contact with the rheumatologist and our

primary.

Well the morphine didnt work for the pain,the Ct scan and xrays showed

nothing so we were admitted.Theythen put her on toridal which finally

took away the flank pain.She was only on that for a few days and then

put her on indomethicin , which gave her an upset stomache . In the end

they sent us home saying they have no idea what was wrong with her

because her white count returned to normal and everything else looked as

normal as it usually gets for her.So there final diagnosis was that it

was her JRA.

Now she is feeling better, back on her naproxen and back in school.Her

only complaint is the blisters she now has in the roof of her mouth that

have been coming and going since thursday,.

So we are back to the mystery patient...lol

Thanks for the concern, Im off to work again, only 2 more nights yay....

a and Jordan (9, systemic)

" Tepper, Michele " <MTepper@...

<mailto:MTepper%40ftportfolios.com> > wrote:

Hi, a. I haven't seen any recent news and I was wondering how Jordan

is doing? Was anything figured out about her pain?

Send an update when you can, Michele ( 20, spondy)