Re: Hi Izzy / Update on Josh ... was Re: spouse involvement?

[Guest guest]

Hi Issadora,

I've missed you over there too! My kids joke about it but myspace,

seriously, has become one of my favorite hobbies. In fact, I've even made

another space ~ one specifically for JIA.

www.myspace.com/juvenilearthritisforum

As time permits, I've very slowly been adding arthritis-related videos I

find on YouTube. I've started a list of JIA-related books. Might repost some

of the research and journal articles on various treatments over on the blog

section ... in time. It's a work in progress, I guess. If you ever decide to

revisit I'd be more than honored to be your friend : )

Izzy, I know you were having such a rough time. I hope things have begun to

settle down a bit? A person can only take so much. I remember that you were

planning on integrating a somewhat different, more holistic, approach and

you sounded so optimistic about the possibilities those new pathways might

lead to ... and then I read about the 'pain crisis' and increased levels of

nearly incapacitating health issues and my heart suddenly felt so heavy. I

imagine that you may have been feeling as if you were back to square one

again and needing, when you were able, to begin yet another exhausting,

uphill battle ... just to return to where you were.

That takes so much strength ... and courage. People who have been dealing

with chronic health issues seem to become somewhat accustomed to the cycles

over time, in retrospect, but when it's happening ... the immediacy of it

all is so very draining. It takes a definite toll, physically as well as

mentally. It's one thing to be the parent of a child who faces these kinds

of struggles but quite another to be the one it's actually happening to. If

it were me, I think I'd probably just try to isolate myself from the world.

Just crawl into a dark cave until it was over and I started feeling better.

I have so much admiration for people, like yourself, who face this head on

and seem always ready for the next challenge, despite everything you've

already been through. Josh has that spark, that inner strength, too. It

gives me hope : )

Well, I'm going to head upstairs before it gets too late. I've got a pile of

wonderful, brand new, books and have made/renewed a decision to set aside

time each and every day for one of my all-time favorite past-times ...

reading ... and I've been so enjoying it! One of the ultimate simple

pleasures in my life ...

Aloha,

Georgina

Re: Hi Oliver / Update on Josh ... was Re: spouse

involvement?

Nice to hear from you Georgina! I miss you from myspace ever since i got rid

of the bugger.

Gee.. those green pills... lol.... sad to say I have a whole bottle of the

stuff that I don't need since yes it worked for me really well but

apparently it did something to my blood pressure according to the ER and

kills my stomach but it did a lot to help the pain amazingly... one of the

few nsaids i can say that about? strange how that is.

I'm glad Josh is in college now.. must be fun for him. That's rotton that

his JRA is still ever so active after all of these years.

Anyways, just wanted to send over a little hello back.

Izzie