calebs visit to the rheumy

[Guest guest]

We are just back from the rheumy appt. They ordered some more blood

work as well as some rare blood work that takes a month to get back

and the results from it come from the research team so that will be

a long wait. Well where to start now we are back to we *think* its

JRA but it may be a maliginacy that we tested to early for before.

As far as the JRA goes he fits all criteria except the arthritis and

his labs are still good but labs really dont factor into the

diagnosis of JIA but the arthritis does no arthritis no formal

diagnosis. So he also mentioned that they other thing he was

thinking that could be a diagnosis is a maliginacy I was a little

stunned we have already had the test for that the bone marrow

biopsy. But he explained to us that they might of tested for a

malignancy too soon. He wanted to see what his blood work showed

this time if it is bad then we will repeat and then go on to another

Bone Marrow Biopsy. He said that his main reaoning behind the MRI

yesterday was to see if there was anything in the brain and to see

if this could be something that is a central nervous system

disorder, this was ok and ruled out( what ever ruled out means these

days seems they rule something out and then retact that as well and

say maybe we tested too soon). Well that is pretty much it in a nut

shell. Pray that his labs give more clues this time so we can get a

better grip on what this is that we are dealing with so we can get

him treated and feeling better as soon as possible!