Re: conference activiy question

[Guest guest]

Beth,

did have Fun when at the Conferences. Colleen would be the one to

ask about Activities that will be going on there. Since he is a Teen I would

think they would be doing some fun thing's for his age. As He will be in the

Teen group. He will get to meet other Kid's with his interest as well. It is

good to meet up with the JRA Group as some are his age and they can get to

know each other. Parents can make a Meeting place and talk as well. I can bet

he will get more out of the Conference than you think. :-).

Robbin

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[Guest guest]

Beth,

The teen activities are not " Arts and Crafts " If they are artsy....they

are teen type arts! I have a 13 year old girl, but the kids have a

blast! Especially if they are a bit social at all. Last year they

listed on the agenda. Last year the teen kids got to the hospital and

work on the " dummies " and do activities there. It was really cool. In

fact they were on the local news.

Mom to

Chelsea 20, 13, Allie 11, Mollie 9

________________________________

From: [mailto: ] On

Behalf Of Beth Yohnk

Sent: Wednesday, January 02, 2008 8:05 PM

Subject: conference activiy question

Hi everyone:

We are still contemplating how many of us are going to conference. For

sure Hannah & I and most likely Mike as well. We are not sure about Jay,

our 13 year old. Can anyone tell me what kinds of activities are planned

for teens? He is not into crafts and that would bore him to tears

(literally). He does best when kept active as opposed to low-key

activities (he's an athletle and on the go a lot). We are pricing

airfair and there are some good deals so we want to book soon.

Thanks for the input.

Beth & Hannah, 11, unspecified arthritis; hypermobility; migraines; gerd

& asthma

Sending prayers & happy thoughts,

Beth :-)

[Guest guest]

:

thanks for the response. We are still budgeting so it may come down to that.

I'm sure he'll have a good time. And yes, he is quite social. He will talk to

anyone who will listen! LOL

Sending prayers & happy thoughts,

Beth :-)

conference activiy question

Hi everyone:

We are still contemplating how many of us are going to conference. For

sure Hannah & I and most likely Mike as well. We are not sure about Jay,

our 13 year old. Can anyone tell me what kinds of activities are planned

for teens? He is not into crafts and that would bore him to tears

(literally). He does best when kept active as opposed to low-key

activities (he's an athletle and on the go a lot). We are pricing

airfair and there are some good deals so we want to book soon.

Thanks for the input.

Beth & Hannah, 11, unspecified arthritis; hypermobility; migraines; gerd

& asthma

Sending prayers & happy thoughts,

Beth :-)

[Guest guest]

Thanks Robbin. I'm sure he would have fun meeting other teens. I will have to

see what they offer and what our budget holds before we decide. He has always

been supportive of Hannah and empathetic that she does not really know what's

wrong with her. He is quite good with the special needs kids at his school and

thinks he may want to work with those types of kids when he's older.

Sending prayers & happy thoughts,

Beth :-)

Re: conference activiy question

Beth,

did have Fun when at the Conferences. Colleen would be the one to

ask about Activities that will be going on there. Since he is a Teen I would

think they would be doing some fun thing's for his age. As He will be in the

Teen group. He will get to meet other Kid's with his interest as well. It is

good to meet up with the JRA Group as some are his age and they can get to

know each other. Parents can make a Meeting place and talk as well. I can bet

he will get more out of the Conference than you think. :-).

Robbin

************ ********* ********* ********See AOL's top rated recipes

(http://food. aol.com/top- rated-recipes? NCID=aoltop00030 000000004)

[Guest guest]

Hi Beth-

I don't want to be too specific with the activities - because we're still in

the process of raising the funds for all of the activities we want to do. I

don't want to get hopes up in case we have to scale back on the extras - and I

will say that at the moment we are aiming pretty high! If all goes well, we'll

be including a family fun night that will be good for ALL ages, with many

different activities - something to make everybody happy. And, as opposed to

the crafts that you might envision, we are shooting for a true art component

that will bring professional and college age artists in to work with the kids in

a variety of mediums, culminating in a gallery type display of all the work.

For the older kids, there may be photography, digital music production and short

video production - There's a decent pool at the hotel as well, and likely there

will be swimming activities.

There are experienced activity leaders working to plan for all the age groups

- the are younger and much hipper than I! But I know they are really taking

into consideration what each age will enjoy...and the staff from the National

office have years worth of experience and attendee feedback to help make sure

that all the bases will be covered.

I hope that helps.... I know others will chime in as to how siblings in their

family have enjoyed the conference. My daughter Caitlin is only 9 and Jack is 5

- this will be his first time. I'm not sure how much time you'll have in

California before or after the conference, but I'd be happy to come up with some

additional ideas for play in the area.

Looking forward to meeting you this summer!

Best hopes-

Colleen

Beth Yohnk <yohnkmom@...> wrote:

Hi everyone:

We are still contemplating how many of us are going to conference. For sure

Hannah & I and most likely Mike as well. We are not sure about Jay, our 13 year

old. Can anyone tell me what kinds of activities are planned for teens? He is

not into crafts and that would bore him to tears (literally). He does best when

kept active as opposed to low-key activities (he's an athletle and on the go a

lot). We are pricing airfair and there are some good deals so we want to book

soon.

Thanks for the input.

Beth & Hannah, 11, unspecified arthritis; hypermobility; migraines; gerd &

asthma

Sending prayers & happy thoughts,

Beth :-)

[Guest guest]

Hi Colleen:

Thank you so much for responding. I just was not sure what to expect for a 13

year old and appreiciate the information. Those types of activities are right

up his alley.

We will have to see what our finances bring. We are very excited to come to our

first confernce even though we don't really have a diagnosis. We are also

attending our first Family Fun Day here locally in a few weeks.

Beth & Hannah, 11, unspecified arthrtis; asthma; gerd; migraines

Sending prayers & happy thoughts,

Beth :-)

Re: conference activiy question

Hi Beth-

I don't want to be too specific with the activities - because we're still in the

process of raising the funds for all of the activities we want to do. I don't

want to get hopes up in case we have to scale back on the extras - and I will

say that at the moment we are aiming pretty high! If all goes well, we'll be

including a family fun night that will be good for ALL ages, with many different

activities - something to make everybody happy. And, as opposed to the crafts

that you might envision, we are shooting for a true art component that will

bring professional and college age artists in to work with the kids in a variety

of mediums, culminating in a gallery type display of all the work. For the older

kids, there may be photography, digital music production and short video

production - There's a decent pool at the hotel as well, and likely there will

be swimming activities.

There are experienced activity leaders working to plan for all the age groups -

the are younger and much hipper than I! But I know they are really taking into

consideration what each age will enjoy...and the staff from the National office

have years worth of experience and attendee feedback to help make sure that all

the bases will be covered.

I hope that helps.... I know others will chime in as to how siblings in their

family have enjoyed the conference. My daughter Caitlin is only 9 and Jack is 5

- this will be his first time. I'm not sure how much time you'll have in

California before or after the conference, but I'd be happy to come up with some

additional ideas for play in the area.

Looking forward to meeting you this summer!

Best hopes-

Colleen

Beth Yohnk <yohnkmomsbcglobal (DOT) net> wrote:

Hi everyone:

We are still contemplating how many of us are going to conference. For sure

Hannah & I and most likely Mike as well. We are not sure about Jay, our 13 year

old. Can anyone tell me what kinds of activities are planned for teens? He is

not into crafts and that would bore him to tears (literally). He does best when

kept active as opposed to low-key activities (he's an athletle and on the go a

lot). We are pricing airfair and there are some good deals so we want to book

soon.

Thanks for the input.

Beth & Hannah, 11, unspecified arthritis; hypermobility; migraines; gerd &

asthma

Sending prayers & happy thoughts,

Beth :-)