Guest guest Posted November 1, 2004 Report Share Posted November 1, 2004 and Caleb, When was diagnosed at 2 months old we were told no carseat and no swing. The back muscles aren't strong enough and that was why we were told to do lots of tummy time. Of course we had to use the carseat but I hardly ever put him in it unless it was absolutely necessary. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 no they did not they said that they did not want to start mtx because we dont know what this is! and they said that they did not want to start steroids because of some blood work. ugh. I wish they would do something. NSAIDS made him bleed so we are back to motrin and tylenol massages and heat ice. deerhuntert6@... wrote: Hunter's legs were in really bad shape for awhile. It killed us to watch her try to get up and down off the floor. But within 6 month to a year she got back alot of her ability. She use to run like the wind now now she runs like me (and I am 50 something). I hope you all get good news on the 12th. Did they even try predinsone or mtx to help with the inflammation. Sandi Ken Hunter (9 Systemic) **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 ..have they completely ruled out malignancy?? Cynde Re: and Caleb no they did not they said that they did not want to start mtx because we dont know what this is! and they said that they did not want to start steroids because of some blood work. ugh. I wish they would do something. NSAIDS made him bleed so we are back to motrin and tylenol massages and heat ice. deerhuntert6@... wrote: Hunter's legs were in really bad shape for awhile. It killed us to watch her try to get up and down off the floor. But within 6 month to a year she got back alot of her ability. She use to run like the wind now now she runs like me (and I am 50 something). I hope you all get good news on the 12th. Did they even try predinsone or mtx to help with the inflammation. Sandi Ken Hunter (9 Systemic) **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2008 Report Share Posted February 16, 2008 well that is a hard question to answer as of when we were in the hospital for the 5 days they said that this is not a hemoc problem. So I guess they were saying this is not a malignancy and now the last set of blood work had some questionable things in it so as far as our ped says he feels that if a repeat comes up the same that we may need another bone marrow done that again yeah they keep saying this that we may of tested too soon for something. cynde lee <blooms@...> wrote: ..have they completely ruled out malignancy?? Cynde Re: and Caleb no they did not they said that they did not want to start mtx because we dont know what this is! and they said that they did not want to start steroids because of some blood work. ugh. I wish they would do something. NSAIDS made him bleed so we are back to motrin and tylenol massages and heat ice. deerhuntert6@... wrote: Hunter's legs were in really bad shape for awhile. It killed us to watch her try to get up and down off the floor. But within 6 month to a year she got back alot of her ability. She use to run like the wind now now she runs like me (and I am 50 something). I hope you all get good news on the 12th. Did they even try predinsone or mtx to help with the inflammation. Sandi Ken Hunter (9 Systemic) **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.