Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Hi all: Rob saw Dr. Passo today for his twice yearly now (YEAH!) follow up. As suspected, Dr. Passo agreed with us that Rob looks GREAT!! The most interesting part of the visit was that Dr. Passo was remarking on Rob's hypermobility. He said as Rob gets better and better, the hypermobility increases. He was amazed at his shoulders today, how loose they were. This is the very reason it was so hard to get Rob diagnosed. Being hypermobile, when you get arthritis, it just 'limits' your mobility more to the normal range. So even though he was in severe pain, his joint exams in those bad old days were not so bad, since it was not known before hand he had been hypermobile. To me, this sheds light on a lot of kids' situations in this group. Anyway, Dr. P. is keeping Rob on the same meds (I was relieved, why mess with a good thing!). We go back in 6 months. I did not have the nerve to ask if he was planning on a weaning of meds any time...that will be hard if he decides to do that. We will just wait and see! I am sooooo hoping that this is medicated remission and maybe, just maybe, if there is a wean sometime in the future, he will be found to be in an honest-to-goodness remission! and Rob 18 JAS Quote Link to comment Share on other sites More sharing options...
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