ehler- danlos/ hypermobility- Beth

[Guest guest]

Hi Beth

We just took to see a different Physical Therapist today. He

specializes in PRRT. You can do a search on it. He had an article in

the local paper and we looked it up and talked to our PT friend and

decided to make an apt and see what it was about. He did help Chris'

pain for today, but doesn't know if he can really help him long term-

time will tell. But, he has a 27 yr old son that he feels sure has a

mild form of Ehler- Danlos. He thinks that we need to pursue that line

of thinking over anything else with at present. He said there used

to be, either in Nashville or Louisville, someone or some place that was

doing testing about Ehler's Danlos and/ or Marfan's. He didn't know if

there was still something going on - but thinks we need to see what we

can find out. He said there are many subtypes of Ehler-Danlos and he

thinks could fit into those- now whether that is all or maybe

there's also some JRA going on and maybe some amplified pain- he didn't

know-but still thought we should look into finding someone that

specializes in Ehler- Danlos. Anyway- don't know how this helps you, but

we'll keep you posted if we find anything out.

Thanks

Jinny (pauci?? 11)