Re: Re: Iv injected Steroids - need advice

[Guest guest]

Good Morning Everyone

Need advice. My daughter, Jackie 11 system poly is going in for steroids

through IV for 3-4 days next week. Her inflamation level is low butshe might

have low inflamatuion in toes, ancles, knees, elbows, wrists and fingers. Due to

contractions in her hips and knees, she has not been walking for over 3 years,

since she broke her femur. Now they want to give this treatment to help fysical

therapy work better so she can start walking.

Can you tell me about your experience with IV steroids for inflamation ? Need

answers this weekend. I thought IV steroids was only given if inflamation around

heart sack etc. I think her muscles and ligaments are short and thight due to

all the sitting and therefor it's hard to straighten out her legs.

Appreciate help and answers

Take care

Gentile mum to Jackie 11 syst poly since 3

@...: Robbin40@...: Fri, 4 Jan 2008 21:12:16

-0500Subject: Re: Re: Cold in the South NOW lololol

Veri,The Toilet froze Up? Lordy I have not seen that in Many Years. I remember

as a Kid Our out house froze up lololol. But the House toilet where we moved

also froze up and it busted. I will blow some heat your

way.Robbin**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489[Non-text

portions of this message have been removed]

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[Guest guest]

They can do IV steriods for general Inflammation as well if they want to hit

it hard and fast. Maybe because they want to do intensive PT, they want to

try and have some control over her system that might react negatively to the

PT though I don't know for sure.

Wow.. broke her Femur.. Ouch!

I'm sure she can't walk from a mixture of joints not moving and working as

well as shortening/tightening of the muscles/ligaments. I'm sure she would

need intensive rehabilitation to get back on her feet again and maybe they

hope using the steriods can knock out any of the inflammation around that

can impede progress? Might be good to ask them that im particular.. what

their thinking is on this...

Good fortune

On Jan 4, 2008 9:25 PM, Gentile <scandinavia_today@...>

wrote:

>

> Good Morning Everyone

>

> Need advice. My daughter, Jackie 11 system poly is going in for steroids

> through IV for 3-4 days next week. Her inflamation level is low butshe might

> have low inflamatuion in toes, ancles, knees, elbows, wrists and fingers.

> Due to contractions in her hips and knees, she has not been walking for over

> 3 years, since she broke her femur. Now they want to give this treatment to

> help fysical therapy work better so she can start walking.

>

> Can you tell me about your experience with IV steroids for inflamation ?

> Need answers this weekend. I thought IV steroids was only given if

> inflamation around heart sack etc. I think her muscles and ligaments are

> short and thight due to all the sitting and therefor it's hard to straighten

> out her legs.

>

> Appreciate help and answers

>

> Take care

> Gentile mum to Jackie 11 syst poly since 3

>

>

> @...: Robbin40@...: Fri, 4 Jan 2008

> 21:12:16 -0500Subject: Re: Re: Cold in the South NOW lololol

>

>

>

>

> Veri,The Toilet froze Up? Lordy I have not seen that in Many Years. I

> remember as a Kid Our out house froze up lololol. But the House toilet where

> we moved also froze up and it busted. I will blow some heat your

> way.Robbin**************Start the year off right. Easy ways to stay in

> shape.

>

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489[Non-text<h\

ttp://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489%5BNon-text>\

portions of this message have been removed]

>

>

>

>

>

>

> _________________________________________________________________

> Put your friends on the big screen with Windows Vista® + Windows Live™.

>

>

http://www.microsoft.com/windows/shop/specialoffers.mspx?ocid=TXT_TAGLM_CPC_Medi\

aCtr_bigscreen_012008

>

>

[Guest guest]

,

I do not have any Idea on the IV Injections but someone in the group will

have information for you on this.

I do having experience in the Contractures in the legs. As 's Left

leg was so bent at age 12 that Physical Therapy was not helping. So the PT

started with the Serial Casting. She had to be careful with the left leg as the

Muscle's and Ligaments were so tight.She told me if she worked to hard and

straightened it to fast she could do more damage. So alittle at a time 's

leg was straightened. When the leg was finally straightened out was

not finished. After 3 months of this Finally she was able to stand. But she

had to sleep with the cast every night. for 4 months due to the leg wanted to

bend. It took 8 months but was able to walk again. She could not

handle the under arm crutches so she has the forearm crutches which helped her

and

then she said I do not want to see another Wheelchair or Crutches again. She

has only had to use the Wheelchair a few times since.

She was not given any IV injections but was given Pain meds on top of her

Arthritis Meds. As the process is painful. It took her 8 months to walk

again.

I know a femur can be hard to heal on some kid's. But you mentioned your

child has not walked in 3 yrs. Why are they slow in getting the mobility

going again? Has the Dr done a Bone scan to check the bones in her legs as

this

was done before the Serial casting started on and one area was pin

point to be careful with as her Femur bone was very thin. Once the

Straightening was put in Braces for about 4 months so she could walk

during the

day. At night the Splint was put on to sleep in.

One thing we also had to do was build up her muscles. So this was done by

Walking, Stationary bike riding and kicking a ball. We also had filled 2

socks with sand and laid this on her feet and she had to lift the socks while

sitting down.

She has Poly JA with related issues. So I understand the Poly part of

this. The underarm Crutches caused the shoulders to flare as most kid's do not

use crutches in the right way. So forearm crutches were better.

Most important is getting the Muscles stronger. I had her lifting 1 pound

cans to help with the arms and hands. Oddly enough I got her doing this and

she was helping me put up groceries and rearrange the kitchen and she did not

even know she was doing PT lolol. Interesting as helping around the house

Kid's do not realize it is also Therapy for them. Picking up thing's which

shows the child the right way to pick something up from the floor. WE parents

need to learn this. Never bend over to pick something up. But we need to squat

with the back straight having our legs do the work. Just something to help

after she is walking. Have her watch her shoes. She has to see the toe of the

shoe straight left right left right. As had to wear Braces from the

shoe

up this helped her learn to not walk with the toe any direction but

straight.

Hope this helps you.

Robbin

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

,

The reasons my daughter had iv steroids was because she was in one of the

biggest flares that I can remember, and she couldn't tolerate oral steroids.

Her Dr. did a 3 day infusion, maybe an hour or two each day. The side effects

of getting the steroids this way are so mild compared to getting this amount by

pill, at least for my daughter. She did throw up, though, so be prepared on the

ride home. Hopefully, that won't happen.

' & a 12 jia/uveitis

Gentile <scandinavia_today@...> wrote:

Good Morning Everyone

Need advice. My daughter, Jackie 11 system poly is going in for steroids through

IV for 3-4 days next week. Her inflamation level is low butshe might have low

inflamatuion in toes, ancles, knees, elbows, wrists and fingers. Due to

contractions in her hips and knees, she has not been walking for over 3 years,

since she broke her femur. Now they want to give this treatment to help fysical

therapy work better so she can start walking.

Can you tell me about your experience with IV steroids for inflamation ? Need

answers this weekend. I thought IV steroids was only given if inflamation around

heart sack etc. I think her muscles and ligaments are short and thight due to

all the sitting and therefor it's hard to straighten out her legs.

Appreciate help and answers

Take care

Gentile mum to Jackie 11 syst poly since 3

@...: Robbin40@...: Fri, 4 Jan 2008 21:12:16

-0500Subject: Re: Re: Cold in the South NOW lololol

Veri,The Toilet froze Up? Lordy I have not seen that in Many Years. I remember

as a Kid Our out house froze up lololol. But the House toilet where we moved

also froze up and it busted. I will blow some heat your

way.Robbin**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489[Non-text

portions of this message have been removed]

_________________________________________________________________

Put your friends on the big screen with Windows Vista® + Windows Live™.

http://www.microsoft.com/windows/shop/specialoffers.mspx?ocid=TXT_TAGLM_CPC_Medi\

aCtr_bigscreen_012008