Make A Wish

[Guest guest]

Remember what now seems ages ago, when Bill was being honored by the

Make A Wish Foundation and we all sent in cash as a surprise thank you in

recognition of his tremendous work for this charity? What happened on that

night? How much cash did the BFL'ers make and was Bill pleasantly suprised?

Anyone know? Leaner.

[Guest guest]

Remember what now seems ages ago, when Bill was being honored by the

Make A Wish Foundation and we all sent in cash as a surprise thank you in

recognition of his tremendous work for this charity? What happened on that

night? How much cash did the BFL'ers make and was Bill pleasantly suprised?

Anyone know? Leaner.

[Guest guest]

,

If he wants to meet Santa, then how about a trip to Santa Claus Land,

Indiana. Our family enjoys visiting there. Plenty to do and of course

you know who is there.

Kim, mom to Linz and Graham (Brutons)

[Guest guest]

,

If he wants to meet Santa, then how about a trip to Santa Claus Land,

Indiana. Our family enjoys visiting there. Plenty to do and of course

you know who is there.

Kim, mom to Linz and Graham (Brutons)

[Guest guest]

le,

Good for . I believe that most of our kids qualify, I know that

does. I have asked him to think of something he really wants. I think it's

a tie between a computer for his room and going to Universal Studios. What

does think he will wish for?

Our children spend so much time being ill, it only makes sense that they

qualify. They all deserve something special, I think!! I have called the

chapter here, and they were so nice.

Sandi--Mom to , age 9. Suspected IgA def., Tetrology of Fallot,

chronic sinusitis, chronic ear infections, asthma, severe allergies, GERD.

Ten surgeries, heart surgery pending.

[Guest guest]

Let us

know what he chooses!

has wanted to be in the military since he was young. His room is a

military museum !!! He is currently enrolled the US Navy Sea Cadet

Program and loves it. He has dreamed of being an Air Force fighter pilot.

He would like to go up in a jet with the Blue Angles..............or go to

Aviation Camp.

knows if his health doesn't change he can not join the military but

until then he is living it out the best he can.

le

[Guest guest]

Both and ph have been granted wishes. When they came back with

blasts in their bone marrow (they are on their way o transforming into

leukemia--blasts are leukemia cells) they were granted wishes...I will send

an article that I wrote-- okay, two. wished to meet Steve from Blue's

Clues an ph wished to meet Pooh bear. It was great for te whole family.

after all teh medical stuff we deal with... it was a much needed break.

pattie

-- Make A Wish

Dear family,

Well you guys feel like family:) I have been away from my computer and have

not had a chance to read the 150 e mails but will in the next couple of

days.........but I had to share this with you............Over the years

has been encouraged to contact Make A wish, as parents we always put it

aside

because my son does not have cancer and has a disease that with IVIG is

controlled.

Those who are new had 6 surgeries in two years k-1st grade before being

diagnosed at LPCH at Stanford. He is now in the 7th grade, has been on IVIG

for 5 years every three weeks, except for a trail off in 6th grade that

resulted in another surgery.

His Igg levels are in the normal range. But He does not produce a response

to the pneumocaccal vaccine. He does produce a semi response to the Prevnar

vac.

With the lack of response to the pnuemo vac and his clinical information the

doc diagnosed him with Selective Antibody Def.

Anyway we just recently had a nurse ask if we ever contacted Make A WIsh, We

said no and she said let him the worst that will happen is they will say no.

So I told ok.........He looked up the web sit on the computer and sent

his name in on their referral form on the site.........A kid can nominate

himself. Within two days we got a call from MAke A wish. Asking if we knew

contacted them..we said yes, they asked a Doctors name that they could

contact to see if met the criteria. I gave them our Pediatricians name

as he knows the best.

Well, one week letter gets a letter letting him know he qualifies for a

wish!!!

They are coming to our house this Tuesday to talk to .

All Parents contact Make A wish its for the kids! They make the discision

based on your doctor, so make sure you give them the Doc who knows your

child

the best.

I'll let you know how it goes. I always thought it was for kids that are

dying, but are kids qualify too!

le

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

[Guest guest]

Sandi, well said. I hope no one minds my sending the articles that I wrote!

pattie

le,

Good for . I believe that most of our kids qualify, I know that

does. I have asked him to think of something he really wants. I think it's

a tie between a computer for his room and going to Universal Studios. What

does think he will wish for?

Our children spend so much time being ill, it only makes sense that they

qualify. They all deserve something special, I think!! I have called the

chapter here, and they were so nice.

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

[Guest guest]

I know Kody qualifies too, but right now he'd probably make a wish to go

to Chuckie Cheese's! LOL So I thought I would just wait until he got a

little older to go that route! Congratulations on 's wish! Let us

know what he chooses!

Diane, Mom to Kody

[Guest guest]

That is so neat. You will have to take lots of pictures, and although I

know you can't put them on the list, I'd love for you to send me one!!!

Wow, what a great thing to wish for!!!

Diane, Mom to Kody

[Guest guest]

In a message dated 5/2/04 5:02:02 PM Pacific Daylight Time,

momtoboywholoveshisgoats@... writes:

Today we are very glad to say that since he does IVIG Bi-Weekly(has

been for the past 2-1/2 yrs) he has spent very little time in a

hospital room. We are praying everyday for it to stay that way!!!!

Hi ,

I'm so happy for the good news!! I just wanted to pop in and say

hello--it's been a long time

Sandi--Mom to , age 11. Immune Deficiency, Tetrology of Fallot,

Pulmonary Valve transplant, Mitral Valve stenosis, chronic sinusitis, chronic

ear

infections, asthma, severe allergies, GERD, Carnitine Deficiency, possible

Tethered Cord Syndrome.

[Guest guest]

Going to Disney World is my daughter's wish too. We are going March 15th. We

can't wait!!!!

BBsmart2@... wrote: We are very excited we are going to Walt Disney

World. We are leaving on the

21 st. of this month. We will be staying at Give Kids the World.

Brittany is very excited! WE never been to Disney. She has always wanted to

since she was a little girl. I am so happy for her! Her dream come true!

We will be traveling with two young boys age 2 and 4 and the four year old

is a diabetic. I have custody of my grandsons now.

Please everyone who went share your experiences with us, any ideas for us?,

anything that will help is greatly appreciated.

Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

Janet!!!

Brittney & the boys will have a blast!!!

Going through Make A Wish puts you all at an advantage over other guests!!!

When Brittney gets her MAW badge, she get to teh front of line for the rides

and signatures of the Charactures. There is NO waiting for her or your family!!!

Blake went when he was 10. He had a blast.

When we went we rode a limo to the air port which was 2 hrs. from home. We

had fist dibs on getting him in the plane's, no waiting for first class to fill.

They got Blake to his seat first. They treated him like he was a king!!!

When we arrived in Fl. We were greeted by a couple WHO made sure our luggage

was tended to & did not get lost. They took us to our rental car that we used

through out the trip. They knew Blake was quite tired, but they made his arrival

very good & he was sooooo excited. he still remembers their names.

We were given a Toyota Avalon fully loader to drive where ever we wanted to.

When we arrived at GKTW, Blake was greeted with balloons, since they knew of

his Latex allergies he was given Mylar. he received a GKTW T-shirt as well as a

Disney World one. He was given a 50 yr. anniversary Mickey Mouse Doll that had

a 50 yr. pin on the bottom of the foot. This is the framed picture on his

website!!! I would never trade the look & love he had right then & there. While

& I filled out the paper work, Blake roamed around the office/play room. He

was in awe. He loved the big map of GKTW area!!! he already had his picks & he

was ready to get it done.

Since the first day, you have orientation & are tired anyway, it is best to

stay around the grounds & roam. It is awesome & a wonderful place to forget why

you are there!!!

They put you in a house that has the last name of the child who is the guest.

When you walk in, the fridge is FULL, there are a few gifts left on the table.

There is a living room 2 bedrooms, a laundry room. one small bath(full) and a

big bath with a huge spa!!! You are furnished with clean linen & toiletries. It

is amazing!!!

When you go to orientation they only need one adult to go. They give you all

the tickets to out side Disney things, they give you your park hoppers, they

give you special privileges to park in Handicapped spaces at the Parks. You

don't even have to worry about the parking fees!!! They also give you a chance

to use a camcorder for a day & we were given a digital camera to use!!! We used

the camcorder & got some really great video while riding the Hall Of Horror

ride!!!!

They also will let you invite the mayor to come & tuck the children in(I

suggest you sign up for this because Blake LOVED to have one on one with the

Mayor!!!) the Mayor even took time to read a book to Blake!!!! When you are in

orientation, you also get to sign up to go & have dinner outside of GKTW. We

went to OUTBACK. They pick the place, but you get to eat whatever you want &

they also babysat!!!! NO KIDS. Just you & your companion.

Then the next day you set out to Disney & have a wonderful time. We always had

Breakfast in the diner @ GKTW & made it back by 6:00 every evening for dinner.

We ate lunch at the parks. We were given a free meal at Hard Rock Cafe. We

really were too busy for eating but made sure Blake was given food!!!

At the end of Day one in the park, Blake was invited to be the Grand Marshal

of the Parade. He ate up the attention!!! They have a parade everyday but you

have to get there between 2-3 to see the whole thing. They also have a

fireworks show at the end of the day. You can go back out after dinner but have

to be back by midnight!!! We usually went to the beach or just ride around FLA.

Wal-Mart is right down the road. Sooooo, we developed our pictures each nite.

MAW paid for it!!!

We were given able to purchase some souvenirs. But each day, GKTW had treats

for Blake set on the table & clean linens in the room by the time we got back to

the house for dinner.

Well I need to close for now. If you want to just email me & I can send some

pics of the trip....It will be an experience none of you will forget(Blake nor I

had ever been before...I also celebrated my 38Th birthday there we went Sept.

29-Oct 6, 2002)

Mom to Blake 16(in 2 more weeks)SCID, & other issues

Sub-Q once a week & glad he at home during treatments!!!

http://www3.caringbridge.org/sc/blakester

The Greatest Adventure of MY Lifetime!!!!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

BBsmart2@... wrote:

We are very excited we are going to Walt Disney World. We are leaving

on the

21 st. of this month. We will be staying at Give Kids the World.

Brittany is very excited! WE never been to Disney. She has always wanted to

since she was a little girl. I am so happy for her! Her dream come true!

We will be traveling with two young boys age 2 and 4 and the four year old

is a diabetic. I have custody of my grandsons now.

Please everyone who went share your experiences with us, any ideas for us?,

anything that will help is greatly appreciated.

Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

---

GKTW ROCKS! my ten yr old went last May, for her MAW, and it was

awesome. If your child(ren) have any special dietary needs, they will

make accomodations.......we notified them ahead of time, and they had

dairy free ice cream in the ice cream shop when we arrived. As soon as

we got there, they had pizza's ordered to our villa. the villa was

AWESOME......huge, and we have four children, and my parents came with

us. The place to eat is incredible, and has so many choices, the ice

cream shop is open from 8am till 10pm, which is a dream come true for

most kids. Your grandsons will love the all day carosoul. Our daughter

was given a star, she put her name on it, and it went on the ceiling

with millions of other childrens stars. Every night when we came back,

gifts for all my children were waiting on the table. I thought it was

so kind that all my kids were included. We just hated to leave, I

cried. When we checked out, we were given a packet with pics the staff

had taken of our family during our stay, along with free passes for

one year from that date, to several different amusement parks around

the nation---we used one up in the fall, for a park in our state.

If I could give you any advice---I will tell you to take some empty

bags with you....I was told that, but didnt really think we would

bring so many things back........the night before we left, we had to

run to a walmart to buy FIVE extra bags to haul all my kids gifts back

with:), which was a happy problem. And make sure you hit Animal

Kingdoms Mount Everest ride........your daughter will LOVE it.

We are currently in the process of my 7 yr old sons MAW.....are

waiting on the paperwork. He thinks he wants to meet Jack Sparrow at

the moment, but that could change. I thought the whole MAW experience

was incredible, and our trip came at a really difficult time for our

family. Im so happy for you that you get to go........you couldnt ask

for anything more incredible.

valarie

mom to three with CVID

In , BBsmart2@... wrote:

>

> We are very excited we are going to Walt Disney World. We are

leaving on the

> 21 st. of this month. We will be staying at Give Kids the World.

> Brittany is very excited! WE never been to Disney. She has always

wanted to

> since she was a little girl. I am so happy for her! Her dream come true!

> We will be traveling with two young boys age 2 and 4 and the four

year old

> is a diabetic. I have custody of my grandsons now.

> Please everyone who went share your experiences with us, any ideas

for us?,

> anything that will help is greatly appreciated.

>

>

> Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

>

>

>

> **************Start the year off right. Easy ways to stay in shape.

> http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

>

>

>

[Guest guest]

We are going too - from teh 19th to 26th.... through Children's Wish !

is soooooo excited. He has always been sick on his birthday (Jan

22) with pneumonia so we have our fingers crossed that we stay healthy for

the next week. Children's Wish has planned so many activities for us I

don't know how we'll keep up !

Thanks everyone for their ideas on how to cope at Disney... it has helped

our plans too.

Kim, mom to , Hyper IgE (Job's Syndrome) and will turn 6 at a Pirate

Birthday Party at Disney World

>From: BBsmart2@...

>Reply-

>

>Subject: Make A Wish

>Date: Sun, 13 Jan 2008 14:59:04 EST

>

>We are very excited we are going to Walt Disney World. We are leaving on

>the

>21 st. of this month. We will be staying at Give Kids the World.

>Brittany is very excited! WE never been to Disney. She has always wanted to

>since she was a little girl. I am so happy for her! Her dream come true!

>We will be traveling with two young boys age 2 and 4 and the four year old

>is a diabetic. I have custody of my grandsons now.

>Please everyone who went share your experiences with us, any ideas for us?,

>anything that will help is greatly appreciated.

>

>

>Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

>

>

>

>**************Start the year off right. Easy ways to stay in shape.

>http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

>

>

>

[Guest guest]

We are going 3 rd week of July through Special Wishes...

Anyone need to refrigerate meds on a plane, other than IVIG, etc-we have several

refrigerated meds- antibiotics, fluconasole, growth hormone cartridges, etc that

need to be in a cooler or refrigerated.

Also, anyone take a child with the cognitive ability of a toddler to three year

to Disney World and, if so, what suggestions do you have-my son is 6 years old

but he is the size of, and has the cognitive ability of, a 3 ½ year old.

Thanks

in CT mom to

________________________________

From: [mailto: ] On Behalf Of Kim

MacEachern

Sent: Monday, January 14, 2008 10:38 AM

Subject: RE: Make A Wish

We are going too - from teh 19th to 26th.... through Children's Wish !

is soooooo excited. He has always been sick on his birthday (Jan

22) with pneumonia so we have our fingers crossed that we stay healthy for

the next week. Children's Wish has planned so many activities for us I

don't know how we'll keep up !

Thanks everyone for their ideas on how to cope at Disney... it has helped

our plans too.

Kim, mom to , Hyper IgE (Job's Syndrome) and will turn 6 at a Pirate

Birthday Party at Disney World

>From: BBsmart2@... <mailto:BBsmart2%40aol.com>

>Reply- <mailto:%40>

> <mailto:%40>

>Subject: Make A Wish

>Date: Sun, 13 Jan 2008 14:59:04 EST

>

>We are very excited we are going to Walt Disney World. We are leaving on

>the

>21 st. of this month. We will be staying at Give Kids the World.

>Brittany is very excited! WE never been to Disney. She has always wanted to

>since she was a little girl. I am so happy for her! Her dream come true!

>We will be traveling with two young boys age 2 and 4 and the four year old

>is a diabetic. I have custody of my grandsons now.

>Please everyone who went share your experiences with us, any ideas for us?,

>anything that will help is greatly appreciated.

>

>

>Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

>

>

>

>**************Start the year off right. Easy ways to stay in shape.

>http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

<http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489>

>

>

>

[Guest guest]

Dear Janet,

I will be sending only good positive healing thoughts your way. You all deserve

a beautiful golden moment in time.

Kate,

A mom of four (one of whom has multiple special needs, & CVID with autoimmune

complications)

Make A Wish

I want to thank everyone that wrote and offered advice and suggestions. It

is really a big help to me. A few have even given there phone number for me to

call them. I really appreciate you guys. Sorry I haven't had the time to

call. I still am not fully packed. I need another week!

It has been so CRAZY, but I had to take a few minutes to write this email to

you. Brit has a sinus infection. She is on meds now she gets her IVIG on Sat.

so she should be good to go.

BUT, my two year old has had the (stomach flu) for a week now. Can't get the

runs to go away and his little bottom is soooo raw. Doctor assures me he

should be good by Sunday. It's been a week and he is still going strong! This

is

highly contagious, this is my big FEAR!! Did I tell you we are leaving on

Sunday?? Did I tell you Jaden my 4 year old is a Diabetic?? What if he gets

it?

What if Brit gets it,? ME,? Hubby?

I am so afraid of her trip being ruined. Everything in her life has been

ruined due to sickness. She is 17 always wanted to go to Disney, we can't

afford

to ever do this again. I want to see the little girl in her that always

wanted to go to Disney, her wish come true, without sickness!

Please say a Prayer for us.

Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

---oh, Janet! I hope everything goes ok. I felt the exact same

way....and two days before we left, Savannah woke up sniffly. I called

her pulmo and demanded she see her.....dr was like, so whats wrong?

and I said, " well, this morning she, um, was sniffly. " and she was

like, " and what else? " lol I told her I was just so hyper afraid we

wouldnt be able to go, she would get sick like ALWAYS! so she gave me

abx to take with us just in case, but luckily she got over that

frightening " sniffle " , lol.

I so hope everything is wonderful, just wonderful for you. Be sure to

take lots of pictures!!

valarie

mom to four, three with CVID

In , BBsmart2@... wrote:

>

> I want to thank everyone that wrote and offered advice and

suggestions. It

> is really a big help to me. A few have even given there phone number

for me to

> call them. I really appreciate you guys. Sorry I haven't had the

time to

> call. I still am not fully packed. I need another week!

>

> It has been so CRAZY, but I had to take a few minutes to write this

email to

> you. Brit has a sinus infection. She is on meds now she gets her

IVIG on Sat.

> so she should be good to go.

>

> BUT, my two year old has had the (stomach flu) for a week now. Can't

get the

> runs to go away and his little bottom is soooo raw. Doctor assures

me he

> should be good by Sunday. It's been a week and he is still going

strong! This is

> highly contagious, this is my big FEAR!! Did I tell you we are

leaving on

> Sunday?? Did I tell you Jaden my 4 year old is a Diabetic?? What if

he gets it?

> What if Brit gets it,? ME,? Hubby?

> I am so afraid of her trip being ruined. Everything in her life has

been

> ruined due to sickness. She is 17 always wanted to go to Disney, we

can't afford

> to ever do this again. I want to see the little girl in her that

always

> wanted to go to Disney, her wish come true, without sickness!

>

> Please say a Prayer for us.

>

> Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

>

>

>

>

> **************Start the year off right. Easy ways to stay in shape.

> http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

>

>

>

[Guest guest]

Dear Janet, I'm praying.

In His service,

dale

BBsmart2@... wrote:

>

> BUT, my two year old has had the (stomach flu) for a week now.

[Guest guest]

Can doctor give you whatever medicine they prescribe to lessen flu symptoms??

Just a though.

Pam

Make A Wish

I want to thank everyone that wrote and offered advice and suggestions. It

is really a big help to me. A few have even given there phone number for me to

call them. I really appreciate you guys. Sorry I haven't had the time to

call. I still am not fully packed. I need another week!

It has been so CRAZY, but I had to take a few minutes to write this email to

you. Brit has a sinus infection. She is on meds now she gets her IVIG on Sat.

so she should be good to go.

BUT, my two year old has had the (stomach flu) for a week now. Can't get the

runs to go away and his little bottom is soooo raw. Doctor assures me he

should be good by Sunday. It's been a week and he is still going strong! This is

highly contagious, this is my big FEAR!! Did I tell you we are leaving on

Sunday?? Did I tell you Jaden my 4 year old is a Diabetic?? What if he gets it?

What if Brit gets it,? ME,? Hubby?

I am so afraid of her trip being ruined. Everything in her life has been

ruined due to sickness. She is 17 always wanted to go to Disney, we can't afford

to ever do this again. I want to see the little girl in her that always

wanted to go to Disney, her wish come true, without sickness!

Please say a Prayer for us.

Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

They can give you anti-flu meds but they only work if given within a couple of

days of onset of symptoms. I know it works as well because I have had to get it

for my children and with the first one she was started on it and within 24 hours

the fever was totally gone.

Cassie

Future Director of the Charismatic Carolers

www.marykay.com/cassieredinger

[Guest guest]

Hi Everyone!

Just wanted to let you know that Sam is getting a wish from the Make A Wish

Foundation!!

I've always been under the impression that the foundation only grants wishes

to terminally ill children; but that's not the case. Wishes are granted to

children who have suffered long-term illnesses. My foundation reps. said to

pass the word onto other families/children with arthritis.

Come on, Moms! All you have to do is go to the website, fill out the

application. Approvals have a lot to do with the doctor's input. The

foundation will contact them (after you submit the application) asking them

for more information on the illness.

Our kids so deserve this!!!!

We are so excited!

Lincoln (mom to Sam, age 6 - dx at 1 year with Systemic JRA)

[Guest guest]

How exciting...what was his wish? Its about time that the children

that suffer from arthritis get something like this...congrats sam

>

> Hi Everyone!

>

> Just wanted to let you know that Sam is getting a wish from the

Make A Wish

> Foundation!!

>

> I've always been under the impression that the foundation only

grants wishes

> to terminally ill children; but that's not the case. Wishes are

granted to

> children who have suffered long-term illnesses. My foundation

reps. said to

> pass the word onto other families/children with arthritis.

>

> Come on, Moms! All you have to do is go to the website, fill out

the

> application. Approvals have a lot to do with the doctor's input.

The

> foundation will contact them (after you submit the application)

asking them

> for more information on the illness.

>

> Our kids so deserve this!!!!

>

> We are so excited!

>

> Lincoln (mom to Sam, age 6 - dx at 1 year with Systemic

JRA)

>

[Guest guest]

Awesome News! So what is Sam's Wish???

(Aundrea 12 systemic jra/gerd)--

- In , " CHRISTINA LINCOLN " <chrislinc@...>

wrote:

>

> Hi Everyone!

>

> Just wanted to let you know that Sam is getting a wish from the

Make A Wish

> Foundation!!

>

> I've always been under the impression that the foundation only

grants wishes

> to terminally ill children; but that's not the case. Wishes are

granted to

> children who have suffered long-term illnesses. My foundation

reps. said to

> pass the word onto other families/children with arthritis.

>

> Come on, Moms! All you have to do is go to the website, fill out

the

> application. Approvals have a lot to do with the doctor's input.

The

> foundation will contact them (after you submit the application)

asking them

> for more information on the illness.

>

> Our kids so deserve this!!!!

>

> We are so excited!

>

> Lincoln (mom to Sam, age 6 - dx at 1 year with Systemic

JRA)

>

[Guest guest]

I am happy for you guys we went with our three kids in August of 2006 GKTK is

the best and Disney world.

BBsmart2@... wrote: We are very excited we are going to Walt Disney

World. We are leaving on the

21 st. of this month. We will be staying at Give Kids the World.

Brittany is very excited! WE never been to Disney. She has always wanted to

since she was a little girl. I am so happy for her! Her dream come true!

We will be traveling with two young boys age 2 and 4 and the four year old

is a diabetic. I have custody of my grandsons now.

Please everyone who went share your experiences with us, any ideas for us?,

anything that will help is greatly appreciated.

Janet, mom to Brittany age 17, CVID, Urticaria & Angioedema

**************Start the year off right. Easy ways to stay in shape.

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