venting

[Guest guest]

I just got a call from Calebs rheumy's resident and I was very upset

by the end of the call that I just wonder how ompentent this person

is taking care of my child. We had our appt on Monday and we got

our dx of systemic JRA aka stills. Or so we thought both me and my

husbad were there and we both heard what this dx was and that he

wanted to wait to start steroids yada yada yada. So we came home

with our diagnosis and we scared but relieved all at one time. Well

today *his* resident calls me and wanted to tell me that they are

setting up an MRI of my kids head that they think that somthing

might not be right in there.ummm ok that is fine lets do it if you

feels its needed right. Ok then I proceed to go on to ask her

questions about *our diagnosis* and she was like well we havent came

to that diagnosis yet we think it is but we didnt say for

sure.....ok i dont think she was in the same room as us becasue

after getting off the phone with her i called my husband and asked

him what was said in the visit and what was his interpertutation.

He was the same as mine that the rheumy looked at us and said it was

about time we named what this is. The he was giving it the

diagnosis of stills which i aksed umm ok what is that exactly and he

said that was also known as systemic JIA. Then he proceeded to go

on to tell the resident the other blood work he wanted next time.

And that he was not going to start him on steroids now since his

blood work was good and he wants his eyes tested before starting

steroids. This is what we both got out of our visit. I guess we

are dumber than what we thought and cant understand english. OR the

DR didnt mean to say what he did. in any event this makes me so mad

that I am thinking of finding someone else to take over my sons

care. Has anyone else ever went through this? Now Caleb is sick

and started vomiting and she was treating me like I am a bad mother

she was like you have to make him drink or we need to see him to

give him fluids I am going to call you back later in the day to make

sure you are doing as you should......hummm I am a triage nurse for

a peds office I DO know that he needs to drink but on the other hand

I DO know that if he vomits you need to rest his stomach for 2 hours

before starting to try to give anything else. I guess I am just a

big fat idiot that knows nothing, because I am not a resident. what

an A**. errr any advise?