Thanks for the warm welcome

[Guest guest]

Merced - I was born and raised in Las Vegas, by the way! I love it here

also but it's getting SO BIG!!!!

My husband & I did our first 12 weeks starting 1/31/99 and finished 4/23/00.

We are very pleased with our results! We started a second 12 weeks this

past Monday (5/15). our goal this time is to lower our % body fat some more.

Our before and after pictures, along with others from our group, are

posted at Angelo's web site:

http://www.epalisades.com/power.htm

[Guest guest]

,

Do you and your sons have someone who can come in and care for things

around the house? I sure hope so, because it sounds as though you guys

are all going through too much already. Jessi is a good one to speak to

about school frustrations with home schooling and public schooling. I

think it is normal to be envious of the fortunes of others, especially

when it is taken for granted. I get simply exasperated with my cousin

who is 5 months older than I. She is married with a child, but her

mother cooks and cleans and basically runs her household. My cousin

does not have any illnesses, but I just get so upset when she calls me

angry with her mother because her mother forgot to pick up dry cleaning,

and how much of a burden it is on her. OH! Just ticks me off! There

are so many people who have illnesses and cannot cope with the illness,

let alone a family or chores. Where does she have the right to complain

about dry cleaning or a semi-burnt meal? She has free live-in

babysitter and maid! I think it would be a great gift for her to see

for one day what any one of us has to live with. She would be more

thankful for what she has. I do hope though, she never has to know

enduring illness. I admire your strength! Only a mother would be able

to set her own illnesses aside for her children. I guess I should

rephrase that. Only a loving mother like you, would be able to set her

own illnesses aside for her children. Some here have been abandoned by

their mothers, truly tragic. We are always here to listen! Venting is

good for the soul, so do it often! I sure do. Hope today finds you and

your sons well.

Hugs,

thanks for the warm welcome

Hello Helen and everyone,

Thank you for the very warm welcome. Yesterday was a pretty rough day

around here healthwise. Isaac and are both having asthma

problems. (16) has a Reveal Loop Recorder implanted in his chest

to monitor all heart activity (this is the last step before implanting a

pacer/defibrillator). I had to manually activate it yesterday, as he

had syncope (passed out briefly). He has a sinus infection, and I had

just gotten back from the dr. with him with an antibiotic. 's

heart stopped twice and he had to be cardiovented twice and given 1 gram

of Procanamide during a recent heart cath and EP study on 5/17. The

loop recorder was implanted on 5/20. hasn't been physically able

to attend public school since last mid-Dec, when he collapsed in the

school cafeteria. He receives instruction from a Homebound Teacher

several hours a week, but that is often too much for him. He wasn't

able to get enough credits this year to be a junior next year. We

simply had to drop some of his courses, as the load was more than he

could cope with and be critically ill at the same time. None of us can

fight off infection too well at all. Isaac (15) is having asthma

trouble this weekend, too. He is in his " yellow zone " . Yesterday, he

got sick to his stomach and temp went to 102+. I am still extremely

weak from the bacterial infection I recently had in my intestines

(caused by food poisoning). It caused my Irritable Bowel Syndrome to

just spin out of control. I saw my dr. this past Friday, and he gave me

a new stomach pill (Nulev) in addition to the other meds I'm on. I've

lost down to 84 pounds, and it is very scary to be so thin and frail.

It is going to take me a long, long time to put the needed weight back

on and regain my strength. We take it one day at a time around here.

We just never know if it'll be a good day or a " sick " day. Healthy

people truly do not know the great gift they are blessed with, do they?

I try not to be envious, but I am. I long to do the things I want to do

and to feel good and have energy. So do my sons. Thank you so much for

your welcome, and for listening to me.

Love,

Re: *~~Welcome LINDA, our new member~~*

Hi !!! How ya doing today ??? How;s your boy's ??? Hope I didn't

scare ya off yesterday ) I knew you were from Texas ) Post when ya

can ) Waiting to hear from ya )

((( Welcoming Hugs )))

helen

> Everyone please take the time to read this and welcome and her

> sons to our group. If you have specific support, please offer if you

> can.

>

> Many thanks,

>

>

>

>

>

> 1) Name (as you wish to be known by)

>

> 2) Location (be as detailed as you want i.e. just list the country or

> list country/state/suburb etc) Texas

>

> 3) Personal Info (this is about why you joined. Tell about your

> illness, or if you are a carer tell about that. Mention your family if

> you want, or your lifestyle - kids/pets etc)

>

> My two teenage sons and I are all chronically ill with multiple

> sicknesses. We need all the support and encouragement we can find.

> Collectively, we suffer from Ehlers-Danlos Syndrome, Asthma,

> Dysautonomia, Neurocardiogenic Syncope, Allergies, Osteoarthritis,

> Osteopenia, Spinal Stenosis, Spinal Spondilosis, Irritable Bowel

> Syndrome, and many drug allergies and hypersensitivities. Our immune

> systems are compromised as a result of all these things. My son, 16,

> currenly has a Reveal Loop Recorder implanted to record all of his

> heart activity. This is the next step on the way to him having a

> pacemaker and a defibrillator implanted. He recently underwent a

> heart cath and EP study and had to be cardio vented (shocked) twice

> due to his heart stopping. They almost didn't get him back. We know

> there are no " cures " or " magic pills " , but we want a better quality of

> life. We'd also like to support others and offer compassion.

>

> 4) Interests (tell about your hobbies and what you enjoy) Reading,

> traveling, gardening. I teach Special Education (14 yrs, with a 7 yr.

> " maternity break " after the first 5 years). I also LOVE history and

> genealogy.

>

> 5) Email (Say yes if you want your email address listed so others can

> contact you privately - or no if you do not) yes

>

> 6) ICQ / AOL / MSN (these are those contacts... list your numbers if

> you wish to be contacted via ICQ, MSN or AOL) : lonestarrose2002

> (but I don't really chat much)

>

> 7) Webpage (if you have a personal webpage and would like it listed

> say yes and list the URL)

>

> 8) Birthday (just the date and month and star sign - age is not

> important) 12/22/1960

>

>

>

>

>

<center>

Signature Creations by

<A HREF= " http://www.wtv-zone.com/pandy/ " > PANDORASBOX8 </A>

</center>

[Guest guest]

Vent away , it does help to have others that Do understand what being

ill and having little energy does to a person... Hows it going now??? is your

son feeling a little better today??? It must be scary to say the least to

have to restart your own son's heart...

Prayers are with you and yours...

((( Blessed Hugs )))

Helen

> Hello Helen and everyone,

>

> Thank you for the very warm welcome. Yesterday was a pretty rough day

> around here healthwise. Isaac and are both having asthma problems.

> (16) has a Reveal Loop Recorder implanted in his chest to monitor

> all heart activity (this is the last step before implanting a

> pacer/defibrillator). I had to manually activate it yesterday, as he had

> syncope (passed out briefly). He has a sinus infection, and I had just

> gotten back from the dr. with him with an antibiotic. 's heart

> stopped twice and he had to be cardiovented twice and given 1 gram of

> Procanamide during a recent heart cath and EP study on 5/17. The loop

> recorder was implanted on 5/20. hasn't been physically able to

> attend public school since last mid-Dec, when he collapsed in the school

> cafeteria. He receives instruction from a Homebound Teacher several hours

> a week, but that is often too much for him. He wasn't able to get enough

> credits this year to be a junior next year. We simply had to drop some of

> his courses, as the load was more than he could cope with and be critically

> ill at the same time. None of us can fight off infection too well at all.

> Isaac (15) is having asthma trouble this weekend, too. He is in his

> " yellow zone " . Yesterday, he got sick to his stomach and temp went to

> 102+. I am still extremely weak from the bacterial infection I recently

> had in my intestines (caused by food poisoning). It caused my Irritable

> Bowel Syndrome to just spin out of control. I saw my dr. this past Friday,

> and he gave me a new stomach pill (Nulev) in addition to the other meds I'm

> on. I've lost down to 84 pounds, and it is very scary to be so thin and

> frail. It is going to take me a long, long time to put the needed weight

> back on and regain my strength. We take it one day at a time around here.

> We just never know if it'll be a good day or a " sick " day. Healthy people

> truly do not know the great gift they are blessed with, do they? I try not

> to be envious, but I am. I long to do the things I want to do and to feel

> good and have energy. So do my sons. Thank you so much for your welcome,

> and for listening to me.

>

> Love,

>

>

{\o/} {\o/} {\o/} {\o/} {\o/} {\o/} {\o/}

*/*\* */*\* */*\* */*\* */*\* */*\* */*\*

RAINBOW ANGELS TO

PROTECT YOU ALL WEEK !!

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</center>

[Guest guest]

Bridget... I couldn't find a specific answer to the ? about RF but

you might wish to do a search online for you ICD manufacturer and

present them the ? online ... most sites bring back a response w/in

24 hrs... also, here is a place to start to learn about other

restrictions http://www.sjm.com/4.0/4.3/4.3.3/4.3.3.8/4.3.3.8.7.shtm

JES in NJ

God Bless America

>

> This is getting longer than I intended - - I guess I just needed to

> talk. Anyway, here are my questions: My dh and dd's and I are all

> HAMs, does anyone have any info about RF interference and ICDs?

Are

> there other things I should avoid? How long did it take y'all to

get

> used to the unit enough to sleep well and not wake up when you

moved

> around feeling like you had a brick in your shoulder?

>

> Thanks for being here guys!

>

> Bridget

[Guest guest]

Bridget, regarding exercise, you need to work with your cardiologist on

that. Because of my condition, the first few months was maneuvering from the

bed to the chair or to the bathroom. Then it was some slow walking short

distances. As the medications kicked in and improved my heart's pumping

action, I could increase the length of the walk but still kept going slowly.

Two years later, I briskly walk a mile or so and the zapper has not fired

yet. Just my experience. Maybe your hospital has a cardiac rehab program

specifically for you. My EP said to use a stationary bicycle. Begin with

five minutes and work up.

Mike

on 7/30/02 5:16 AM, rumpleteasermom at rumpleteasermom@... wrote:

>

> Thank you all for the welcome.

>

> Here is a little more about why I'm here. In 1998, I was taken by

> ambulance to the ER with what we thought at the time was an asthma

> attack. It was a less than wonderful hospital but they were okay for

> asthma because I always was awake enough to make sure they were doing

> the right things (heck, one time I even drove myself.) This time was

> different. I couldn't walk to the car so my dh (dear husband - do you

> use those abbreviations here?) called 911. I don't remember anythng

> from the ambulance til waking up in ICU two days later where I

> promptly had an MI. My bload was clotting. They flew me to a better

> hospital that day and did a Heart Cath which found no plaques, no

> heart disease, just a big ole clot. The pulmonary guy at that

> hospital seemed to be of the opinion that my original attack was not

> asthma but rather a pulmonary embolism but by the time they got

> around to looking for it, it was too late to see conclusively. I've

> been on blood thinners (coumadin) ever since - with one small

> experiment to see if I could stop them, during which I promptly got a

> clot in my left leg. I went through cardiac rehab and then went back

> to life as it was which for me involved homeschooling three kids and

> working midnights at a hotel. I have since stopped working because of

> other problems, ended up having a total hysterectormy in February of

> this year and now this heart thing.

>

> Here's what happened this time: On July 10 while running the weed

> eater, I suddenly felt like I was going to faint. I did manage to

> shut off the weed eater before I sat down in the weeds. Took me three

> tries to get back to the house (I was probably 500 feet away from it.)

> I dumped the weed eater halfway and sent my oldest after it when I

> got in. For an hour and a half I sat in my recliner and tried to will

> it away and pretend I was not feeling pain in my chest and that I

> really couldn't see my heart leaping around in there. My BP was 81/68

> when the machine could read it which was once in that time, the rest

> of the time it couldn't get a reding. I counted my heart rate at 180

> but think it was actually higher, hard to count at that rate.

>

> When everyone finally talked me into going to the hospital, my oldest

> daughter drove me in. They didn't even stop me at the desk, just

> whisked me in and hooked me up to an EKG as soon as I said my heart

> was racing. I must have looked pretty bad because my son was looking

> for a stick to poke me with while I was still at home. (my 10 yos has

> anxiety problems BTW.) By the time I got there my heart rate was

> slowly coming down. I think it was 120 when I got there. But I had

> some elevated enzymes and such so I spent the night in CCU. My

> cardiologist was going to send me home with an external monitor to

> wear so we could try to find out exactly what the rhythm was but after

> my stress test and reviewing the scarring from the original MI decided

> to have the EP's take a look. What they found was that they could

> make my rhythm go into Ventricular Flutter without even really trying.

> So I got my implant right there on the spot.

>

> Looking back on this past year, and really even further, I know that I

> was in a state of denial about the size of Texas. I had frequently

> been able to count my heartbeat by looking at my chest and felt like

> it was working too hard. It just took having a really severe episode

> to bring it home. I've had one minor episode since then but came out

> of it fast enough to avoid getting zapped.

>

> My biggest problem now is that I am afraid to exercise. It's set to

> zap me at 155 and I can get to that rate just hiking or walking the

> long park trail. I know I need to get back ointo it and lose some

> weight, but that doesn't help me when I'm afraid. I think if I get

> zapped once, I'll handle better maybe. I am terribly out of shape

> right now. For months last year I was dealing with constant abdominal

> pain fron the multiple problems that led to the Hyst. Then I was

> healing from the Hyst and now this.

>

> And part of the reason I was denying my own problems is because I have

> been very focused on helping my son with his. He is ten and is seeing

> a psychiatrist. The diagnosis is some form of autism/asperger's

> syndrom and possibly a psychosis and definitely an anxiety disorder.

> Yes, he was a mess! He is now taking Risperdal and doing MUCH better.

> The fact that this latest episode with me did not make him worse is a

> minor miracle!

>

> On the plus side, I have a great husband and two rather helpful

> teenagers and I have a great mom who lives next door. We have 8 acres

> of mostly wooded property in NE Ohio and for the most part, my life is

> good. And I refuse to worry about medical bills which haven't rolled

> in yet.

>

> This is getting longer than I intended - - I guess I just needed to

> talk. Anyway, here are my questions: My dh and dd's and I are all

> HAMs, does anyone have any info about RF interference and ICDs? Are

> there other things I should avoid? How long did it take y'all to get

> used to the unit enough to sleep well and not wake up when you moved

> around feeling like you had a brick in your shoulder?

>

> Thanks for being here guys!

>

> Bridget

>

>

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

[Guest guest]

sorry for the late welcome i'm stacie i'm 18 i have had heart probloms (

amoung others) all my life about 6 years ago i got v-tach v-fib a-tach and

a-fib for a year it went unnoticed i was finally found in july of 96 was on

meds for a year then in decber of 97 i was told i needed a defibrillator i

had went into v-tach was in it for 11 1/2 hours after i got to hospital the

waether here was changeing so i to though it was my lungs all that was wrong

was my chest was sore not hurting or nothing well we got to hospital had iv

meds lidacine ( enough for three people!!! ) and others meds when i was

still in v-tach ( 440bpm ) they decied to put me out and shock me out of

the rthmye all this time i was awake up till the shock !!!! so at that

time i needed a defibrillator the age i was it was my choice i told thim no

then i got a bad virus from a diffrent county so 8 weeks after almost dieing

and one dog later on feb 26 98 i got my firsted icd (jumpy) had in for

4 years and 8 day it went off over 251 times ( not including the times my

heart need doctor to shock it ) then the battery went dead got so in march 4

02 i got my secound icd ( lightingbolt ) he has went off over 11 times

since march this is my icd history long but there it is in the short form

stacie,18

Thanks for the warm welcome

Thank you all for the welcome.

Here is a little more about why I'm here. In 1998, I was taken by

ambulance to the ER with what we thought at the time was an asthma

attack. It was a less than wonderful hospital but they were okay for

asthma because I always was awake enough to make sure they were doing

the right things (heck, one time I even drove myself.) This time was

different. I couldn't walk to the car so my dh (dear husband - do you

use those abbreviations here?) called 911. I don't remember anythng

from the ambulance til waking up in ICU two days later where I

promptly had an MI. My bload was clotting. They flew me to a better

hospital that day and did a Heart Cath which found no plaques, no

heart disease, just a big ole clot. The pulmonary guy at that

hospital seemed to be of the opinion that my original attack was not

asthma but rather a pulmonary embolism but by the time they got

around to looking for it, it was too late to see conclusively. I've

been on blood thinners (coumadin) ever since - with one small

experiment to see if I could stop them, during which I promptly got a

clot in my left leg. I went through cardiac rehab and then went back

to life as it was which for me involved homeschooling three kids and

working midnights at a hotel. I have since stopped working because of

other problems, ended up having a total hysterectormy in February of

this year and now this heart thing.

Here's what happened this time: On July 10 while running the weed

eater, I suddenly felt like I was going to faint. I did manage to

shut off the weed eater before I sat down in the weeds. Took me three

tries to get back to the house (I was probably 500 feet away from it.)

I dumped the weed eater halfway and sent my oldest after it when I

got in. For an hour and a half I sat in my recliner and tried to will

it away and pretend I was not feeling pain in my chest and that I

really couldn't see my heart leaping around in there. My BP was 81/68

when the machine could read it which was once in that time, the rest

of the time it couldn't get a reding. I counted my heart rate at 180

but think it was actually higher, hard to count at that rate.

When everyone finally talked me into going to the hospital, my oldest

daughter drove me in. They didn't even stop me at the desk, just

whisked me in and hooked me up to an EKG as soon as I said my heart

was racing. I must have looked pretty bad because my son was looking

for a stick to poke me with while I was still at home. (my 10 yos has

anxiety problems BTW.) By the time I got there my heart rate was

slowly coming down. I think it was 120 when I got there. But I had

some elevated enzymes and such so I spent the night in CCU. My

cardiologist was going to send me home with an external monitor to

wear so we could try to find out exactly what the rhythm was but after

my stress test and reviewing the scarring from the original MI decided

to have the EP's take a look. What they found was that they could

make my rhythm go into Ventricular Flutter without even really trying.

So I got my implant right there on the spot.

Looking back on this past year, and really even further, I know that I

was in a state of denial about the size of Texas. I had frequently

been able to count my heartbeat by looking at my chest and felt like

it was working too hard. It just took having a really severe episode

to bring it home. I've had one minor episode since then but came out

of it fast enough to avoid getting zapped.

My biggest problem now is that I am afraid to exercise. It's set to

zap me at 155 and I can get to that rate just hiking or walking the

long park trail. I know I need to get back ointo it and lose some

weight, but that doesn't help me when I'm afraid. I think if I get

zapped once, I'll handle better maybe. I am terribly out of shape

right now. For months last year I was dealing with constant abdominal

pain fron the multiple problems that led to the Hyst. Then I was

healing from the Hyst and now this.

And part of the reason I was denying my own problems is because I have

been very focused on helping my son with his. He is ten and is seeing

a psychiatrist. The diagnosis is some form of autism/asperger's

syndrom and possibly a psychosis and definitely an anxiety disorder.

Yes, he was a mess! He is now taking Risperdal and doing MUCH better.

The fact that this latest episode with me did not make him worse is a

minor miracle!

On the plus side, I have a great husband and two rather helpful

teenagers and I have a great mom who lives next door. We have 8 acres

of mostly wooded property in NE Ohio and for the most part, my life is

good. And I refuse to worry about medical bills which haven't rolled

in yet.

This is getting longer than I intended - - I guess I just needed to

talk. Anyway, here are my questions: My dh and dd's and I are all

HAMs, does anyone have any info about RF interference and ICDs? Are

there other things I should avoid? How long did it take y'all to get

used to the unit enough to sleep well and not wake up when you moved

around feeling like you had a brick in your shoulder?

Thanks for being here guys!

Bridget

Please visit the Zapper homepage at

http://www.ZapLife.org

[Guest guest]

Were glad to have you, Please use us as your resource, and no question is

dumb...or asked to much. I know you will do great, just stay

focused..plan..plan..plan, and you will do just fine.

Our saying on here goes, " If you fail to plan, you plan to fail " Keep that in

mind, and always know before bed the night before what you will be eating, and

what your exercise plan will be. If you do that it will go great.

~

clovermillie <chmurphy@...> wrote:

,

Thanks for the warm welcome. I am so ready to put an end to " dieting "

and make this change a way of life. I'm excited to be part of this

group and already can tell it will provide a wealth of information.

cm

[Guest guest]

In a message dated 6/15/2007 5:42:44 A.M. Pacific Daylight Time, freecyclefool@... writes:

Will post next Monday to let y'all know how much weight I've lost so far.

Don't be a stranger in the meantime, Tara! LOL - you'll get great support and encouragement/motivation here, so hang around with us.

See what's free at AOL.com.

[Guest guest]

" cecile.johns " <cecile.johns@...> wrote: " It's

a challenge to be simple, " he said. " If I'm simple, the better [one]

understands. " If a composition is " too complex, " he said, " the message

is lost. "

Thank you!

Cecile

Hi Cecile

Oh definately, however, there are moments, or a time that are right for all

perfume...... complexity has its rewards so long as the message shines.... just

as the simplest of few fine ingredients carefully placed.....just like a melody

or the complexities of a full orchestra.... I feel to be sensitive to the moment

the time and of course understanding ingredients or what a perfumer is trying

to achieve helps to make choices....whch leads us back to the nose LOL

enjoy your journey ...... and so much to read and enjoy here.....

every good wish, Janita

Janita Haan Natural Perfume http://www.janitahaan.com tba

project http://www.flowersofmyddfaiproject.blogspot.com

blog http://www.janitasattars.blogspot.com

---------------------------------

For ideas on reducing your carbon footprint visit For Good this month.

[Guest guest]

Thanks for the warm welcome everyone. I had sent a couple of messages

the other night but must of been having a blonde or senior moment and

used the cancel button instead of send. Lets see if I get it right

this time.

Annette