Update on Dylan

[Guest guest]

He's doing ok. Everything seems calm for now... occasional joint pain, but

nothing a bit of rest and ibuprofen won't fix. He was clear of Uveitis at his

last check up too. We see the eye doctor in September, and his rheumy in

December unless we have problems.

In other news, I'm almost 8 weeks pregnant, although a scan yesterday put me a

week behind those dates, so we'll see what happens at the next scan (15th

Aug)... baby was tiny, but heart was beating away, which is the important thing

:-)

Clair

From: snooksmama@...

Date: Sun, 3 Aug 2008 17:41:08 -0400

Subject: OK, I need updates!!

Hello all,

I'm always running chronically behind on this list and I was just thinking about

several kids who were struggling lately, and wondering if you could update me??

Aundrea

Hannah

('s daughter)

Jaye

Holly (n's daughter)

Maggie (Diane's daughter)

and everyone else, too! Just label your email UPDATE on ________ and then we can

all keep updated!!

I've been working soooo much (way too much) and life is just a whirlwind. Now

that Rob is moved out and 'in charge' of his own life (LOL) I should have more

time (other than the fact I'm getting ready to pull off wallpaper border and

paint his room!)

Love and hugs

and Rob 19 JAS

A little OT: Update on Rob

> " JRA, List " < >

> Date: Thursday, July 31, 2008, 12:53 PM

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> Rob is moving to his apartment tomorrow! Off-campus housing is

CHEAPER at IUPUI than on-campus (they have no upperclassmen dorms, just

apartments). He lived in the Freshman dorm last year and loved it. He will be

about 15 minutes from campus. He got his job at Target (he's been there 3 years)

transferred and the Target store is only 3 miles from his apartment! He can save

on gas or even ride his bike to work!!

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> We went back to the pediatric cardiologist today. As many of you

> know, he had his pectus repair done last June (his sternum was

> malformed and as he grew, was compressing his heart and lungs).

> It was a very painful operation but with usual Rob style and

> courage, he came thru just fine. He had not been back to the

> cardiologist since before the surgery. The cardiologist was

> impressed with the way his chest came out (it looks beautiful)

> and the best news of all, the mitral regurgitation (valve is

> floppy) is GREATLY improved! So much so that he no longer has to

> take antibiotics before dental procedures!! The surgery helped

> in that it relieved the pressure on his heart which was making a

> minor issue much worse. So he is doing just great! The

> cardiologist does want to see him back next year after they take

> the pectus bar out, to make sure that things stay in place and

> his heart is still doing great once the bar is gone. We were

> both so excited, one less problem

> for dear Rob!!

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> PS I had my big cry last night about him leaving again but this

> news today certainly gave me a new outlook. Besides, he is only

> 2 hours away! I am planning on visiting him next week on my day off!

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