update on Aundrea

[Guest guest]

Hello all,

Aundrea has had a swollen big toe for 3 weeks now. It is more

swollen at night than in the morning and she hasn't been able to bear

weight on it. She walks on the side of her foot. We have tried ice

and heat. Sometimes it is to painful to stand the weight of a sheet

on it.

We met with her dr. yesterday who said that the symptoms all seem

like gout. Of course, given that Aundrea rarely ever consumes

alcohol (just kidding) never consumes alcohol and isnt a high protein

eater nor is she an adult...she doesn't really fit the profile. Of

couse she doesn't seem to fit the profile for anything. Anyway, the

medication they would use would likely worsen her stomach issues that

she has been having related to GERD, so we are going to hold off on

treatment and see if she improves on her own.

Her tmj and joint issues have been more prevalent so her medication

was for fibromylagia was increased and we started her back on

protonix for GERD. Hopefully, this will help everthing to settle

back down.

So, out of curiosity has anyone else had Gout. What type of

treatment if anything help to lessen the pain. And did it reoccur?

(Aundrea 12 fibromyalgia/Gerd/Gout???)

[Guest guest]

,

That you for all the diet information. I am still uncertain about

the diagnosis but I will hang onto this list just to be on the safe

side.

Her toe was never red and shiny like I saw in pictures of others that

had gout. Aundreas toe wans't red or warm to touch. Just swollen

and the pain radiated from her big toe into her in-step.

She is continuing to have toe pain and joint issues elsewhere. Seems

like 3 weeks might also be a long time for an intial gout attack.

thanks again,

(aundrea 12 fibroyalgia)

>

>

> That sounds so painful. If it is gout, OUCH!!

> Even if it isn't, OUCH!

> BUT if it is, people with gout have to avoid certain foods. It is

worth a try to eliminate these foods from her diet:

>

> Some of the common beverages, which gout patients should avoid,

include coffee, tea, cocoa and even chocolate. Some of these

beverages are already part and parcel of ones daily life that it is

seriously a bit different to imagine having to abstain drinking them.

If you think it is really no big deal to indulge in it once in

awhile, you will really have to think twice. Is the pain from a

possible gout attack really going to be worth it from your indulgence?

> The second list of food gout patients should avoid includes

gizzard, kidney, seafood, heart, gravy and red meats. Alcohol should

also be place in the list of food to be avoided. Any form of alcohol

including wine or beer can trigger attacks of gout. It is significant

to memorize the list of food to avoid as it can help to reduce the

amount of gout attacks controlling drugs one will have to take.

> The third and somehow the list which most people consider as the

most healthy choice is simply a bit hard to comprehend why it should

be avoided by gout patients. Peas, spinach, lentils and beans are

vegetables that should be avoided if one is diagnosed with gout.

> It is seriously important for people with gout to bear in mind the

types of food items that are harmful and beneficial to their gout

conditions. Since you now have a better knowledge of the food types

that should be consumed, it might be a good habit of what to buy and

what not to buy when you do your grocery shopping the next time.

>

> ---- Original Message -----

> From: sonia1md <sonia1md@...>

> Date: Friday, July 11, 2008 14:11

> Subject: update on Aundrea

>

>

> > Hello all,

> >

> > Aundrea has had a swollen big toe for 3 weeks now. It is

> > more

> > swollen at night than in the morning and she hasn't been able to

> > bear

> > weight on it. She walks on the side of her foot. We

> > have tried ice

> > and heat. Sometimes it is to painful to stand the weight

> > of a sheet

> > on it.

> >

> > We met with her dr. yesterday who said that the symptoms all

> > seem

> > like gout. Of course, given that Aundrea rarely ever

> > consumes

> > alcohol (just kidding) never consumes alcohol and isnt a high

> > protein

> > eater nor is she an adult...she doesn't really fit the

> > profile. Of

> > couse she doesn't seem to fit the profile for anything.

> > Anyway, the

> > medication they would use would likely worsen her stomach issues

> > that

> > she has been having related to GERD, so we are going to hold off

> > on

> > treatment and see if she improves on her own.

> >

> > Her tmj and joint issues have been more prevalent so her

> > medication

> > was for fibromylagia was increased and we started her back on

> > protonix for GERD. Hopefully, this will help everthing to

> > settle

> > back down.

> >

> > So, out of curiosity has anyone else had Gout. What type

> > of

> > treatment if anything help to lessen the pain. And did it

> > reoccur?

> > (Aundrea 12 fibromyalgia/Gerd/Gout???)

> >

> >

> >

>

>

>

[Guest guest]

Hi maria,

Acutally we saw the pediatrician that has a background in

fibromyalgia. The rheumy has said that from now on she should manage

aundrea's " issues " and he would consult as needed. Otherwise just

see him once or twice a year.

I don't think it's gout. She is now having pain in other toes and

the symptoms seem to be lasting to long. Its really frustrating.

Aundrea has a total lack of trust in doctors, especially since she

believes she has endured 2 years of mtx giving her flu like symptoms

every weekend for a disease that they now say she doesn't have. I

guess I can't blame her for her reservations.

I have read with interest about how Rob is transitioning from a ped

rheumy to adult internist/rheumy. It must be so hard to let them go

and hope that they make the right choices. He may end up not taking

his meds properly or just testing the waters to see if he really

needs them. I pray his medicated remission continues, but if

problems resurface I know you will be right there to help him.

Motherhood is always a challenge and a joy no matter how big are

babies grow. :-)

(Aundrea 12 fibromyalgia)-

-- In , and Schulz

<snooksmama@...> wrote:

>

> I'd have to agree with you. Redness is a hallmark sign of gout. It

also seems pretty unlikely in someone Aundrea's age. I'm so glad that

you have a rheumy you feel comfortable with now. I hope that things

improve, or at least, that these new pains will accomplish something

positive for her,that is, aid in a diagnosis. Blessings,

> and Rob 19 JAS

>

> update on Aundrea

> > >

> > >

> > > > Hello all,

> > > >

> > > > Aundrea has had a swollen big toe for 3 weeks now. It

> > is

> > > > more

> > > > swollen at night than in the morning and she hasn't been

> > able to

> > > > bear

> > > > weight on it. She walks on the side of her foot.

> > We

> > > > have tried ice

> > > > and heat. Sometimes it is to painful to stand the

> > weight

> > > > of a sheet

> > > > on it.

> > > >

> > > > We met with her dr. yesterday who said that the symptoms all

> > > > seem

> > > > like gout. Of course, given that Aundrea rarely ever

> > > > consumes

> > > > alcohol (just kidding) never consumes alcohol and isnt a

> > high

> > > > protein

> > > > eater nor is she an adult...she doesn't really fit the

> > > > profile. Of

> > > > couse she doesn't seem to fit the profile for

> > anything.

> > > > Anyway, the

> > > > medication they would use would likely worsen her stomach

> > issues

> > > > that

> > > > she has been having related to GERD, so we are going to hold

> > off

> > > > on

> > > > treatment and see if she improves on her own.

> > > >

> > > > Her tmj and joint issues have been more prevalent so her

> > > > medication

> > > > was for fibromylagia was increased and we started her back

> > on

> > > > protonix for GERD. Hopefully, this will help everthing

> > to

> > > > settle

> > > > back down.

> > > >

> > > > So, out of curiosity has anyone else had Gout. What

> > type

> > > > of

> > > > treatment if anything help to lessen the pain. And did

> > it

> > > > reoccur?

> > > > (Aundrea 12 fibromyalgia/Gerd/Gout???)

> > > >

> > > >

> > > >

> > >

> > >

> > >

[Guest guest]

Hi

I agree with you. I don't think it would go on this long if it were

gout and I think she would have more discoloration and the pain would

be present through out the entire day and not come and go as much as

it has with aundrea. She does have pain where its to intense for the

ice pack or bed sheet but there are other times that it's not so

bad. Its worse after she exercises and it's not discolored. I think

it's related to jra which of course now they say is fibro.

We can't do the indomethacin due to her GERD. The alleve has already

caused her GERD to flare up.

Today she is having a fibro day. Sore muscles and no energy. I have

found that when doctors can't prescribe what they normally due for

treatment then you are just left in pain. Aundrea can either take

NSAIDS and deal with nausea and stomach pain or she can not take them

and deal with the continued joint pain.

I guess it just feels like there aren't many choices some days and it

gets pretty frustrating.

Thanks for the info.

sonia (aundrea 12 fibro)-

-- In , " Tepper, Michele " <MTepper@...> wrote:

>

> HI, . Just jumping in - my hubby has gout. When he has a

flare, the

> toe is always hot and red. It feels broken. You cannot even put a

bed

> sheet on it without incredible pain. I doubt if she could last this

long

> with the pain I have seen. It gets worse within days to where you

cannot

> walk. My husband has had two true flares, and when he starts to

feel the

> pain (it is actually crystals forming in the toe area from uric

acid, so

> it feels like glass) coming on, he will drink large quantities of

100%

> cranberry juice to try to cut off a flare. It does work for him. I

have

> also heard of drinking cherry juice (again 100%). The common

treatment

> is indomethican (sp?) and it does work quite quickly usually.

>

> To be honest, Aundrea sounds more like the swollen toe that Chris

> sometimes gets. It swells like in gout, but none of the extreme

redness

> or intense severe pain. Hope this helps, Michele ( 21,

spondy)

>

>

>

>

>

> ________________________________

>

> From: [mailto: ] On

> Behalf Of and Schulz

> Sent: Sunday, July 13, 2008 8:40 AM

>

> Subject: Re: Re: update on Aundrea

>

>

>

> I'd have to agree with you. Redness is a hallmark sign of gout. It

also

> seems pretty unlikely in someone Aundrea's age. I'm so glad that you

> have a rheumy you feel comfortable with now. I hope that things

improve,

> or at least, that these new pains will accomplish something

positive for

> her,that is, aid in a diagnosis. Blessings,

> and Rob 19 JAS

>

> update on Aundrea

> > > <mailto: %

40>

> > >

> > > > Hello all,

> > > >

> > > > Aundrea has had a swollen big toe for 3 weeks now. It

> > is

> > > > more

> > > > swollen at night than in the morning and she hasn't been

> > able to

> > > > bear

> > > > weight on it. She walks on the side of her foot.

> > We

> > > > have tried ice

> > > > and heat. Sometimes it is to painful to stand the

> > weight

> > > > of a sheet

> > > > on it.

> > > >

> > > > We met with her dr. yesterday who said that the symptoms all

> > > > seem

> > > > like gout. Of course, given that Aundrea rarely ever

> > > > consumes

> > > > alcohol (just kidding) never consumes alcohol and isnt a

> > high

> > > > protein

> > > > eater nor is she an adult...she doesn't really fit the

> > > > profile. Of

> > > > couse she doesn't seem to fit the profile for

> > anything.

> > > > Anyway, the

> > > > medication they would use would likely worsen her stomach

> > issues

> > > > that

> > > > she has been having related to GERD, so we are going to hold

> > off

> > > > on

> > > > treatment and see if she improves on her own.

> > > >

> > > > Her tmj and joint issues have been more prevalent so her

> > > > medication

> > > > was for fibromylagia was increased and we started her back

> > on

> > > > protonix for GERD. Hopefully, this will help everthing

> > to

> > > > settle

> > > > back down.

> > > >

> > > > So, out of curiosity has anyone else had Gout. What

> > type

> > > > of

> > > > treatment if anything help to lessen the pain. And did

> > it

> > > > reoccur?

> > > > (Aundrea 12 fibromyalgia/Gerd/Gout???)

> > > >

> > > >

> > > >

> > >

> > >

> > >

[Guest guest]

,

It does not sound like gout at all! What are you planning to do next? I can't

even begin to imagine how Aundrea feels. The doctors have not worked very hard

for her and did nothing to instill any kind of trust. She just keeps getting

knocked down, over and over. But, like you said, you and I will always be right

there for them, no matter what, to help them pick up the pieces. I pray that

Aundrea finds a place of peace and no pain very, very soon.

and Rob 19 JAS

>

>> needs them. I pray his medicated remission continues, but

> if

> problems resurface I know you will be right there to help

> him.

> Motherhood is always a challenge and a joy no matter how big are

> babies grow. :-)

>

> (Aundrea 12 fibromyalgia)-

>

>

> -- In , and Schulz

> <snooksmama@...> wrote:

> >

> > I'd have to agree with you. Redness is a hallmark sign of

> gout. It

> also seems pretty unlikely in someone Aundrea's age. I'm so glad

> that

> you have a rheumy you feel comfortable with now. I hope that

> things

> improve, or at least, that these new pains will accomplish

> something

> positive for her,that is, aid in a diagnosis. Blessings,

> > and Rob 19 JAS

> >

> > update on Aundrea

> > > >

> > > >

> > > > > Hello all,

> > > > >

> > > > > Aundrea has had a swollen big toe for 3 weeks now.

> It

> > > is

> > > > > more

> > > > > swollen at night than in the morning and she hasn't been

> > > able to

> > > > > bear

> > > > > weight on it. She walks on the side of her

> foot.

> > > We

> > > > > have tried ice

> > > > > and heat. Sometimes it is to painful to stand the

> > > weight

> > > > > of a sheet

> > > > > on it.

> > > > >

> > > > > We met with her dr. yesterday who said that the symptoms

> all

> > > > > seem

> > > > > like gout. Of course, given that Aundrea rarely

> ever

> > > > > consumes

> > > > > alcohol (just kidding) never consumes alcohol and isnt a

> > > high

> > > > > protein

> > > > > eater nor is she an adult...she doesn't really fit the

> > > > > profile. Of

> > > > > couse she doesn't seem to fit the profile for

> > > anything.

> > > > > Anyway, the

> > > > > medication they would use would likely worsen her

> stomach

> > > issues

> > > > > that

> > > > > she has been having related to GERD, so we are going to

> hold

> > > off

> > > > > on

> > > > > treatment and see if she improves on her own.

> > > > >

> > > > > Her tmj and joint issues have been more prevalent so her

> > > > > medication

> > > > > was for fibromylagia was increased and we started her

> back

> > > on

> > > > > protonix for GERD. Hopefully, this will help

> everthing

> > > to

> > > > > settle

> > > > > back down.

> > > > >

> > > > > So, out of curiosity has anyone else had Gout.

> What

> > > type

> > > > > of

> > > > > treatment if anything help to lessen the pain. And

> did

> > > it

> > > > > reoccur?

> > > > > (Aundrea 12 fibromyalgia/Gerd/Gout???)

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

[Guest guest]

Maira,

I don't know what to do. Aundrea has been in a very bad flare for

the past couple of days. She is having all over muscle and joint

pain. Her joint pain in her feet and jaw is quite severe. Her

fatigue is horrible. She hasn't been out of her pajamas for 2 days

and just feels exhausted. On top of that her GERD has been really

bad and she was crying last night from it. I wonder if there is more

of a connection to her stomach issues than what we have thought?

I feel like noone ever looks at the whole picture with Aundrea. It's

alwasy just a dr visit on that particular day, looking at that one

particular concern. I don't know that anyone has ever tried to

really research the entire scope of her symptoms and come up with a

theory as to what is wrong with her.

I still feel she has fibromayalgia but I definitely don't think it's

her only problem.

Maybe I should revisit the idea of Mayo clinic?

(Aundrea 12 fibromyalgia)-

-- In , and Schulz

<snooksmama@...> wrote:

>

> ,

> It does not sound like gout at all! What are you planning to do

next? I can't even begin to imagine how Aundrea feels. The doctors

have not worked very hard for her and did nothing to instill any kind

of trust. She just keeps getting knocked down, over and over. But,

like you said, you and I will always be right there for them, no

matter what, to help them pick up the pieces. I pray that Aundrea

finds a place of peace and no pain very, very soon.

> and Rob 19 JAS

> >

> >> needs them. I pray his medicated remission continues, but

> > if

> > problems resurface I know you will be right there to help

> > him.

> > Motherhood is always a challenge and a joy no matter how big are

> > babies grow. :-)

> >

> > (Aundrea 12 fibromyalgia)-

> >

> >

> > -- In , and Schulz

> > <snooksmama@> wrote:

> > >

> > > I'd have to agree with you. Redness is a hallmark sign of

> > gout. It

> > also seems pretty unlikely in someone Aundrea's age. I'm so glad

> > that

> > you have a rheumy you feel comfortable with now. I hope that

> > things

> > improve, or at least, that these new pains will accomplish

> > something

> > positive for her,that is, aid in a diagnosis. Blessings,

> > > and Rob 19 JAS

> > >

> > > update on Aundrea

> > > > >

> > > > >

> > > > > > Hello all,

> > > > > >

> > > > > > Aundrea has had a swollen big toe for 3 weeks now.

> > It

> > > > is

> > > > > > more

> > > > > > swollen at night than in the morning and she hasn't been

> > > > able to

> > > > > > bear

> > > > > > weight on it. She walks on the side of her

> > foot.

> > > > We

> > > > > > have tried ice

> > > > > > and heat. Sometimes it is to painful to stand the

> > > > weight

> > > > > > of a sheet

> > > > > > on it.

> > > > > >

> > > > > > We met with her dr. yesterday who said that the symptoms

> > all

> > > > > > seem

> > > > > > like gout. Of course, given that Aundrea rarely

> > ever

> > > > > > consumes

> > > > > > alcohol (just kidding) never consumes alcohol and isnt a

> > > > high

> > > > > > protein

> > > > > > eater nor is she an adult...she doesn't really fit the

> > > > > > profile. Of

> > > > > > couse she doesn't seem to fit the profile for

> > > > anything.

> > > > > > Anyway, the

> > > > > > medication they would use would likely worsen her

> > stomach

> > > > issues

> > > > > > that

> > > > > > she has been having related to GERD, so we are going to

> > hold

> > > > off

> > > > > > on

> > > > > > treatment and see if she improves on her own.

> > > > > >

> > > > > > Her tmj and joint issues have been more prevalent so her

> > > > > > medication

> > > > > > was for fibromylagia was increased and we started her

> > back

> > > > on

> > > > > > protonix for GERD. Hopefully, this will help

> > everthing

> > > > to

> > > > > > settle

> > > > > > back down.

> > > > > >

> > > > > > So, out of curiosity has anyone else had Gout.

> > What

> > > > type

> > > > > > of

> > > > > > treatment if anything help to lessen the pain. And

> > did

> > > > it

> > > > > > reoccur?

> > > > > > (Aundrea 12 fibromyalgia/Gerd/Gout???)

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

[Guest guest]

Thanks e for you input. I am going to look into it further.

I think if we had enough doctors look at aundrea and all of her

symptoms they would be able to figure things out.

It's such a rare thing for a doctor to sit down and really take a

detailed history. I think they more or less just go with what the

previous doctor thought or suggested and then move on to new drugs.

(aundrea 12 fibromyalgia)-

-- In , bound for london <boundforlondon@...>

wrote:

>

> ,

>

> I highly recommend a trip to Mayo! A friend had some terrible

seizures and episodes of fainting and much more. She went to many

doctors and they couldn't find a good plan. They tried so much, she

was a mess. Finally someone suggested Mayo and it took a bit to get

it all coordinated but she went. They were not going to send her home

until she had all the different episodes and problems that she

described. Once they were satisfied the group of docs got together

and found a diagnosis--something no one else had even mentioned. And

they got her a perfect treatment plan. It sounds like this would be

of benefit to your and Aundrea. It is worth a try. Because she has

gone through so much and yes the treatments have helped some things

but there is still too much going on. I would try it if I were you.

Good luck!

>

> e, mom to 'joe " 21 poly/lupus

>

>

>

>

>

>

[Guest guest]

That is what was so wonderful about Mayo for her. So many docs look at one

symptom and just treat that. I'll give you another example--my husband has

always had horribly itchy feet. I mean horrible to the point he is scratching

them raw. He went to the doctor. They gave him creams. They didn't work. They

sent him to the dermatologist--they tried other treatments that worked so so.

Fast forward to several years later, multiple docs, tests etc. It turns out he

has a liver disease and the bile salts that build up are excreted in the sweat

and his feet are always in shoes and socks (he never goes without except to bed)

and so they would itch. He has a complicated disease but finally there is a

medicine to treat it and when his liver levels are under control the feet don't

itch. So finally there was a solution for the feet but it has nothing to do with

his feet or skin--it is an autoimmune disease. So, yeah, many times they are

treating a symptom and not the

disease it seems. I hope you find some answers to help her and soon.

 

e

>

> ,

>

> I highly recommend a trip to Mayo! A friend had some terrible

seizures and episodes of fainting and much more. She went to many

doctors and they couldn't find a good plan. They tried so much, she

was a mess. Finally someone suggested Mayo and it took a bit to get

it all coordinated but she went. They were not going to send her home

until she had all the different episodes and problems that she

described. Once they were satisfied the group of docs got together

and found a diagnosis--somethin g no one else had even mentioned. And

they got her a perfect treatment plan. It sounds like this would be

of benefit to your and Aundrea. It is worth a try. Because she has

gone through so much and yes the treatments have helped some things

but there is still too much going on. I would try it if I were you.

Good luck!

>

> e, mom to 'joe " 21 poly/lupus

>

>

>

>

>

>