Re: HOW TO DISGUISE TASTE OF ORAL METHOTREXATE

September 1, 2008

There is a company called flavorx that flavors kids medicines. I know

walgreens offers the service, but they also sell a home flavoring

kit. They have all kinds of flavors (bubblegum, cherry, grape, etc).

It really worked for my daughter when she had to get her tonsils out

as the pain medication made her retch everytime. Someone suggested

Walgreens flavoring and it worked.

(, 5, pauci)

On Aug 31, 2008, at 7:37 PM, rade_milena wrote:

> HI ALL, HAVENT BEEN ON HERE FOR A WHILE AS HAVING GONE THRU HELL FOR A

> YEAR MY NOW NEARLY 3 YEAR OLD DAUGHTER WAS PUT ON ORAL METHOTREXATE

> ONCE A WEEK FOR HER JUVENILE ARTHRITIS. IT SEEMS TO BE WORKING REALLY

> WELL FOR HER, SHE HAS BEEN WITHOUT A FLARE FOR 4 MONTHS NOW WHICH IS A

> RECORD, BUT AS THE WEEKS GO ON AND SHE GETS BIGGER AND FEISTIER SHE IS

> REFUSING TO TAKE IT, MAINLY BECAUSE IT TASTES AWFUL. I AM HAVING TO

> MIX IT WITH SOMETHING TO GET HER TO TAKE IT BUT AM STRUGGLING, IF SHE

> CAN STILL TASTE IT SHE REFUSES TO TAKE ANY MORE AND THEN I DONT KNOW

> HOW MUCH SHE HAS HAD. I HAVE BEEN TOLD SHE CANT HAVE IT WITH FRUIT

> JUICE OR MILK, HAVE TRIED GIVING IT WITH COKE (WHICH I WOULD NORMALLY

> NEVER GIVE HER) BUT THAT MADE THE TASTE WORSE AND SHE SCREAMED AND

> REFUSED TO HAVE IT. ANY IDEAS WOULD BE APPRECIATED, ELSE I WILL HAVE

> TO CONSIDER SWITCHING TO TABLETS WHICH I'M WARY ABOUT AS SHE WOULD

> HAVE TO HAVE 3 AT A TIME, DOES ANYONE KNOW IF THEY TASTE AWFUL TOO? I

> NEED TO SORT THIS OUT BECAUSE IT IS WORKING FOR HER AND SHE HAS TO

> TAKE IT I HAVE TRIED REASONING WITH HER AND SHE UNDERSTANDS THAT SHE

> NEEDS IT BUT IT TASTES SO BAD IT MAKES HER RETCH. THE LAST THING I

> WANT IS TO HAVE TO TAKE HER TO HOSPITAL EVERY WEEK FOR INJECTIONS BUT

> THAT IS WHAT I WILL HAVE TO DO IF I CANT GET HER TO KEEP TAKING THE

> SYRUP, HELP ANYONE PLEASE?!

>

September 1, 2008

thanks for the advice will make a note of those for the future-very

clever idea, dont think it exists in the uk, have just got off the

phone with the hospital who want to swap her to tablets partly because

of the fact we cant be sure how much medicine she is getting and

partly because of the toxicity and the fact that she is spilling it on

me, herself etc and i have another child to consider. so fingers

crossed she will take the tablets because the alternatives dont bear

thinking about. thanks again.

>

> > HI ALL, HAVENT BEEN ON HERE FOR A WHILE AS HAVING GONE THRU HELL FOR A

> > YEAR MY NOW NEARLY 3 YEAR OLD DAUGHTER WAS PUT ON ORAL METHOTREXATE

> > ONCE A WEEK FOR HER JUVENILE ARTHRITIS. IT SEEMS TO BE WORKING REALLY

> > WELL FOR HER, SHE HAS BEEN WITHOUT A FLARE FOR 4 MONTHS NOW WHICH IS A

> > RECORD, BUT AS THE WEEKS GO ON AND SHE GETS BIGGER AND FEISTIER SHE IS

> > REFUSING TO TAKE IT, MAINLY BECAUSE IT TASTES AWFUL. I AM HAVING TO

> > MIX IT WITH SOMETHING TO GET HER TO TAKE IT BUT AM STRUGGLING, IF SHE

> > CAN STILL TASTE IT SHE REFUSES TO TAKE ANY MORE AND THEN I DONT KNOW

> > HOW MUCH SHE HAS HAD. I HAVE BEEN TOLD SHE CANT HAVE IT WITH FRUIT

> > JUICE OR MILK, HAVE TRIED GIVING IT WITH COKE (WHICH I WOULD NORMALLY

> > NEVER GIVE HER) BUT THAT MADE THE TASTE WORSE AND SHE SCREAMED AND

> > REFUSED TO HAVE IT. ANY IDEAS WOULD BE APPRECIATED, ELSE I WILL HAVE

> > TO CONSIDER SWITCHING TO TABLETS WHICH I'M WARY ABOUT AS SHE WOULD

> > HAVE TO HAVE 3 AT A TIME, DOES ANYONE KNOW IF THEY TASTE AWFUL TOO? I

> > NEED TO SORT THIS OUT BECAUSE IT IS WORKING FOR HER AND SHE HAS TO

> > TAKE IT I HAVE TRIED REASONING WITH HER AND SHE UNDERSTANDS THAT SHE

> > NEEDS IT BUT IT TASTES SO BAD IT MAKES HER RETCH. THE LAST THING I

> > WANT IS TO HAVE TO TAKE HER TO HOSPITAL EVERY WEEK FOR INJECTIONS BUT

> > THAT IS WHAT I WILL HAVE TO DO IF I CANT GET HER TO KEEP TAKING THE

> > SYRUP, HELP ANYONE PLEASE?!

> >

>

September 1, 2008

They started my dd on the oral as well. She was just about the same

way

as your dd too. I don't want to discourage you but I wanted to tell

you

that the tablets were worse for her. The taste is terrible and it is

hard to get a 3yr old to take tablets. I hope it turns out okay for

you. I am glad she has only 3 to take, my dd had to take 8 and that

was

a wreck from the beginning.

Try to keep the experience as relaxed as possible. Do you have any

meds

you can take at the same time? If not a baby asprin probably won't

hurt you, or there could be some tic,tac; placebos; or herbals you

could take.

This always helped us but we didn't think about it for years. I wish

we

had.

My dd is now 11 and she's been on tablets once again in the last

year.

She prefers the shots by far. If I do it fast and don't allow her

much

time to think about it she won't be sick. We always know she got all

the med. She says it doesn't make her tummy quite as sick with the

shot

either.

Lorie and Liberty 11yrs (PolyJIA and Uveitis since 3yrs)

>

> thanks for the advice will make a note of those for the future-very

> clever idea, dont think it exists in the uk, have just got off the

> phone with the hospital who want to swap her to tablets partly

because

> of the fact we cant be sure how much medicine she is getting and

> partly because of the toxicity and the fact that she is spilling it

on

> me, herself etc and i have another child to consider. so fingers

> crossed she will take the tablets because the alternatives dont bear

> thinking about. thanks again. --- In ,

September 2, 2008

hi, the one thing that this experience has taught me is that life is

never straight forward. my main concern was that the methotrexate

would work without any harmful side effects. Marija has been well now

for 4 months which is a record and she is doing so well it makes me

cry with joy and relief, and then she stops wanting to take the stuff

and there is nothing more stubborn thn a nearly 3 year old. The

hospital is pretty insistant that i try the tablets i have no choice

really until i at least try they wont prescribe any more oral and i

only have about one dose left in the bottle so cross everything for me

for friday night and thanks, will let you know how we get on, best

wishes, milena

> >

> > thanks for the advice will make a note of those for the future-very

> > clever idea, dont think it exists in the uk, have just got off the

> > phone with the hospital who want to swap her to tablets partly

> because

> > of the fact we cant be sure how much medicine she is getting and

> > partly because of the toxicity and the fact that she is spilling it

> on

> > me, herself etc and i have another child to consider. so fingers

> > crossed she will take the tablets because the alternatives dont bear

> > thinking about. thanks again. --- In ,

>

September 2, 2008

Quick suggestion on the tablets (which you may already know about) - try

putting them in a spoonful of something she may like to eat, such as ice

cream, applesauce, puddings, things that are a bit thick and she won't

really be inclined to chew. Luckily the pills are pretty tiny so that

might work. I used to do this for my son with his prednisone, until he

was able to swallow pills.

Good luck, let us know how it goes. Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of rade_milena

Sent: Tuesday, September 02, 2008 4:54 AM

Subject: Re: HOW TO DISGUISE TASTE OF ORAL METHOTREXATE