Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Welcome to the group, le! This group has been trying out simple DC battery current on various things and finding it useful. It started with a research project at Einstein College of Medicine in NYC, in which HIV was inactivated by simple DC current, just like we are doing here with plain old batteries. We've lowered the viral load on some with this. It's got a nice history of results without problems. A wide variety of germs seem to go 'quiet' or inactive using this, resulting in the infections clearing up without anti-biotics or with minimal assistance from other things. It could be the ticket for MRSA, since the infection is local (at first) and it can be found on the body easily. To use this, see the photos section and the files section. In photos the Apprentic Godzilla device is simplest to make and can just be applied to the area. You put an electrode on each side of the infection and move them around to pass the current through the area. If it is " too much " try adding a bit of wetted cloth between the battery terminal and one wire to act as a resistance. Usually that's not needed but some may be very sensitive to electrical energy, so go easy. More cloth resistance will mean lower power. 20 minutes a couple times a day like this, and see if it helps. Let us know how you do, since we want to know if this is helpful or not. Thx, bG > > > Hey everyone, Im new to this group and would love to find out more > about about the subject of the group. I have a son that has MRSA and > I also have a support group for people with MRSA and anyone with a > loved one with mrsa. We are up to date on any and all news. > > le > MRSA_SUPPORT/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Welcome to the group, le! This group has been trying out simple DC battery current on various things and finding it useful. It started with a research project at Einstein College of Medicine in NYC, in which HIV was inactivated by simple DC current, just like we are doing here with plain old batteries. We've lowered the viral load on some with this. It's got a nice history of results without problems. A wide variety of germs seem to go 'quiet' or inactive using this, resulting in the infections clearing up without anti-biotics or with minimal assistance from other things. It could be the ticket for MRSA, since the infection is local (at first) and it can be found on the body easily. To use this, see the photos section and the files section. In photos the Apprentic Godzilla device is simplest to make and can just be applied to the area. You put an electrode on each side of the infection and move them around to pass the current through the area. If it is " too much " try adding a bit of wetted cloth between the battery terminal and one wire to act as a resistance. Usually that's not needed but some may be very sensitive to electrical energy, so go easy. More cloth resistance will mean lower power. 20 minutes a couple times a day like this, and see if it helps. Let us know how you do, since we want to know if this is helpful or not. Thx, bG > > > Hey everyone, Im new to this group and would love to find out more > about about the subject of the group. I have a son that has MRSA and > I also have a support group for people with MRSA and anyone with a > loved one with mrsa. We are up to date on any and all news. > > le > MRSA_SUPPORT/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 I should explain that the group has not proven anything, and the simple devices are such that anyone can do this without depending on someone else to make and market devices. That is a legal issue, selling these, and someone has been jailed for doing so recently. So, this design gives a self-solution that is every bit as good as anything made by anyone. You can do this and find out for yourself if it is helpful. My own opinion under the 1st amendment, is that it will help--immensely. But I'm certainly no doctor, and not giving advice of a medical quality to anyone here. I do hope you try this out, though.. it could mean a lot for a whole lot of people, both close and far away from us. bG > > > > > > Hey everyone, Im new to this group and would love to find out more > > about about the subject of the group. I have a son that has MRSA > and > > I also have a support group for people with MRSA and anyone with a > > loved one with mrsa. We are up to date on any and all news. > > > > le > > MRSA_SUPPORT/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 I should explain that the group has not proven anything, and the simple devices are such that anyone can do this without depending on someone else to make and market devices. That is a legal issue, selling these, and someone has been jailed for doing so recently. So, this design gives a self-solution that is every bit as good as anything made by anyone. You can do this and find out for yourself if it is helpful. My own opinion under the 1st amendment, is that it will help--immensely. But I'm certainly no doctor, and not giving advice of a medical quality to anyone here. I do hope you try this out, though.. it could mean a lot for a whole lot of people, both close and far away from us. bG > > > > > > Hey everyone, Im new to this group and would love to find out more > > about about the subject of the group. I have a son that has MRSA > and > > I also have a support group for people with MRSA and anyone with a > > loved one with mrsa. We are up to date on any and all news. > > > > le > > MRSA_SUPPORT/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2006 Report Share Posted February 14, 2006 glad to have you join the group. i am sorry to hear about your mother. there are a bunch of very helpful people on this list i am sure you will find the support you are looking for. evelynterri <Nurse_Terri99@...> wrote: im a 39yr old mother who just over 5yrs lost my parnetal rights to my kids i lost all my rightts and just found out my mother has cancer just looking for a few friends i also suffer from depresion bipolar~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2006 Report Share Posted December 7, 2006 Hi Verdaeni, I think you will find this group to be helpful. No one here will roll their eyes. Everyone here has chronic problems themselves so they understand. I've been here a little while and I don't know of any rules except common courtesy. You probably got some files when you joined. Scan through those. There are a lot of resources here too. I look forward to getting to know you. ; ) Willow P.S. Most of us have a 'signature' that summarizes our ailments so we can each remember who's dealing with what. --- kate olachlan <Verdaeni@...> wrote: > i am here looking for a support group, support for > me and that i may > possibly help others. its very difficult to talk > about my life to > non ill people without bumming them out. i hope i > can share here > without bringing anyone down. > > i have been sick for five years now with 90% > paralyzation of my > diaphram. i have about half my lungs left after the > pneumonia that > the paralyzed diaphram gave me, which is actually > how we found the > original problem of the diaphram. this disease, > which comes vaguely > under the term 'parsonage and turner syndrome' > leaves me very tired > all the time and also has nerve pain. its hard to > get out, i live > alone because i have no family, im 50 years old, > female, and i hope > to get to know you all better. > > my condition is permanent and im trying to build a > new life. any > help that you all can do for me would be greatly > appreciated. please > feel free to let me know if there are any common > rules to this > discussion that i might break until i find out what > the common > standards of behavior is. > > > Verdaeni > > > My Challenges: Scoliosis, Radiation Injury to my Brain, Ministrokes, Memory Problems, Cluster Migraine Headaches, Osteoporosis with Multiple Broken Bones, Fibromyalgia, Chronic Pain and Fatigue, Depression, PTSD, Bipolar Type II Rapid Cycling, Anxiety, Chronic Insomnia, Sleep Apnea, Spinal Stenosis, TMJ injury, Thyroid Cancer X3, Skin Cancer, Loss of Salivary Glands due to Thyroid Radiation Tx, Teeth Destruction with Loss of Salivary Glands, Obesity, Restless Leg Syndrome, Alpha Wave Intrusion on Delta Sleep plus many other Sleep Anomalies, vonWillebrand's disease (genetic bleeding disorder), Hypertension, High Cholesterol and Triglycerides, Chronic Allergies, Asthma, Peripheral Neuropathy, Chronic Gastritis, GERD, Adult ADD, Overactive Bladder, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 thankyou for responding. is there a way to set the signature in here so i dont have to copy/paste it out of a document, or have it show up in other groups? i see a lot of things in common.. i have allergies, sinus infections, acid reflux, water retention as well. im realizing this group could help me out with some of my 'smaller' problems as well. Verdaeni > > Hi Verdaeni, > > I think you will find this group to be helpful. No one > here will roll their eyes. Everyone here has chronic > problems themselves so they understand. > > I've been here a little while and I don't know of any > rules except common courtesy. You probably got some > files when you joined. Scan through those. There are a > lot of resources here too. > > I look forward to getting to know you. > > ; ) > > Willow > > P.S. > Most of us have a 'signature' that summarizes our > ailments so we can each remember who's dealing with > what. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 Kate, Welcome first of all.. I am saddened to hear of all you suffer with, it must be hard to get by day to day... I found this group to be great.. I had to leave for a bit because I burned myself out working and basically crashed in a ball of pain.. But now I have given up working, am on disability and have lost about 35% use of my back and 25% of legs and I just couldnt cope even though it was a work at home job in front of the computer... I am Heidi and suffer from epilepsy, fibromyalgia, rheumatoid arthritis, ankylosing spondylitis, shoulder impingement, bursitis, plantar faciitis, mentally I suffer from DID, BPD, PTSD, BP and Schizoid.. This group is great that is why I came back, everyone is so supportive and you never feel like a newbie, you just walk on in and become part of the group, not many groups are like that... Some of the members are sure to be able to point you in the right direction, I live in Australia so the rules are a bit different here. I am 33 and on disability and live with 63, we have a big age difference but it does not bother us... Gentle Hugs Heidi DUNGEON MIZTREZZ aka Heidiwww.geocities.com/heidijayesplace/http://blog.360./kookaburradezignsLook, Listen, but most of all Believe.+=<^^>=++=<^^>=++=<^^>=++=<^^>=+ hello im new i am here looking for a support group, support for me and that i may possibly help others. its very difficult to talk about my life to non ill people without bumming them out. i hope i can share here without bringing anyone down.i have been sick for five years now with 90% paralyzation of my diaphram. i have about half my lungs left after the pneumonia that the paralyzed diaphram gave me, which is actually how we found the original problem of the diaphram. this disease, which comes vaguely under the term 'parsonage and turner syndrome' leaves me very tired all the time and also has nerve pain. its hard to get out, i live alone because i have no family, im 50 years old, female, and i hope to get to know you all better.my condition is permanent and im trying to build a new life. any help that you all can do for me would be greatly appreciated. please feel free to let me know if there are any common rules to this discussion that i might break until i find out what the common standards of behavior is.Verdaeni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 welcome to the group. everyone is welcome here. there are ill people, people who are care givers or family members of someone who is ill. my son has cystic fibrosis and asthma and i am newly diagnosed with fibromyalgia. this is a very welcoming group that gives tons of support to all. hope to hear from you again soon. evelynkate olachlan <Verdaeni@...> wrote: i am here looking for a support group, support for me and that i may possibly help others. its very difficult to talk about my life to non ill people without bumming them out. i hope i can share here without bringing anyone down.i have been sick for five years now with 90% paralyzation of my diaphram. i have about half my lungs left after the pneumonia that the paralyzed diaphram gave me, which is actually how we found the original problem of the diaphram. this disease, which comes vaguely under the term 'parsonage and turner syndrome' leaves me very tired all the time and also has nerve pain. its hard to get out, i live alone because i have no family, im 50 years old, female, and i hope to get to know you all better.my condition is permanent and im trying to build a new life. any help that you all can do for me would be greatly appreciated. please feel free to let me know if there are any common rules to this discussion that i might break until i find out what the common standards of behavior is.Verdaeni Need a quick answer? Get one in minutes from people who know. Ask your question on Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 Someone with AOL know how to do the signature? makes it easy. You have your signature typed out and it only goes on the email when you check a box unless you have it set to always go on the email. I just don't know AOL, but I'll bet someone here does. ; ) Willow --- kate olachlan <Verdaeni@...> wrote: > thankyou for responding. is there a way to set the > signature in here > so i dont have to copy/paste it out of a document, > or have it show up > in other groups? i see a lot of things in common.. > i have > allergies, sinus infections, acid reflux, water > retention as well. > im realizing this group could help me out with some > of my 'smaller' > problems as well. > > Verdaeni > > > > > > Hi Verdaeni, > > > > I think you will find this group to be helpful. No > one > > here will roll their eyes. Everyone here has > chronic > > problems themselves so they understand. > > > > I've been here a little while and I don't know of > any > > rules except common courtesy. You probably got > some > > files when you joined. Scan through those. There > are a > > lot of resources here too. > > > > I look forward to getting to know you. > > > > ; ) > > > > Willow > > > > P.S. > > Most of us have a 'signature' that summarizes our > > ailments so we can each remember who's dealing > with > > what. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hi my name is , I have 2 children, Jordon is 8 and is 7, we live in Utah. In June 2007 my son Jordon got a sceptic knee. It was very swollen and infected, he had to have 3 surgeries and a PICC line to fix this, we were in the hospital for 2 weeks. The Rhumatology team came in and said that they would be keeping an eye on Jordon for the next 6mths to see if anything else would swell up. They put him on naproxn 5mths later his other knee swelled up, very large. So then they Dx'd Jordon with JRA. Then our doctor had us go see our optho to check his eyes. Which are fine so far, we see the optho every 3mths now. 2mths later his ankles swelled up and Dr. Zeft had us do steroid injections in both knees and both ankles. In May we changed meds to Meloxicam. His legs and ankles are in pain almost every day, and they are slightly swollen. And whenever it gets cold here he gets worse. Jordon also has Type 1 Diabetes Mellitus, Epilepsy, Sensory integration disorder, and developmental delay. His sister has a Cleft mitral valve, severe epilepsy, and developmental delay. Do you guys have any suggestions for me on how to lessen my son's pain? this med doesn't seem to be working. , Bryon, Jordon 8, 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hello- Sounds like you have a lot of challenges going on. Is sensory integration disorder along the Autistic Spectrum? I only ask because there is a connection between Pervasive Developmental Disorders and Autoimmune diseases like JRA. Not like knowing that actually does anything to Help you personally but just something interesting. Anyways, they might need to treat his JRA more aggressively but in the mean time, one thing that helps a lot is warm baths... swimming... water therapy.... really helps with range of motion, and relaxing the joints, etc.... Baths in the morning, and before bed can really help with stiffness and sleep. Massage is really great too and many people like ice or heat packs too. I hope that can help some... Issadora On Wed, Oct 15, 2008 at 8:03 PM, myshel1_01 <Mathena@...>wrote: > Hi my name is , > I have 2 children, Jordon is 8 and is 7, we live in Utah. > In June 2007 my son Jordon got a sceptic knee. It was very swollen and > infected, he had to have 3 surgeries and a PICC line to fix this, we > were in the hospital for 2 weeks. > The Rhumatology team came in and said that they would be keeping an > eye on Jordon for the next 6mths to see if anything else would swell > up. They put him on naproxn > 5mths later his other knee swelled up, very large. So then they Dx'd > Jordon with JRA. Then our doctor had us go see our optho to check his > eyes. Which are fine so far, we see the optho every 3mths now. > 2mths later his ankles swelled up and Dr. Zeft had us do steroid > injections in both knees and both ankles. > In May we changed meds to Meloxicam. > His legs and ankles are in pain almost every day, and they are > slightly swollen. And whenever it gets cold here he gets worse. > Jordon also has Type 1 Diabetes Mellitus, Epilepsy, Sensory > integration disorder, and developmental delay. His sister has a Cleft > mitral valve, severe epilepsy, and developmental delay. > Do you guys have any suggestions for me on how to lessen my son's > pain? this med doesn't seem to be working. > > , Bryon, Jordon 8, 6 > > > -- " Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI- Silver and Cold). my Flight in life is a metamorphosis of growth and this flutter of wings is within me awaiting to find a space to find it's flow... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Hello, I trick that I learned this year that seems to help a lot with the morning stiffness and pain is an electric banket. We plugged it into a timer and it is set to come on one hour before my son gets up in the morning. The heat helps relax his joints and make the mornings a little more bearable. (, 5-Pauci) On Oct 16, 2008, at 1:44 AM, Issadora wrote: > Hello- > > Sounds like you have a lot of challenges going on. Is sensory > integration > disorder along the Autistic Spectrum? I only ask because there is a > connection between Pervasive Developmental Disorders and Autoimmune > diseases > like JRA. Not like knowing that actually does anything to Help you > personally but just something interesting. > > Anyways, they might need to treat his JRA more aggressively but in > the mean > time, one thing that helps a lot is warm baths... swimming... water > therapy.... really helps with range of motion, and relaxing the > joints, > etc.... Baths in the morning, and before bed can really help with > stiffness > and sleep. > > Massage is really great too and many people like ice or heat packs > too. > > I hope that can help some... > > Issadora > > On Wed, Oct 15, 2008 at 8:03 PM, myshel1_01 > <Mathena@...>wrote: > > > Hi my name is , > > I have 2 children, Jordon is 8 and is 7, we live in Utah. > > In June 2007 my son Jordon got a sceptic knee. It was very swollen > and > > infected, he had to have 3 surgeries and a PICC line to fix this, we > > were in the hospital for 2 weeks. > > The Rhumatology team came in and said that they would be keeping an > > eye on Jordon for the next 6mths to see if anything else would swell > > up. They put him on naproxn > > 5mths later his other knee swelled up, very large. So then they Dx'd > > Jordon with JRA. Then our doctor had us go see our optho to check > his > > eyes. Which are fine so far, we see the optho every 3mths now. > > 2mths later his ankles swelled up and Dr. Zeft had us do steroid > > injections in both knees and both ankles. > > In May we changed meds to Meloxicam. > > His legs and ankles are in pain almost every day, and they are > > slightly swollen. And whenever it gets cold here he gets worse. > > Jordon also has Type 1 Diabetes Mellitus, Epilepsy, Sensory > > integration disorder, and developmental delay. His sister has a > Cleft > > mitral valve, severe epilepsy, and developmental delay. > > Do you guys have any suggestions for me on how to lessen my son's > > pain? this med doesn't seem to be working. > > > > , Bryon, Jordon 8, 6 > > > > > > > > -- > " Life- Like the flutter of wings... feel your hollow wings > rushing... " (AFI- > Silver and Cold). > > my Flight in life is a metamorphosis of growth and this flutter of > wings is > within me awaiting to find a space to find it's flow... > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 I'm so sorry to hear how much your kids have gone through. It's hard on a mom to have to see their child in pain and particularly cruel when there's little you can do to take that pain away. Then to add in the other issues....well..I can only imagine. My daughter had seizures for a year and a half and then " poof " , they were gone. It was right around the same time as her JRA dx. and they never did find a reason behind it. Sounds like the injections aren't doing enough for Jordon and I agree with Issadora that you may need to ask for more aggressive medications. My daughter is on Methotrexate but there are many other children that do well with Enbrel or another biologic; ask about other options. The baths are essential and maybe even several per day. We did this with Isabelle for a long time when her Naprosyn wasn't working and both her knees and ankles were affected too. Also, ask for the time being whether it's safe to give your son Ibuprofen in conjunction with his other medication????` Cheers to you and I sincerely hope that your son finds relief soon. -hadley (Isabelle, 4.5 yrs, JRA) -- In , " myshel1_01 " <Mathena@...> wrote: > > Hi my name is , > I have 2 children, Jordon is 8 and is 7, we live in Utah. > In June 2007 my son Jordon got a sceptic knee. It was very swollen and > infected, he had to have 3 surgeries and a PICC line to fix this, we > were in the hospital for 2 weeks. > The Rhumatology team came in and said that they would be keeping an > eye on Jordon for the next 6mths to see if anything else would swell > up. They put him on naproxn > 5mths later his other knee swelled up, very large. So then they Dx'd > Jordon with JRA. Then our doctor had us go see our optho to check his > eyes. Which are fine so far, we see the optho every 3mths now. > 2mths later his ankles swelled up and Dr. Zeft had us do steroid > injections in both knees and both ankles. > In May we changed meds to Meloxicam. > His legs and ankles are in pain almost every day, and they are > slightly swollen. And whenever it gets cold here he gets worse. > Jordon also has Type 1 Diabetes Mellitus, Epilepsy, Sensory > integration disorder, and developmental delay. His sister has a Cleft > mitral valve, severe epilepsy, and developmental delay. > Do you guys have any suggestions for me on how to lessen my son's > pain? this med doesn't seem to be working. > > , Bryon, Jordon 8, 6 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2008 Report Share Posted October 16, 2008 Issadora No one has ever mentioned Autistic Spectrum, ill have to check on that. I'll have to try massaging him, and I'll have to work on the warm baths because he can't stand anything warm due to his SID. I think ill call our rec center and see if they do some water therapy and how warm their water is. tyvm. , Bryon, Jordon 8, 7 From: Issadora Sent: Wednesday, October 15, 2008 11:44 PM Subject: Re: Hello Im new Hello- Sounds like you have a lot of challenges going on. Is sensory integration disorder along the Autistic Spectrum? I only ask because there is a connection between Pervasive Developmental Disorders and Autoimmune diseases like JRA. Not like knowing that actually does anything to Help you personally but just something interesting. Anyways, they might need to treat his JRA more aggressively but in the mean time, one thing that helps a lot is warm baths... swimming... water therapy.... really helps with range of motion, and relaxing the joints, etc.... Baths in the morning, and before bed can really help with stiffness and sleep. Massage is really great too and many people like ice or heat packs too. I hope that can help some... Issadora On Wed, Oct 15, 2008 at 8:03 PM, myshel1_01 <Mathena@...>wrote: > Hi my name is , > I have 2 children, Jordon is 8 and is 7, we live in Utah. > In June 2007 my son Jordon got a sceptic knee. It was very swollen and > infected, he had to have 3 surgeries and a PICC line to fix this, we > were in the hospital for 2 weeks. > The Rhumatology team came in and said that they would be keeping an > eye on Jordon for the next 6mths to see if anything else would swell > up. They put him on naproxn > 5mths later his other knee swelled up, very large. So then they Dx'd > Jordon with JRA. Then our doctor had us go see our optho to check his > eyes. Which are fine so far, we see the optho every 3mths now. > 2mths later his ankles swelled up and Dr. Zeft had us do steroid > injections in both knees and both ankles. > In May we changed meds to Meloxicam. > His legs and ankles are in pain almost every day, and they are > slightly swollen. And whenever it gets cold here he gets worse. > Jordon also has Type 1 Diabetes Mellitus, Epilepsy, Sensory > integration disorder, and developmental delay. His sister has a Cleft > mitral valve, severe epilepsy, and developmental delay. > Do you guys have any suggestions for me on how to lessen my son's > pain? this med doesn't seem to be working. > > , Bryon, Jordon 8, 6 > > > -- " Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI- Silver and Cold). my Flight in life is a metamorphosis of growth and this flutter of wings is within me awaiting to find a space to find it's flow... Quote Link to comment Share on other sites More sharing options...
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