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Michele:

You are welcome. I saw the article in Arthritis Today magazine and saw familiar

names, so I just had to go on the web and find it to post to the group.

We did go to Puerto Vallarta and had a great time. You can see pictures on my

webblog at http://www.xanga.com/snooksmama

I am feeling really good! The Orencia is working! I would never have been able

to snorkel, swim, atv and walk so much last week without it. And, I'm now OFF my

prednisone!!

How is doing? Have his meds kicked in yet? What about your hubby, how is

he feeling? Is your mom doing ok?? Would love to catch up!

and Rob 19 JAS

/article

> Thanks so much for posting the article. It is something I plan

> on saving

> and forwarding to people. When I was soliciting donations for the

> Arthritis Walk back in May, I spoke often about the kids on our list,

> and the issue of uveitis. People were very compelled to hear

> about this.

> Thanks again!

>

>

>

> Also, how have you been doing? I read you went to Mexico - wonderful!

> Hope you had a good time, send an update when you can, Michele (

> 21, spondy)

>

>

>

>

>

>

>

>

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Great site and I loved the pictures! But really tell Rob he needs to

stop smiling soooo much - LOL! What is it about kids that age -

especially guys- having to look cool? Saw the tattoo also - not too bad.

Have to tell you my youngest celebrated her 18th the other day the same

way her sister did - by getting her belly button pierced! Next she says

is a tattoo. Ah well, there are worse things I guess and as long as I

don't have to look at it....

I am glad to hear the Orencia is working. Ed has been on the mtx (and is

taking it- yeah!) for only about 4 weeks so no real results yet. However

the Ultram has given him a good measure of relief and it seems to also

be leveling out his moods. I know he was in so much pain, I am glad he

is seeing some relief. The mtx is what has to be tried first before the

next step. The dr said that is the way the insurance will pay for any

biologics if he needs them.

My mom is doing really great. She is driving again and has even driven

in here to Chicago. Her main complaint is that she gets tired sooner in

the evenings. She is back at her water class and volunteering at the

library. We are gearing up for the big " Book and Bake Sale " July 11 and

12. I go up and help her for the two days. She used to come and help me

run mine when I did one for the kids school every year, so now its my

turn to pay her back. She seems to getting back to her old self.

is just taking the Arthrotec. I ask him when he is going to start

the mtx, but he just kind of says " Yeah, ma, I will " but doesn't seem to

do it. He has his good days and bad, and has been busy with work, and

his side detail jobs.

Is Rob back at Target during summer break? Is he going back to school in

the fall?

I really like your site - I've been thinking of doing something like

that. I may just give it a try. Michele ( 21, spondy)

________________________________

From: [mailto: ] On

Behalf Of and Schulz

Sent: Tuesday, June 24, 2008 12:04 PM

Subject: Re: /article

Michele:

You are welcome. I saw the article in Arthritis Today magazine and saw

familiar names, so I just had to go on the web and find it to post to

the group.

We did go to Puerto Vallarta and had a great time. You can see pictures

on my webblog at http://www.xanga.com/snooksmama

<http://www.xanga.com/snooksmama>

I am feeling really good! The Orencia is working! I would never have

been able to snorkel, swim, atv and walk so much last week without it.

And, I'm now OFF my prednisone!!

How is doing? Have his meds kicked in yet? What about your hubby,

how is he feeling? Is your mom doing ok?? Would love to catch up!

and Rob 19 JAS

/article

<mailto: %40>

> Thanks so much for posting the article. It is something I plan

> on saving

> and forwarding to people. When I was soliciting donations for the

> Arthritis Walk back in May, I spoke often about the kids on our list,

> and the issue of uveitis. People were very compelled to hear

> about this.

> Thanks again!

>

>

>

> Also, how have you been doing? I read you went to Mexico - wonderful!

> Hope you had a good time, send an update when you can, Michele (

> 21, spondy)

>

>

>

>

>

>

>

>

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  • 1 year later...

I love your article. It is so positive and inspiring. Cute picture too!

/Article

Yay, ! Great article, and you're famous now, LOL!

I can't reply to your original message for whatever reason. Here's the link to the artcile, too:

http://www.freep.com/article/20091011/FEATURES08/910110317/1033/FEATURES08/Showing-cancer-who-s-boss- & template=fullarticle

OR:

http://tiny.cc/1KnGz

Hope you're feeling good today,

Sara

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