Re: Scleroderma / nancy

[Guest guest]

:

Hannah has the Dragon Naturally speaking software and LOVES it!!!!  How is our

friend doing?

 

Sending prayers & happy thoughts,

Beth

________________________________

From: nancy barnes <nancyb315@...>

Sent: Tuesday, December 9, 2008 11:22:34 AM

Subject: Re: Scleroderma ?

Hello Ruth,

I have been absent from the list for a few weeks but I want to welcome you and

Jemma. Did the dermatologist say what makes him think it is scleroderma Jenna

has?  If you have not already found it, arthritis.org has some good information

in their " disease " section.  I think it is good they have given you the referral

to a rheumatologist as they will be better equipped to assess Jemma and they can

hopefully confirm or rule out scleroderma.  I do hope you get an appointment and

some answers soon so she can start treatment that can give her relief.

You said in one of your posts that you first noticed problems when Jemma was

typing and she had no flexibility in her fingers and they are rather

twisted...my daughter's fingers are a real problem for her as well...perhaps one

of the voice activated software programs for the computer would be helpful for

her?  We are in the process of acquiring one for our daughter.

Anyway, a late welcome.  Please keep us updated as you can.

mom to , 18, poly, pidd

From: Ruth <telemwill (DOT) com>

Subject: Scleroderma ?

@group s.com

Date: Tuesday, December 9, 2008, 7:57 AM

Jemma had an appointment this morning. Her dermatologist now suggests

she may have scleroderma. I did call her pediatrician today to ask for

a referral to a rheumy. I am now scouring the internet for information

on scleroderma. It seems like it is taking a long time to get this

figured out. All this auto-immune stuff is a bit scary.

Ruth in TN