Guest guest Posted February 8, 2006 Report Share Posted February 8, 2006 Hi..how are you...I agree with you about the cure or fix. In Europe they can 'install' articifial disks but here FDA will take 30 years to approve it.. what they do right now does not work..my husband is example. God bless and take care Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 today, back in the hospital; we didnot make it to her appt. they found bulging discs or a disc; info from another hosp, so they didn't have all the info. we are getting her checked out this week with normal docs and not the er. i too sometimes get those spasms at night. she had spasms similar to that and then her seizures were like your daughter-she would go limp too. other seizures i have been witnessed too the patient always went rigid. not sure what the difference is. thank you for thinking of us. i will keep you posted. rob " The future is full of possibilities; it's the present that sucks. " >From: " Babs " <barbnal@...> >Reply-neck pain ><neck pain > >Subject: rob >Date: Sun, 30 Apr 2006 10:02:59 -0400 > >I was just sitting here thinking about your wife having the seizures. And >the fact that the doctors say that they can not find a reason for them. >When my daughter had them she went limp and her eyes rolled back. But I >wanted to share with you something that I go through. At when I lay down. I >have spasms that cause my whole body to jerk and jump. This only happens >when I am laying down to rest. They are very disturbing at times. I still >do not know why I have them but I assume it is something to do with my >back. Maybe she needs to see a spinal doctor to see if it could be related >to something in her spine. >Hugs and Prayers, Babs _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2006 Report Share Posted April 30, 2006 today, back in the hospital; we didnot make it to her appt. they found bulging discs or a disc; info from another hosp, so they didn't have all the info. we are getting her checked out this week with normal docs and not the er. i too sometimes get those spasms at night. she had spasms similar to that and then her seizures were like your daughter-she would go limp too. other seizures i have been witnessed too the patient always went rigid. not sure what the difference is. thank you for thinking of us. i will keep you posted. rob " The future is full of possibilities; it's the present that sucks. " >From: " Babs " <barbnal@...> >Reply-neck pain ><neck pain > >Subject: rob >Date: Sun, 30 Apr 2006 10:02:59 -0400 > >I was just sitting here thinking about your wife having the seizures. And >the fact that the doctors say that they can not find a reason for them. >When my daughter had them she went limp and her eyes rolled back. But I >wanted to share with you something that I go through. At when I lay down. I >have spasms that cause my whole body to jerk and jump. This only happens >when I am laying down to rest. They are very disturbing at times. I still >do not know why I have them but I assume it is something to do with my >back. Maybe she needs to see a spinal doctor to see if it could be related >to something in her spine. >Hugs and Prayers, Babs _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Rob, I hope they figure out soon what is causing your wife to do this. My best friends neice got very sick, she lost all kinds of weight. They took out her gallbladder. But still she was sick. Her husband rushed her to the hospital by the grace of God their was a doctor their that Knew right away what she might have. After a year of fighting being sick she finally had a name for her being sick. However the diagnois was not good at all she has disease. Which could be fatal if not monitored very closely. She is only 21. Hugs and Prayers, Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 Rob, I hope they figure out soon what is causing your wife to do this. My best friends neice got very sick, she lost all kinds of weight. They took out her gallbladder. But still she was sick. Her husband rushed her to the hospital by the grace of God their was a doctor their that Knew right away what she might have. After a year of fighting being sick she finally had a name for her being sick. However the diagnois was not good at all she has disease. Which could be fatal if not monitored very closely. She is only 21. Hugs and Prayers, Babs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 disc bulges; that's what they're saying now. we have to go thru a family doctor, then get his referal, then go see whoever she really needs to see first. if the added work that she's had to do because of my back, has somehow hurt hers (supposedly bulging disc in neck and back) i don;t know what ill do. today topped it off. i missed my last pm appt and couldn't get in for a month later(kinda like punishment for missing appt) so it's been 7 weeks since my last shot (which they haven't found the right place yet anyways but it's the possibility that they'll get it right that keeps me mentally going). in my state your medicaide card (state insurance) goes to another crappier health care in a few months. i did not know this as this was my first time without insurance from my job. i get to my appt today to find that they do not take this new insurance. they could not refer me to anybody that does take it; and so far i can't find one either. I got one last script for my meds and a handshake; and i dont know what to do anymore. my wife hasn't been able to work in almost three weeks, and today i found out my in laws had had to take out a loan to help us this far. im receiving all the state help i can get and it's not enough. my dad goes in for a cardiac catherization (?) tomorrow to determine when/how they will perform his heart surgery in the next month or two. what else can happen; i know their are other people in the world and probably in this group that have it just as bad if not worse, but i dont know they handle it. i'm still trying to deal with my friend dying a few months ago. sorry i just got done calling all these places and i just got so frustrated with it all. thanks for listening. rob " The future is full of possibilities; it's the present that sucks. " HOPE EVERYTHING WENT WELL WITH YOUR MOVE JEANNIE!!! >From: " Babs " <barbnal@...> >Reply-neck pain ><neck pain > >Subject: Re: rob >Date: Mon, 1 May 2006 09:40:59 -0400 > >Rob, I hope they figure out soon what is causing your wife to do this. My >best friends neice got very sick, she lost all kinds of weight. They took >out her gallbladder. But still she was sick. Her husband rushed her to the >hospital by the grace of God their was a doctor their that Knew right away >what she might have. After a year of fighting being sick she finally had a >name for her being sick. However the diagnois was not good at all she has > disease. Which could be fatal if not monitored very closely. She is >only 21. >Hugs and Prayers, Babs _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2006 Report Share Posted May 1, 2006 disc bulges; that's what they're saying now. we have to go thru a family doctor, then get his referal, then go see whoever she really needs to see first. if the added work that she's had to do because of my back, has somehow hurt hers (supposedly bulging disc in neck and back) i don;t know what ill do. today topped it off. i missed my last pm appt and couldn't get in for a month later(kinda like punishment for missing appt) so it's been 7 weeks since my last shot (which they haven't found the right place yet anyways but it's the possibility that they'll get it right that keeps me mentally going). in my state your medicaide card (state insurance) goes to another crappier health care in a few months. i did not know this as this was my first time without insurance from my job. i get to my appt today to find that they do not take this new insurance. they could not refer me to anybody that does take it; and so far i can't find one either. I got one last script for my meds and a handshake; and i dont know what to do anymore. my wife hasn't been able to work in almost three weeks, and today i found out my in laws had had to take out a loan to help us this far. im receiving all the state help i can get and it's not enough. my dad goes in for a cardiac catherization (?) tomorrow to determine when/how they will perform his heart surgery in the next month or two. what else can happen; i know their are other people in the world and probably in this group that have it just as bad if not worse, but i dont know they handle it. i'm still trying to deal with my friend dying a few months ago. sorry i just got done calling all these places and i just got so frustrated with it all. thanks for listening. rob " The future is full of possibilities; it's the present that sucks. " HOPE EVERYTHING WENT WELL WITH YOUR MOVE JEANNIE!!! >From: " Babs " <barbnal@...> >Reply-neck pain ><neck pain > >Subject: Re: rob >Date: Mon, 1 May 2006 09:40:59 -0400 > >Rob, I hope they figure out soon what is causing your wife to do this. My >best friends neice got very sick, she lost all kinds of weight. They took >out her gallbladder. But still she was sick. Her husband rushed her to the >hospital by the grace of God their was a doctor their that Knew right away >what she might have. After a year of fighting being sick she finally had a >name for her being sick. However the diagnois was not good at all she has > disease. Which could be fatal if not monitored very closely. She is >only 21. >Hugs and Prayers, Babs _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 HI Rob boy do things ever end for you, sorry to hear more is going on. Good luck with your insurance stuff. Why does the PM dr make you wait a whole more month?? thats nuts. As for your wife at least if the bugles aren't too bad they maybe able to get them reduced with meds and treatmment. I sure hope so. Will keep you all in my prayers for good news instead of bad. Your sure could use some. Sharon Group Owner > > disc bulges; that's what they're saying now. we have to go thru a family > doctor, then get his referal, then go see whoever she really needs to see > first. if the added work that she's had to do because of my back, has > somehow hurt hers (supposedly bulging disc in neck and back) i don;t know > what ill do. > > today topped it off. i missed my last pm appt and couldn't get in for a > month later(kinda like punishment for missing appt) so it's been 7 weeks > since my last shot (which they haven't found the right place yet anyways but > it's the possibility that they'll get it right that keeps me mentally > going). > in my state your medicaide card (state insurance) goes to another crappier > health care in a few months. i did not know this as this was my first time > without insurance from my job. i get to my appt today to find that they do > not take this new insurance. they could not refer me to anybody that does > take it; and so far i can't find one either. I got one last script for my > meds and a handshake; and i dont know what to do anymore. my wife hasn't > been able to work in almost three weeks, and today i found out my in laws > had had to take out a loan to help us this far. im receiving all the state > help i can get and it's not enough. my dad goes in for a cardiac > catherization (?) tomorrow to determine when/how they will perform his heart > surgery in the next month or two. what else can happen; i know their are > other people in the world and probably in this group that have it just as > bad if not worse, but i dont know they handle it. i'm still trying to deal > with my friend dying a few months ago. sorry i just got done calling all > these places and i just got so frustrated with it all. thanks for > listening. > > rob > " The future is full of possibilities; it's the present that sucks. " > > HOPE EVERYTHING WENT WELL WITH YOUR MOVE JEANNIE!!! > >From: " Babs " <barbnal@...> > >Reply-neck pain > ><neck pain > > >Subject: Re: rob > >Date: Mon, 1 May 2006 09:40:59 -0400 > > > >Rob, I hope they figure out soon what is causing your wife to do this. My > >best friends neice got very sick, she lost all kinds of weight. They took > >out her gallbladder. But still she was sick. Her husband rushed her to the > >hospital by the grace of God their was a doctor their that Knew right away > >what she might have. After a year of fighting being sick she finally had a > >name for her being sick. However the diagnois was not good at all she has > > disease. Which could be fatal if not monitored very closely. She is > >only 21. > >Hugs and Prayers, Babs > > _________________________________________________________________ > Express yourself instantly with MSN Messenger! Download today - it's FREE! > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2006 Report Share Posted May 2, 2006 HI Rob boy do things ever end for you, sorry to hear more is going on. Good luck with your insurance stuff. Why does the PM dr make you wait a whole more month?? thats nuts. As for your wife at least if the bugles aren't too bad they maybe able to get them reduced with meds and treatmment. I sure hope so. Will keep you all in my prayers for good news instead of bad. Your sure could use some. Sharon Group Owner > > disc bulges; that's what they're saying now. we have to go thru a family > doctor, then get his referal, then go see whoever she really needs to see > first. if the added work that she's had to do because of my back, has > somehow hurt hers (supposedly bulging disc in neck and back) i don;t know > what ill do. > > today topped it off. i missed my last pm appt and couldn't get in for a > month later(kinda like punishment for missing appt) so it's been 7 weeks > since my last shot (which they haven't found the right place yet anyways but > it's the possibility that they'll get it right that keeps me mentally > going). > in my state your medicaide card (state insurance) goes to another crappier > health care in a few months. i did not know this as this was my first time > without insurance from my job. i get to my appt today to find that they do > not take this new insurance. they could not refer me to anybody that does > take it; and so far i can't find one either. I got one last script for my > meds and a handshake; and i dont know what to do anymore. my wife hasn't > been able to work in almost three weeks, and today i found out my in laws > had had to take out a loan to help us this far. im receiving all the state > help i can get and it's not enough. my dad goes in for a cardiac > catherization (?) tomorrow to determine when/how they will perform his heart > surgery in the next month or two. what else can happen; i know their are > other people in the world and probably in this group that have it just as > bad if not worse, but i dont know they handle it. i'm still trying to deal > with my friend dying a few months ago. sorry i just got done calling all > these places and i just got so frustrated with it all. thanks for > listening. > > rob > " The future is full of possibilities; it's the present that sucks. " > > HOPE EVERYTHING WENT WELL WITH YOUR MOVE JEANNIE!!! > >From: " Babs " <barbnal@...> > >Reply-neck pain > ><neck pain > > >Subject: Re: rob > >Date: Mon, 1 May 2006 09:40:59 -0400 > > > >Rob, I hope they figure out soon what is causing your wife to do this. My > >best friends neice got very sick, she lost all kinds of weight. They took > >out her gallbladder. But still she was sick. Her husband rushed her to the > >hospital by the grace of God their was a doctor their that Knew right away > >what she might have. After a year of fighting being sick she finally had a > >name for her being sick. However the diagnois was not good at all she has > > disease. Which could be fatal if not monitored very closely. She is > >only 21. > >Hugs and Prayers, Babs > > _________________________________________________________________ > Express yourself instantly with MSN Messenger! Download today - it's FREE! > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 got some appt for my wife. she has to sit at home and have her seizures, because the hospital does not believe that they are real, and they have run numerous tests with no results. they say she is a drug addict and refuse to treat her. my father goes in for heart surgery on may 22 so we could use some prayers there as well. thank you for the prayers. i think they may be working stupid hospitals but at least we have finally nailed down a pcp and are now able to get her referals and such. she had a psychiatrist yesterday, and a nerologist on monday. someone will help eventually. now i have to find a pcp and a new pain doc. im so tired of this. ugh. oh well, a new experience and lessons learned i guess. take care rob >From: " darkstarzz1019 " <darkstarzz1019@...> >Reply-neck pain >neck pain >Subject: Re: rob >Date: Tue, 02 May 2006 13:33:34 -0000 > >HI Rob boy do things ever end for you, sorry to hear more is going >on. Good luck with your insurance stuff. Why does the PM dr make you >wait a whole more month?? thats nuts. As for your wife at least if >the bugles aren't too bad they maybe able to get them reduced with >meds and treatmment. I sure hope so. Will keep you all in my prayers >for good news instead of bad. Your sure could use some. Sharon Group >Owner > > > > > > > disc bulges; that's what they're saying now. we have to go thru a >family > > doctor, then get his referal, then go see whoever she really needs >to see > > first. if the added work that she's had to do because of my back, >has > > somehow hurt hers (supposedly bulging disc in neck and back) i >don;t know > > what ill do. > > > > today topped it off. i missed my last pm appt and couldn't get in >for a > > month later(kinda like punishment for missing appt) so it's been 7 >weeks > > since my last shot (which they haven't found the right place yet >anyways but > > it's the possibility that they'll get it right that keeps me >mentally > > going). > > in my state your medicaide card (state insurance) goes to another >crappier > > health care in a few months. i did not know this as this was my >first time > > without insurance from my job. i get to my appt today to find >that they do > > not take this new insurance. they could not refer me to anybody >that does > > take it; and so far i can't find one either. I got one last >script for my > > meds and a handshake; and i dont know what to do anymore. my wife >hasn't > > been able to work in almost three weeks, and today i found out my >in laws > > had had to take out a loan to help us this far. im receiving all >the state > > help i can get and it's not enough. my dad goes in for a cardiac > > catherization (?) tomorrow to determine when/how they will perform >his heart > > surgery in the next month or two. what else can happen; i know >their are > > other people in the world and probably in this group that have it >just as > > bad if not worse, but i dont know they handle it. i'm still >trying to deal > > with my friend dying a few months ago. sorry i just got done >calling all > > these places and i just got so frustrated with it all. thanks for > > listening. > > > > rob > > " The future is full of possibilities; it's the present that sucks. " > > > > HOPE EVERYTHING WENT WELL WITH YOUR MOVE JEANNIE!!! > > >From: " Babs " <barbnal@...> > > >Reply-neck pain > > ><neck pain > > > >Subject: Re: rob > > >Date: Mon, 1 May 2006 09:40:59 -0400 > > > > > >Rob, I hope they figure out soon what is causing your wife to do >this. My > > >best friends neice got very sick, she lost all kinds of weight. >They took > > >out her gallbladder. But still she was sick. Her husband rushed >her to the > > >hospital by the grace of God their was a doctor their that Knew >right away > > >what she might have. After a year of fighting being sick she >finally had a > > >name for her being sick. However the diagnois was not good at all >she has > > > disease. Which could be fatal if not monitored very >closely. She is > > >only 21. > > >Hugs and Prayers, Babs > > > > _________________________________________________________________ > > Express yourself instantly with MSN Messenger! Download today - >it's FREE! > > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ > > > > > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 We admit we are "learning lurkers", but love the info & bondness of this group, you all seem to help & encourage each other so much ... a rare commodity now-a-day! :-)LOVE IT!! Our prayers are with you Rob & your family! I admire how strong both of you have been throughout this whole ordeal, with these "physicians" (using the word loosely, as they seem to have been anything but!) Prayer's are going up for the new pcp, doc's, and your Dad! Keep the faith! God bless you!! Kind Regards, Sam & Marisol. Re: rob> > >Date: Mon, 1 May 2006 09:40:59 -0400> > >> > >Rob, I hope they figure out soon what is causing your wife to do>this. My> > >best friends neice got very sick, she lost all kinds of weight.>They took> > >out her gallbladder. But still she was sick. Her husband rushed>her to the> > >hospital by the grace of God their was a doctor their that Knew>right away> > >what she might have. After a year of fighting being sick she>finally had a> > >name for her being sick. However the diagnois was not good at all>she has> > > disease. Which could be fatal if not monitored very>closely. She is> > >only 21.> > >Hugs and Prayers, Babs> >> > _________________________________________________________________> > Express yourself instantly with MSN Messenger! Download today ->it's FREE!> > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/> >>>>>_________________________________________________________________Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Thank you guys for the support and prayers. It truly is a wonderful group. When i first joined this group my wife was taking care of me, as i've had two back surgeries already. Now, it's my turn to help her, but in my condition both mentally and physically it has been hard for me. The group has helped alot, with info, support, prayers, and suggestions. so, though i am alone here (in the area we live-no family and a handful of friends) i do not feel so alone with the group and all of their kindness, and caring. what brings you to the group? i might have missed your posts in regards to that. if you haven't posted and have questions, thee are definately lots of people here with answers, but you probably already know that. again thank you; lately, it's posts like yours that help give me the strength to to just deal with daily activities. take care and i hope you guys find what you're looking for here. rob in va " The future is full of possibilities; it's the present that sucks. " >From: " Sam & Marisol ..><> " <guijazrose@...> >Reply-neck pain ><neck pain > >Subject: Re: Re: rob >Date: Thu, 11 May 2006 09:00:15 -0400 > >We admit we are " learning lurkers " , but love the info & bondness of this >group, you all seem to help & encourage each other so much ... a rare >commodity now-a-day! :-)LOVE IT!! > >Our prayers are with you Rob & your family! > >I admire how strong both of you have been throughout this whole ordeal, >with these " physicians " (using the word loosely, as they seem to have been >anything but!) >Prayer's are going up for the new pcp, doc's, and your Dad! Keep the faith! > >God bless you!! > >Kind Regards, >Sam & Marisol. > Re: rob > > > >Date: Mon, 1 May 2006 09:40:59 -0400 > > > > > > > >Rob, I hope they figure out soon what is causing your wife to do > >this. My > > > >best friends neice got very sick, she lost all kinds of weight. > >They took > > > >out her gallbladder. But still she was sick. Her husband rushed > >her to the > > > >hospital by the grace of God their was a doctor their that Knew > >right away > > > >what she might have. After a year of fighting being sick she > >finally had a > > > >name for her being sick. However the diagnois was not good at all > >she has > > > > disease. Which could be fatal if not monitored very > >closely. She is > > > >only 21. > > > >Hugs and Prayers, Babs > > > > > > _________________________________________________________________ > > > Express yourself instantly with MSN Messenger! Download today - > >it's FREE! > > > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ > > > > > > > > > > > > > _________________________________________________________________ > Express yourself instantly with MSN Messenger! Download today - it's >FREE! > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 FOREWARNING: This is a bit on the long side? Good afternoon all, My name is Marisol, and after all the reading I have done within this wonderful group ... I'm almost ashamed that I'm here! I have not had any surgeries to my spine or fusion, or anything really. In Dec of 2005 I was so bad with Sciatica that I was literally on all four in the ER, I could not stand, and my pain level on the little "happy-sad face chart" was a 10! After that, they found me a bed REAL QUICK! I was given every pain killer under the sun (or so it felt like it) I was able to limp out of the ER after 2 hrs. Next came the trips to the Ortho, and I was told I had DDD, and an onset of early arthritis (I will be 30 in August) and permanent leg nerve damage, due to staying so long without treatment. You might be wondering why I was for so long without treatment, truth be told, while homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old daughter, taking my son to his PT, OT, and ST 3X a week and having our own farm ... I kind of am guilty of just passing it off as "just a sore back" till I was in bed for a day ... then it was a "pulled back" then I found that I was in bed for 2 days ... this was a "back went out" stage for me and so, on and on I kept telling myself it would get better ... well, then came the ER scenario ... and now back to the ORtho visit where I just started bawling when I was told I had permanent nerve damage in my leg ... I could not sit, my trips were me laying down in the back with the back seat down, I don't know how we were never stopped by the police?? Anyway, I received two cortisone shots a month apart from one another, and that's it. I still have soreness and some pain and there are just position I can NOT get into like sitting STILL, but hey, I'm thankful I can get out of bed and work with my children. I can no longer drive because of the sitting issues, so my son does his therapies at home and we are all chugging along here ...slowly but surely. I just wish there where exercises I could do to strengthen my abdominal muscles to help my back ... oh almost forgot .. I also lost 54lbs and my husband and I think that has also helped my back?? who knows, it's just our theory? I firmly believe the Lord put His divine hand on me and has maintained me how I am, but sure do get nervous some days, when it takes me 10 mins to get out of bed instead of 1! To Rob and family, keep up your strength and don't lose your hope, better times are ahead. You and your family are pressing on our hearts and with your permission I would like to add you all to our prayer list in our church? ~~~ I am super impress with all that write in and are so brave with there pains and there with their situations. I feel moved everyday with everyone's strength. CONGRATS & THANK YOU!! God bless you all. Many Kind Regards, Sam & Marisol. Re: rob> > > >Date: Mon, 1 May 2006 09:40:59 -0400> > > >> > > >Rob, I hope they figure out soon what is causing your wife to do> >this. My> > > >best friends neice got very sick, she lost all kinds of weight.> >They took> > > >out her gallbladder. But still she was sick. Her husband rushed> >her to the> > > >hospital by the grace of God their was a doctor their that Knew> >right away> > > >what she might have. After a year of fighting being sick she> >finally had a> > > >name for her being sick. However the diagnois was not good at all> >she has> > > > disease. Which could be fatal if not monitored very> >closely. She is> > > >only 21.> > > >Hugs and Prayers, Babs> > >> > > _________________________________________________________________> > > Express yourself instantly with MSN Messenger! Download today -> >it's FREE!> > > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/> > >> >> >> >> >>> _________________________________________________________________> Express yourself instantly with MSN Messenger! Download today - it's >FREE!> http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 Rob my prayers to your family, I hope soon your wife finds a doctor that can diagnois her. I hope your Dads surgery goes well. Hugs and Prayers, Babs Chronic illness Chronic Pain You are not alone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 good morning, and happy mother's day! > >Good afternoon all, > >My name is Marisol, and after all the reading I have done within this >wonderful group ... I'm almost ashamed that I'm here! i feel that way sometimes when listening to others. i feel like there are other people who are way worse off then i am, yet i am definately one of the most vocal when it comes to venting my " poor me " stories. > >I have not had any surgeries to my spine or fusion, or anything really. >In Dec of 2005 I was so bad with Sciatica that I was literally on all four >in the ER, I could not stand, and my pain level on the little " happy-sad >face chart " was a 10! >After that, they found me a bed REAL QUICK! >I was given every pain killer under the sun (or so it felt like it) I was >able to limp out of the ER after 2 hrs. Next came the trips to the Ortho, >and I was told I had DDD, and an onset of early arthritis (I will be 30 in >August) and permanent leg nerve damage, due to staying so long without >treatment. i sort of did the same thing. i worked even though i knew something was wrong with my back; i needed to work though. so i ended up with two back surgeries. one right before turning 30 and one almost a year later for a big fusion. t be wondering why I was for so long without treatment, truth be told, while homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old daughter, taking my son to his PT, OT, and ST 3X a week and having our own farm ... I kind of am guilty of just passing it off as " just a sore back " till I was in bed for a day ... then it was a " pulled back " then I found that I was in bed for 2 days ... this was a " back went out " stage for me and so, on and on I kept telling myself it would get better ... well, then came the ER scenario .... and now back to the ORtho visit where I just started bawling when I was told I had permanent nerve damage in my leg ... I could not sit, my trips were me laying down in the back with the back seat down, I don't know how we were never stopped by the police?? >Anyway, I received two cortisone shots a month apart from one another, and >that's it. I still have soreness and some pain and there are just position >I can NOT get into like sitting STILL, but hey, I'm thankful I can get out >of bed and work with my children. >I can no longer drive because of the sitting issues, so my son does his >therapies at home and we are all chugging along here ...slowly but surely. >> I just wish there where exercises I could do to strengthen my abdominal >>muscles to help my back ... oh almost forgot .. I also lost 54lbs and my >>husband and I think that has also helped my back?? who knows, it's just >>our theory? i lost approx. 50 lbs in an effort to help my back. i think it helped some, but like you i want to strengthen my stomach in an effort to help my back. but i haven't found any excersises i can physicaly do. sitting is my worst position, followed by standing still. driving is easier for me then being the passenger (i can not lay down in our vehicle) i use the steering wheel for support and to help adjust my position. i also think knowing when im about to hit a bump or pot hole also helps me to brace mmyself a little. >I firmly believe the Lord put His divine hand on me and has maintained me >how I am, but sure do get nervous some days, when it takes me 10 mins to >get out of bed instead of 1! >To Rob and family, keep up your strength and don't lose your hope, better >times are ahead. You and your family are pressing on our hearts and with >your permission I would like to add you all to our prayer list in our >church? i would greatly appreciate, and am very touched that you would do this for us. we haven't made it to church in quite some time; at least a month. which is really bad, but i try and keep her around the house lately because of her seizures. last night we were talking in bed and i noticed she was kind of spacing out. i asked if she was ok and she said she was fine and didn't know what i was talking about. she went to stand up and get something and only made it as far as swinging her legs off the bed before starting to seize. it is not plesant and quite a scary site. plus now that i can't call for any help i have to sit and watch her go through about 2-4 seizures before she totally regains consciousness. hopefully the nerologist will be able to help her tomorrow. have you tried getting a pain management doctor? they should be able to help you with the pain that the shots don't get rid of. you should definately not feel ashamed for being in this group. your pain is just as real as the rest of ours! i'm glad that you found us (the group) and hope you get the help and support you need. thank you again it means alot and helps alot as i am a mental basket case lately. take care rob >~~~ >I am super impress with all that write in and are so brave with there pains >and there with their situations. I feel moved everyday with everyone's >strength. CONGRATS & THANK YOU!! > >God bless you all. > >Many Kind Regards, >Sam & Marisol. > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 good morning, and happy mother's day! > >Good afternoon all, > >My name is Marisol, and after all the reading I have done within this >wonderful group ... I'm almost ashamed that I'm here! i feel that way sometimes when listening to others. i feel like there are other people who are way worse off then i am, yet i am definately one of the most vocal when it comes to venting my " poor me " stories. > >I have not had any surgeries to my spine or fusion, or anything really. >In Dec of 2005 I was so bad with Sciatica that I was literally on all four >in the ER, I could not stand, and my pain level on the little " happy-sad >face chart " was a 10! >After that, they found me a bed REAL QUICK! >I was given every pain killer under the sun (or so it felt like it) I was >able to limp out of the ER after 2 hrs. Next came the trips to the Ortho, >and I was told I had DDD, and an onset of early arthritis (I will be 30 in >August) and permanent leg nerve damage, due to staying so long without >treatment. i sort of did the same thing. i worked even though i knew something was wrong with my back; i needed to work though. so i ended up with two back surgeries. one right before turning 30 and one almost a year later for a big fusion. t be wondering why I was for so long without treatment, truth be told, while homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old daughter, taking my son to his PT, OT, and ST 3X a week and having our own farm ... I kind of am guilty of just passing it off as " just a sore back " till I was in bed for a day ... then it was a " pulled back " then I found that I was in bed for 2 days ... this was a " back went out " stage for me and so, on and on I kept telling myself it would get better ... well, then came the ER scenario .... and now back to the ORtho visit where I just started bawling when I was told I had permanent nerve damage in my leg ... I could not sit, my trips were me laying down in the back with the back seat down, I don't know how we were never stopped by the police?? >Anyway, I received two cortisone shots a month apart from one another, and >that's it. I still have soreness and some pain and there are just position >I can NOT get into like sitting STILL, but hey, I'm thankful I can get out >of bed and work with my children. >I can no longer drive because of the sitting issues, so my son does his >therapies at home and we are all chugging along here ...slowly but surely. >> I just wish there where exercises I could do to strengthen my abdominal >>muscles to help my back ... oh almost forgot .. I also lost 54lbs and my >>husband and I think that has also helped my back?? who knows, it's just >>our theory? i lost approx. 50 lbs in an effort to help my back. i think it helped some, but like you i want to strengthen my stomach in an effort to help my back. but i haven't found any excersises i can physicaly do. sitting is my worst position, followed by standing still. driving is easier for me then being the passenger (i can not lay down in our vehicle) i use the steering wheel for support and to help adjust my position. i also think knowing when im about to hit a bump or pot hole also helps me to brace mmyself a little. >I firmly believe the Lord put His divine hand on me and has maintained me >how I am, but sure do get nervous some days, when it takes me 10 mins to >get out of bed instead of 1! >To Rob and family, keep up your strength and don't lose your hope, better >times are ahead. You and your family are pressing on our hearts and with >your permission I would like to add you all to our prayer list in our >church? i would greatly appreciate, and am very touched that you would do this for us. we haven't made it to church in quite some time; at least a month. which is really bad, but i try and keep her around the house lately because of her seizures. last night we were talking in bed and i noticed she was kind of spacing out. i asked if she was ok and she said she was fine and didn't know what i was talking about. she went to stand up and get something and only made it as far as swinging her legs off the bed before starting to seize. it is not plesant and quite a scary site. plus now that i can't call for any help i have to sit and watch her go through about 2-4 seizures before she totally regains consciousness. hopefully the nerologist will be able to help her tomorrow. have you tried getting a pain management doctor? they should be able to help you with the pain that the shots don't get rid of. you should definately not feel ashamed for being in this group. your pain is just as real as the rest of ours! i'm glad that you found us (the group) and hope you get the help and support you need. thank you again it means alot and helps alot as i am a mental basket case lately. take care rob >~~~ >I am super impress with all that write in and are so brave with there pains >and there with their situations. I feel moved everyday with everyone's >strength. CONGRATS & THANK YOU!! > >God bless you all. > >Many Kind Regards, >Sam & Marisol. > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 good morning, and happy mother's day! > >Good afternoon all, > >My name is Marisol, and after all the reading I have done within this >wonderful group ... I'm almost ashamed that I'm here! i feel that way sometimes when listening to others. i feel like there are other people who are way worse off then i am, yet i am definately one of the most vocal when it comes to venting my " poor me " stories. > >I have not had any surgeries to my spine or fusion, or anything really. >In Dec of 2005 I was so bad with Sciatica that I was literally on all four >in the ER, I could not stand, and my pain level on the little " happy-sad >face chart " was a 10! >After that, they found me a bed REAL QUICK! >I was given every pain killer under the sun (or so it felt like it) I was >able to limp out of the ER after 2 hrs. Next came the trips to the Ortho, >and I was told I had DDD, and an onset of early arthritis (I will be 30 in >August) and permanent leg nerve damage, due to staying so long without >treatment. i sort of did the same thing. i worked even though i knew something was wrong with my back; i needed to work though. so i ended up with two back surgeries. one right before turning 30 and one almost a year later for a big fusion. t be wondering why I was for so long without treatment, truth be told, while homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old daughter, taking my son to his PT, OT, and ST 3X a week and having our own farm ... I kind of am guilty of just passing it off as " just a sore back " till I was in bed for a day ... then it was a " pulled back " then I found that I was in bed for 2 days ... this was a " back went out " stage for me and so, on and on I kept telling myself it would get better ... well, then came the ER scenario .... and now back to the ORtho visit where I just started bawling when I was told I had permanent nerve damage in my leg ... I could not sit, my trips were me laying down in the back with the back seat down, I don't know how we were never stopped by the police?? >Anyway, I received two cortisone shots a month apart from one another, and >that's it. I still have soreness and some pain and there are just position >I can NOT get into like sitting STILL, but hey, I'm thankful I can get out >of bed and work with my children. >I can no longer drive because of the sitting issues, so my son does his >therapies at home and we are all chugging along here ...slowly but surely. >> I just wish there where exercises I could do to strengthen my abdominal >>muscles to help my back ... oh almost forgot .. I also lost 54lbs and my >>husband and I think that has also helped my back?? who knows, it's just >>our theory? i lost approx. 50 lbs in an effort to help my back. i think it helped some, but like you i want to strengthen my stomach in an effort to help my back. but i haven't found any excersises i can physicaly do. sitting is my worst position, followed by standing still. driving is easier for me then being the passenger (i can not lay down in our vehicle) i use the steering wheel for support and to help adjust my position. i also think knowing when im about to hit a bump or pot hole also helps me to brace mmyself a little. >I firmly believe the Lord put His divine hand on me and has maintained me >how I am, but sure do get nervous some days, when it takes me 10 mins to >get out of bed instead of 1! >To Rob and family, keep up your strength and don't lose your hope, better >times are ahead. You and your family are pressing on our hearts and with >your permission I would like to add you all to our prayer list in our >church? i would greatly appreciate, and am very touched that you would do this for us. we haven't made it to church in quite some time; at least a month. which is really bad, but i try and keep her around the house lately because of her seizures. last night we were talking in bed and i noticed she was kind of spacing out. i asked if she was ok and she said she was fine and didn't know what i was talking about. she went to stand up and get something and only made it as far as swinging her legs off the bed before starting to seize. it is not plesant and quite a scary site. plus now that i can't call for any help i have to sit and watch her go through about 2-4 seizures before she totally regains consciousness. hopefully the nerologist will be able to help her tomorrow. have you tried getting a pain management doctor? they should be able to help you with the pain that the shots don't get rid of. you should definately not feel ashamed for being in this group. your pain is just as real as the rest of ours! i'm glad that you found us (the group) and hope you get the help and support you need. thank you again it means alot and helps alot as i am a mental basket case lately. take care rob >~~~ >I am super impress with all that write in and are so brave with there pains >and there with their situations. I feel moved everyday with everyone's >strength. CONGRATS & THANK YOU!! > >God bless you all. > >Many Kind Regards, >Sam & Marisol. > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 thank you Babs, monday is the day for my wife; hopefully they will diagnos her then. My dad is pretty healthy for his age, but surgery is surgery and i guess there is no guarantee that everything will go right. i asked my dad, and he is confident in his doctor's abiities so that is good. it's all in God's hands. sitting around waiting for all of this is very nerve racking. take care of yourself. rob >From: " Babs " <barbnal@...> >Reply-neck pain ><neck pain > >Subject: Re: Re: rob >Date: Fri, 12 May 2006 18:02:05 -0400 > >Rob my prayers to your family, I hope soon your wife finds a doctor that >can diagnois her. I hope your Dads surgery goes well. >Hugs and Prayers, Babs > >Chronic illness Chronic Pain You are not alone _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 thank you Babs, monday is the day for my wife; hopefully they will diagnos her then. My dad is pretty healthy for his age, but surgery is surgery and i guess there is no guarantee that everything will go right. i asked my dad, and he is confident in his doctor's abiities so that is good. it's all in God's hands. sitting around waiting for all of this is very nerve racking. take care of yourself. rob >From: " Babs " <barbnal@...> >Reply-neck pain ><neck pain > >Subject: Re: Re: rob >Date: Fri, 12 May 2006 18:02:05 -0400 > >Rob my prayers to your family, I hope soon your wife finds a doctor that >can diagnois her. I hope your Dads surgery goes well. >Hugs and Prayers, Babs > >Chronic illness Chronic Pain You are not alone _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 thank you Babs, monday is the day for my wife; hopefully they will diagnos her then. My dad is pretty healthy for his age, but surgery is surgery and i guess there is no guarantee that everything will go right. i asked my dad, and he is confident in his doctor's abiities so that is good. it's all in God's hands. sitting around waiting for all of this is very nerve racking. take care of yourself. rob >From: " Babs " <barbnal@...> >Reply-neck pain ><neck pain > >Subject: Re: Re: rob >Date: Fri, 12 May 2006 18:02:05 -0400 > >Rob my prayers to your family, I hope soon your wife finds a doctor that >can diagnois her. I hope your Dads surgery goes well. >Hugs and Prayers, Babs > >Chronic illness Chronic Pain You are not alone _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Rob, Thank you for your kind words. Even though I have not been able to write back, you wife as well as your whole family has been in prayer. I am so sorry that you have had/are having such a rough time. You and your wife surely are strong people. Keep hanging in there. I don't believe you vent "poor me" stories. Your situation is real and even if physically you can't do anything, it always helps to talk about it (at least that's how I feel) and get feed back from others. Along the way picking up some prayer too! WOW, 2 back surgeries, like I said before ... I feel anyone that has gone through a back surgery should receive an award. I have always heard such horror stories when it comes to back surgery. My mother had to have back surgery at the age of 22 because of a hernia and I can't believe the scar she has! Even after that she always had back problems. My hats off to anyone that has gone through with it. I know you probably didn't have a choice in the matter due to pain, or necessity, but still ... my hats off to you ... you are truly brave in my book!! So, you didn't find that losing those 50 lbs helped any? I was 180 and now I'm 128, and this I believe (after the Lord, then the shots) helped me out a lot! How ironic, the worst position for me IS driving! I can sit in the passenger side laying the seat almost all the way down (now, not before). Anyway, I just want you to know that just as you told me, you should not feel ashamed to vent either! You have every right to vent just as the rest of us. YOu have ever reason to do so especially with what you are going through. Keep your strength up and don't forget about yourself too. I hope your Dad's surgery went well. Please keep us posted on your lovely wife's situation, as she & you are deeply remembered here! God bless you all! TGIF, Marisol. Re: Re: rob good morning, and happy mother's day!>>Good afternoon all,>>My name is Marisol, and after all the reading I have done within this >wonderful group ... I'm almost ashamed that I'm here!i feel that way sometimes when listening to others. i feel like there are other people who are way worse off then i am, yet i am definately one of the most vocal when it comes to venting my "poor me" stories. >>I have not had any surgeries to my spine or fusion, or anything really.>In Dec of 2005 I was so bad with Sciatica that I was literally on all four >in the ER, I could not stand, and my pain level on the little "happy-sad >face chart" was a 10!>After that, they found me a bed REAL QUICK!>I was given every pain killer under the sun (or so it felt like it) I was >able to limp out of the ER after 2 hrs. Next came the trips to the Ortho, >and I was told I had DDD, and an onset of early arthritis (I will be 30 in >August) and permanent leg nerve damage, due to staying so long without >treatment.i sort of did the same thing. i worked even though i knew something was wrong with my back; i needed to work though. so i ended up with two back surgeries. one right before turning 30 and one almost a year later for a big fusion.t be wondering why I was for so long without treatment, truth be told, while homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old daughter, taking my son to his PT, OT, and ST 3X a week and having our own farm ... I kind of am guilty of just passing it off as "just a sore back" till I was in bed for a day ... then it was a "pulled back" then I found that I was in bed for 2 days ... this was a "back went out" stage for me and so, on and on I kept telling myself it would get better ... well, then came the ER scenario ... and now back to the ORtho visit where I just started bawling when I was told I had permanent nerve damage in my leg ... I could not sit, my trips were me laying down in the back with the back seat down, I don't know how we were never stopped by the police??>Anyway, I received two cortisone shots a month apart from one another, and >that's it. I still have soreness and some pain and there are just position >I can NOT get into like sitting STILL, but hey, I'm thankful I can get out >of bed and work with my children.>I can no longer drive because of the sitting issues, so my son does his >therapies at home and we are all chugging along here ...slowly but surely.>> I just wish there where exercises I could do to strengthen my abdominal >>muscles to help my back ... oh almost forgot .. I also lost 54lbs and my >>husband and I think that has also helped my back?? who knows, it's just >>our theory?i lost approx. 50 lbs in an effort to help my back. i think it helped some, but like you i want to strengthen my stomach in an effort to help my back. but i haven't found any excersises i can physicaly do. sitting is my worst position, followed by standing still. driving is easier for me then being the passenger (i can not lay down in our vehicle) i use the steering wheel for support and to help adjust my position. i also think knowing when im about to hit a bump or pot hole also helps me to brace mmyself a little.>I firmly believe the Lord put His divine hand on me and has maintained me >how I am, but sure do get nervous some days, when it takes me 10 mins to >get out of bed instead of 1!>To Rob and family, keep up your strength and don't lose your hope, better >times are ahead. You and your family are pressing on our hearts and with >your permission I would like to add you all to our prayer list in our >church?i would greatly appreciate, and am very touched that you would do this for us. we haven't made it to church in quite some time; at least a month. which is really bad, but i try and keep her around the house lately because of her seizures. last night we were talking in bed and i noticed she was kind of spacing out. i asked if she was ok and she said she was fine and didn't know what i was talking about. she went to stand up and get something and only made it as far as swinging her legs off the bed before starting to seize. it is not plesant and quite a scary site. plus now that i can't call for any help i have to sit and watch her go through about 2-4 seizures before she totally regains consciousness. hopefully the nerologist will be able to help her tomorrow.have you tried getting a pain management doctor? they should be able to help you with the pain that the shots don't get rid of. you should definately not feel ashamed for being in this group. your pain is just as real as the rest of ours! i'm glad that you found us (the group) and hope you get the help and support you need. thank you again it means alot and helps alot as i am a mental basket case lately.take carerob>~~~>I am super impress with all that write in and are so brave with there pains >and there with their situations. I feel moved everyday with everyone's >strength. CONGRATS & THANK YOU!!>>God bless you all.>>Many Kind Regards,>Sam & Marisol.>>_________________________________________________________________Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Rob, Thank you for your kind words. Even though I have not been able to write back, you wife as well as your whole family has been in prayer. I am so sorry that you have had/are having such a rough time. You and your wife surely are strong people. Keep hanging in there. I don't believe you vent "poor me" stories. Your situation is real and even if physically you can't do anything, it always helps to talk about it (at least that's how I feel) and get feed back from others. Along the way picking up some prayer too! WOW, 2 back surgeries, like I said before ... I feel anyone that has gone through a back surgery should receive an award. I have always heard such horror stories when it comes to back surgery. My mother had to have back surgery at the age of 22 because of a hernia and I can't believe the scar she has! Even after that she always had back problems. My hats off to anyone that has gone through with it. I know you probably didn't have a choice in the matter due to pain, or necessity, but still ... my hats off to you ... you are truly brave in my book!! So, you didn't find that losing those 50 lbs helped any? I was 180 and now I'm 128, and this I believe (after the Lord, then the shots) helped me out a lot! How ironic, the worst position for me IS driving! I can sit in the passenger side laying the seat almost all the way down (now, not before). Anyway, I just want you to know that just as you told me, you should not feel ashamed to vent either! You have every right to vent just as the rest of us. YOu have ever reason to do so especially with what you are going through. Keep your strength up and don't forget about yourself too. I hope your Dad's surgery went well. Please keep us posted on your lovely wife's situation, as she & you are deeply remembered here! God bless you all! TGIF, Marisol. Re: Re: rob good morning, and happy mother's day!>>Good afternoon all,>>My name is Marisol, and after all the reading I have done within this >wonderful group ... I'm almost ashamed that I'm here!i feel that way sometimes when listening to others. i feel like there are other people who are way worse off then i am, yet i am definately one of the most vocal when it comes to venting my "poor me" stories. >>I have not had any surgeries to my spine or fusion, or anything really.>In Dec of 2005 I was so bad with Sciatica that I was literally on all four >in the ER, I could not stand, and my pain level on the little "happy-sad >face chart" was a 10!>After that, they found me a bed REAL QUICK!>I was given every pain killer under the sun (or so it felt like it) I was >able to limp out of the ER after 2 hrs. Next came the trips to the Ortho, >and I was told I had DDD, and an onset of early arthritis (I will be 30 in >August) and permanent leg nerve damage, due to staying so long without >treatment.i sort of did the same thing. i worked even though i knew something was wrong with my back; i needed to work though. so i ended up with two back surgeries. one right before turning 30 and one almost a year later for a big fusion.t be wondering why I was for so long without treatment, truth be told, while homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old daughter, taking my son to his PT, OT, and ST 3X a week and having our own farm ... I kind of am guilty of just passing it off as "just a sore back" till I was in bed for a day ... then it was a "pulled back" then I found that I was in bed for 2 days ... this was a "back went out" stage for me and so, on and on I kept telling myself it would get better ... well, then came the ER scenario ... and now back to the ORtho visit where I just started bawling when I was told I had permanent nerve damage in my leg ... I could not sit, my trips were me laying down in the back with the back seat down, I don't know how we were never stopped by the police??>Anyway, I received two cortisone shots a month apart from one another, and >that's it. I still have soreness and some pain and there are just position >I can NOT get into like sitting STILL, but hey, I'm thankful I can get out >of bed and work with my children.>I can no longer drive because of the sitting issues, so my son does his >therapies at home and we are all chugging along here ...slowly but surely.>> I just wish there where exercises I could do to strengthen my abdominal >>muscles to help my back ... oh almost forgot .. I also lost 54lbs and my >>husband and I think that has also helped my back?? who knows, it's just >>our theory?i lost approx. 50 lbs in an effort to help my back. i think it helped some, but like you i want to strengthen my stomach in an effort to help my back. but i haven't found any excersises i can physicaly do. sitting is my worst position, followed by standing still. driving is easier for me then being the passenger (i can not lay down in our vehicle) i use the steering wheel for support and to help adjust my position. i also think knowing when im about to hit a bump or pot hole also helps me to brace mmyself a little.>I firmly believe the Lord put His divine hand on me and has maintained me >how I am, but sure do get nervous some days, when it takes me 10 mins to >get out of bed instead of 1!>To Rob and family, keep up your strength and don't lose your hope, better >times are ahead. You and your family are pressing on our hearts and with >your permission I would like to add you all to our prayer list in our >church?i would greatly appreciate, and am very touched that you would do this for us. we haven't made it to church in quite some time; at least a month. which is really bad, but i try and keep her around the house lately because of her seizures. last night we were talking in bed and i noticed she was kind of spacing out. i asked if she was ok and she said she was fine and didn't know what i was talking about. she went to stand up and get something and only made it as far as swinging her legs off the bed before starting to seize. it is not plesant and quite a scary site. plus now that i can't call for any help i have to sit and watch her go through about 2-4 seizures before she totally regains consciousness. hopefully the nerologist will be able to help her tomorrow.have you tried getting a pain management doctor? they should be able to help you with the pain that the shots don't get rid of. you should definately not feel ashamed for being in this group. your pain is just as real as the rest of ours! i'm glad that you found us (the group) and hope you get the help and support you need. thank you again it means alot and helps alot as i am a mental basket case lately.take carerob>~~~>I am super impress with all that write in and are so brave with there pains >and there with their situations. I feel moved everyday with everyone's >strength. CONGRATS & THANK YOU!!>>God bless you all.>>Many Kind Regards,>Sam & Marisol.>>_________________________________________________________________Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Rob, Thank you for your kind words. Even though I have not been able to write back, you wife as well as your whole family has been in prayer. I am so sorry that you have had/are having such a rough time. You and your wife surely are strong people. Keep hanging in there. I don't believe you vent "poor me" stories. Your situation is real and even if physically you can't do anything, it always helps to talk about it (at least that's how I feel) and get feed back from others. Along the way picking up some prayer too! WOW, 2 back surgeries, like I said before ... I feel anyone that has gone through a back surgery should receive an award. I have always heard such horror stories when it comes to back surgery. My mother had to have back surgery at the age of 22 because of a hernia and I can't believe the scar she has! Even after that she always had back problems. My hats off to anyone that has gone through with it. I know you probably didn't have a choice in the matter due to pain, or necessity, but still ... my hats off to you ... you are truly brave in my book!! So, you didn't find that losing those 50 lbs helped any? I was 180 and now I'm 128, and this I believe (after the Lord, then the shots) helped me out a lot! How ironic, the worst position for me IS driving! I can sit in the passenger side laying the seat almost all the way down (now, not before). Anyway, I just want you to know that just as you told me, you should not feel ashamed to vent either! You have every right to vent just as the rest of us. YOu have ever reason to do so especially with what you are going through. Keep your strength up and don't forget about yourself too. I hope your Dad's surgery went well. Please keep us posted on your lovely wife's situation, as she & you are deeply remembered here! God bless you all! TGIF, Marisol. Re: Re: rob good morning, and happy mother's day!>>Good afternoon all,>>My name is Marisol, and after all the reading I have done within this >wonderful group ... I'm almost ashamed that I'm here!i feel that way sometimes when listening to others. i feel like there are other people who are way worse off then i am, yet i am definately one of the most vocal when it comes to venting my "poor me" stories. >>I have not had any surgeries to my spine or fusion, or anything really.>In Dec of 2005 I was so bad with Sciatica that I was literally on all four >in the ER, I could not stand, and my pain level on the little "happy-sad >face chart" was a 10!>After that, they found me a bed REAL QUICK!>I was given every pain killer under the sun (or so it felt like it) I was >able to limp out of the ER after 2 hrs. Next came the trips to the Ortho, >and I was told I had DDD, and an onset of early arthritis (I will be 30 in >August) and permanent leg nerve damage, due to staying so long without >treatment.i sort of did the same thing. i worked even though i knew something was wrong with my back; i needed to work though. so i ended up with two back surgeries. one right before turning 30 and one almost a year later for a big fusion.t be wondering why I was for so long without treatment, truth be told, while homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old daughter, taking my son to his PT, OT, and ST 3X a week and having our own farm ... I kind of am guilty of just passing it off as "just a sore back" till I was in bed for a day ... then it was a "pulled back" then I found that I was in bed for 2 days ... this was a "back went out" stage for me and so, on and on I kept telling myself it would get better ... well, then came the ER scenario ... and now back to the ORtho visit where I just started bawling when I was told I had permanent nerve damage in my leg ... I could not sit, my trips were me laying down in the back with the back seat down, I don't know how we were never stopped by the police??>Anyway, I received two cortisone shots a month apart from one another, and >that's it. I still have soreness and some pain and there are just position >I can NOT get into like sitting STILL, but hey, I'm thankful I can get out >of bed and work with my children.>I can no longer drive because of the sitting issues, so my son does his >therapies at home and we are all chugging along here ...slowly but surely.>> I just wish there where exercises I could do to strengthen my abdominal >>muscles to help my back ... oh almost forgot .. I also lost 54lbs and my >>husband and I think that has also helped my back?? who knows, it's just >>our theory?i lost approx. 50 lbs in an effort to help my back. i think it helped some, but like you i want to strengthen my stomach in an effort to help my back. but i haven't found any excersises i can physicaly do. sitting is my worst position, followed by standing still. driving is easier for me then being the passenger (i can not lay down in our vehicle) i use the steering wheel for support and to help adjust my position. i also think knowing when im about to hit a bump or pot hole also helps me to brace mmyself a little.>I firmly believe the Lord put His divine hand on me and has maintained me >how I am, but sure do get nervous some days, when it takes me 10 mins to >get out of bed instead of 1!>To Rob and family, keep up your strength and don't lose your hope, better >times are ahead. You and your family are pressing on our hearts and with >your permission I would like to add you all to our prayer list in our >church?i would greatly appreciate, and am very touched that you would do this for us. we haven't made it to church in quite some time; at least a month. which is really bad, but i try and keep her around the house lately because of her seizures. last night we were talking in bed and i noticed she was kind of spacing out. i asked if she was ok and she said she was fine and didn't know what i was talking about. she went to stand up and get something and only made it as far as swinging her legs off the bed before starting to seize. it is not plesant and quite a scary site. plus now that i can't call for any help i have to sit and watch her go through about 2-4 seizures before she totally regains consciousness. hopefully the nerologist will be able to help her tomorrow.have you tried getting a pain management doctor? they should be able to help you with the pain that the shots don't get rid of. you should definately not feel ashamed for being in this group. your pain is just as real as the rest of ours! i'm glad that you found us (the group) and hope you get the help and support you need. thank you again it means alot and helps alot as i am a mental basket case lately.take carerob>~~~>I am super impress with all that write in and are so brave with there pains >and there with their situations. I feel moved everyday with everyone's >strength. CONGRATS & THANK YOU!!>>God bless you all.>>Many Kind Regards,>Sam & Marisol.>>_________________________________________________________________Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 thank you for your words of encouragement. i am not very strong; my family and life is falling apart all around me and i don't know what to do about any of it anymore. no one will help my wife, and she is the anchor for the family. i can take pain, i've lived with it since the marines but she can't and with her down it's hard, but with her wanting to just give up - it's impossible. The last time we went to the ER because we were an hour away from home and she started having seizures. i called an ambulance and they took her to the hospital in that area. I told them her history, i told them her medication, her doctors names. They did not believe the meds she was on for her panic attacks and assumed that she was withdrawing from them and threw her in the crisis ward. lied to me about it and i didn't get to see her for 3 days. she was assualted, urinated on and screamed at by crazy people. all the while being denied treatment and the meds she was already on; why, because she was having panic attacks from not having meds and being in a crazy place with people deficating and putting it on the walls. so they assumed the worse about her and didn't check with any of her doctors. she has no relief from the seizures or the pain they are causing her. she has bulging discs in her neck and back and they are getting worse while we wait for appts from doctors who so far dont appear to believe or care about her. if we survive another month physically, mentally i will be amazed. i really did appreciate what you wrote, and have written; and i wish i was a more supportive force in the group. i used to be able to tell people it will be ok, or pass along helpful information - but haven't been very good in that dept lately. heck im about a week behind on posts. thank you for your prayers, you and your husband are in ours as well. I hope he finds some relief soon too. God bless. rob >From: " Sam & Marisol ..><> " <guijazrose@...> >Reply-neck pain ><neck pain > >Subject: Re: Re: rob >Date: Fri, 19 May 2006 11:21:02 -0400 > >Rob, > >Thank you for your kind words. >Even though I have not been able to write back, you wife as well as your >whole family has been in prayer. > >I am so sorry that you have had/are having such a rough time. You and your >wife surely are strong people. >Keep hanging in there. > >I don't believe you vent " poor me " stories. Your situation is real and even >if physically you can't do anything, it always helps to talk about it (at >least that's how I feel) and get feed back from others. Along the way >picking up some prayer too! > >WOW, 2 back surgeries, like I said before ... I feel anyone that has gone >through a back surgery should receive an award. I have always heard such >horror stories when it comes to back surgery. My mother had to have back >surgery at the age of 22 because of a hernia and I can't believe the scar >she has! Even after that she always had back problems. My hats off to >anyone that has gone through with it. I know you probably didn't have a >choice in the matter due to pain, or necessity, but still ... my hats off >to you ... you are truly brave in my book!! > >So, you didn't find that losing those 50 lbs helped any? I was 180 and now >I'm 128, and this I believe (after the Lord, then the shots) helped me out >a lot! >How ironic, the worst position for me IS driving! I can sit in the >passenger side laying the seat almost all the way down (now, not before). > >Anyway, I just want you to know that just as you told me, you should not >feel ashamed to vent either! >You have every right to vent just as the rest of us. YOu have ever reason >to do so especially with what you are going through. Keep your strength up >and don't forget about yourself too. I hope your Dad's surgery went well. >Please keep us posted on your lovely wife's situation, as she & you are >deeply remembered here! > >God bless you all! > >TGIF, >Marisol. > > > Re: Re: rob > > > > > good morning, and happy mother's day! > > > >Good afternoon all, > > > >My name is Marisol, and after all the reading I have done within this > >wonderful group ... I'm almost ashamed that I'm here! > > i feel that way sometimes when listening to others. i feel like there >are > other people who are way worse off then i am, yet i am definately one of >the > most vocal when it comes to venting my " poor me " stories. > > > >I have not had any surgeries to my spine or fusion, or anything really. > >In Dec of 2005 I was so bad with Sciatica that I was literally on all >four > >in the ER, I could not stand, and my pain level on the little > " happy-sad > >face chart " was a 10! > >After that, they found me a bed REAL QUICK! > >I was given every pain killer under the sun (or so it felt like it) I >was > >able to limp out of the ER after 2 hrs. Next came the trips to the >Ortho, > >and I was told I had DDD, and an onset of early arthritis (I will be 30 >in > >August) and permanent leg nerve damage, due to staying so long without > >treatment. > > i sort of did the same thing. i worked even though i knew something was > wrong with my back; i needed to work though. so i ended up with two >back > surgeries. one right before turning 30 and one almost a year later for >a > big fusion. > > t be wondering why I was for so long without treatment, truth be told, >while > homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old >daughter, > taking my son to his PT, OT, and ST 3X a week and having our own farm >... I > kind of am guilty of just passing it off as " just a sore back " till I >was in > bed for a day ... then it was a " pulled back " then I found that I was in >bed > for 2 days ... this was a " back went out " stage for me and so, on and >on I > kept telling myself it would get better ... well, then came the ER >scenario > ... and now back to the ORtho visit where I just started bawling when I >was > told I had permanent nerve damage in my leg ... I could not sit, my >trips > were me laying down in the back with the back seat down, I don't know >how > we were never stopped by the police?? > >Anyway, I received two cortisone shots a month apart from one another, >and > >that's it. I still have soreness and some pain and there are just >position > >I can NOT get into like sitting STILL, but hey, I'm thankful I can get >out > >of bed and work with my children. > >I can no longer drive because of the sitting issues, so my son does his > >therapies at home and we are all chugging along here ...slowly but >surely. > >> I just wish there where exercises I could do to strengthen my >abdominal > >>muscles to help my back ... oh almost forgot .. I also lost 54lbs and >my > >>husband and I think that has also helped my back?? who knows, it's >just > >>our theory? > > i lost approx. 50 lbs in an effort to help my back. i think it helped >some, > but like you i want to strengthen my stomach in an effort to help my >back. > but i haven't found any excersises i can physicaly do. sitting is my >worst > position, followed by standing still. driving is easier for me then >being > the passenger (i can not lay down in our vehicle) i use the steering >wheel > for support and to help adjust my position. i also think knowing when >im > about to hit a bump or pot hole also helps me to brace mmyself a little. > > >I firmly believe the Lord put His divine hand on me and has maintained >me > >how I am, but sure do get nervous some days, when it takes me 10 mins >to > >get out of bed instead of 1! > >To Rob and family, keep up your strength and don't lose your hope, >better > >times are ahead. You and your family are pressing on our hearts and >with > >your permission I would like to add you all to our prayer list in our > >church? > > i would greatly appreciate, and am very touched that you would do this >for > us. we haven't made it to church in quite some time; at least a month. > which is really bad, but i try and keep her around the house lately >because > of her seizures. last night we were talking in bed and i noticed she >was > kind of spacing out. i asked if she was ok and she said she was fine >and > didn't know what i was talking about. she went to stand up and get > something and only made it as far as swinging her legs off the bed >before > starting to seize. it is not plesant and quite a scary site. plus now > that i can't call for any help i have to sit and watch her go through >about > 2-4 seizures before she totally regains consciousness. hopefully the > nerologist will be able to help her tomorrow. > have you tried getting a pain management doctor? they should be able to > help you with the pain that the shots don't get rid of. you should > definately not feel ashamed for being in this group. your pain is just >as > real as the rest of ours! i'm glad that you found us (the group) and >hope > you get the help and support you need. thank you again it means alot >and > helps alot as i am a mental basket case lately. > take care > > rob > > > >~~~ > >I am super impress with all that write in and are so brave with there >pains > >and there with their situations. I feel moved everyday with everyone's > >strength. CONGRATS & THANK YOU!! > > > >God bless you all. > > > >Many Kind Regards, > >Sam & Marisol. > > > > > > > _________________________________________________________________ > Express yourself instantly with MSN Messenger! Download today - it's >FREE! > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 thank you for your words of encouragement. i am not very strong; my family and life is falling apart all around me and i don't know what to do about any of it anymore. no one will help my wife, and she is the anchor for the family. i can take pain, i've lived with it since the marines but she can't and with her down it's hard, but with her wanting to just give up - it's impossible. The last time we went to the ER because we were an hour away from home and she started having seizures. i called an ambulance and they took her to the hospital in that area. I told them her history, i told them her medication, her doctors names. They did not believe the meds she was on for her panic attacks and assumed that she was withdrawing from them and threw her in the crisis ward. lied to me about it and i didn't get to see her for 3 days. she was assualted, urinated on and screamed at by crazy people. all the while being denied treatment and the meds she was already on; why, because she was having panic attacks from not having meds and being in a crazy place with people deficating and putting it on the walls. so they assumed the worse about her and didn't check with any of her doctors. she has no relief from the seizures or the pain they are causing her. she has bulging discs in her neck and back and they are getting worse while we wait for appts from doctors who so far dont appear to believe or care about her. if we survive another month physically, mentally i will be amazed. i really did appreciate what you wrote, and have written; and i wish i was a more supportive force in the group. i used to be able to tell people it will be ok, or pass along helpful information - but haven't been very good in that dept lately. heck im about a week behind on posts. thank you for your prayers, you and your husband are in ours as well. I hope he finds some relief soon too. God bless. rob >From: " Sam & Marisol ..><> " <guijazrose@...> >Reply-neck pain ><neck pain > >Subject: Re: Re: rob >Date: Fri, 19 May 2006 11:21:02 -0400 > >Rob, > >Thank you for your kind words. >Even though I have not been able to write back, you wife as well as your >whole family has been in prayer. > >I am so sorry that you have had/are having such a rough time. You and your >wife surely are strong people. >Keep hanging in there. > >I don't believe you vent " poor me " stories. Your situation is real and even >if physically you can't do anything, it always helps to talk about it (at >least that's how I feel) and get feed back from others. Along the way >picking up some prayer too! > >WOW, 2 back surgeries, like I said before ... I feel anyone that has gone >through a back surgery should receive an award. I have always heard such >horror stories when it comes to back surgery. My mother had to have back >surgery at the age of 22 because of a hernia and I can't believe the scar >she has! Even after that she always had back problems. My hats off to >anyone that has gone through with it. I know you probably didn't have a >choice in the matter due to pain, or necessity, but still ... my hats off >to you ... you are truly brave in my book!! > >So, you didn't find that losing those 50 lbs helped any? I was 180 and now >I'm 128, and this I believe (after the Lord, then the shots) helped me out >a lot! >How ironic, the worst position for me IS driving! I can sit in the >passenger side laying the seat almost all the way down (now, not before). > >Anyway, I just want you to know that just as you told me, you should not >feel ashamed to vent either! >You have every right to vent just as the rest of us. YOu have ever reason >to do so especially with what you are going through. Keep your strength up >and don't forget about yourself too. I hope your Dad's surgery went well. >Please keep us posted on your lovely wife's situation, as she & you are >deeply remembered here! > >God bless you all! > >TGIF, >Marisol. > > > Re: Re: rob > > > > > good morning, and happy mother's day! > > > >Good afternoon all, > > > >My name is Marisol, and after all the reading I have done within this > >wonderful group ... I'm almost ashamed that I'm here! > > i feel that way sometimes when listening to others. i feel like there >are > other people who are way worse off then i am, yet i am definately one of >the > most vocal when it comes to venting my " poor me " stories. > > > >I have not had any surgeries to my spine or fusion, or anything really. > >In Dec of 2005 I was so bad with Sciatica that I was literally on all >four > >in the ER, I could not stand, and my pain level on the little > " happy-sad > >face chart " was a 10! > >After that, they found me a bed REAL QUICK! > >I was given every pain killer under the sun (or so it felt like it) I >was > >able to limp out of the ER after 2 hrs. Next came the trips to the >Ortho, > >and I was told I had DDD, and an onset of early arthritis (I will be 30 >in > >August) and permanent leg nerve damage, due to staying so long without > >treatment. > > i sort of did the same thing. i worked even though i knew something was > wrong with my back; i needed to work though. so i ended up with two >back > surgeries. one right before turning 30 and one almost a year later for >a > big fusion. > > t be wondering why I was for so long without treatment, truth be told, >while > homeschooling a special needs 7yr son, a 3 yr toddler and 9 yr old >daughter, > taking my son to his PT, OT, and ST 3X a week and having our own farm >... I > kind of am guilty of just passing it off as " just a sore back " till I >was in > bed for a day ... then it was a " pulled back " then I found that I was in >bed > for 2 days ... this was a " back went out " stage for me and so, on and >on I > kept telling myself it would get better ... well, then came the ER >scenario > ... and now back to the ORtho visit where I just started bawling when I >was > told I had permanent nerve damage in my leg ... I could not sit, my >trips > were me laying down in the back with the back seat down, I don't know >how > we were never stopped by the police?? > >Anyway, I received two cortisone shots a month apart from one another, >and > >that's it. I still have soreness and some pain and there are just >position > >I can NOT get into like sitting STILL, but hey, I'm thankful I can get >out > >of bed and work with my children. > >I can no longer drive because of the sitting issues, so my son does his > >therapies at home and we are all chugging along here ...slowly but >surely. > >> I just wish there where exercises I could do to strengthen my >abdominal > >>muscles to help my back ... oh almost forgot .. I also lost 54lbs and >my > >>husband and I think that has also helped my back?? who knows, it's >just > >>our theory? > > i lost approx. 50 lbs in an effort to help my back. i think it helped >some, > but like you i want to strengthen my stomach in an effort to help my >back. > but i haven't found any excersises i can physicaly do. sitting is my >worst > position, followed by standing still. driving is easier for me then >being > the passenger (i can not lay down in our vehicle) i use the steering >wheel > for support and to help adjust my position. i also think knowing when >im > about to hit a bump or pot hole also helps me to brace mmyself a little. > > >I firmly believe the Lord put His divine hand on me and has maintained >me > >how I am, but sure do get nervous some days, when it takes me 10 mins >to > >get out of bed instead of 1! > >To Rob and family, keep up your strength and don't lose your hope, >better > >times are ahead. You and your family are pressing on our hearts and >with > >your permission I would like to add you all to our prayer list in our > >church? > > i would greatly appreciate, and am very touched that you would do this >for > us. we haven't made it to church in quite some time; at least a month. > which is really bad, but i try and keep her around the house lately >because > of her seizures. last night we were talking in bed and i noticed she >was > kind of spacing out. i asked if she was ok and she said she was fine >and > didn't know what i was talking about. she went to stand up and get > something and only made it as far as swinging her legs off the bed >before > starting to seize. it is not plesant and quite a scary site. plus now > that i can't call for any help i have to sit and watch her go through >about > 2-4 seizures before she totally regains consciousness. hopefully the > nerologist will be able to help her tomorrow. > have you tried getting a pain management doctor? they should be able to > help you with the pain that the shots don't get rid of. you should > definately not feel ashamed for being in this group. your pain is just >as > real as the rest of ours! i'm glad that you found us (the group) and >hope > you get the help and support you need. thank you again it means alot >and > helps alot as i am a mental basket case lately. > take care > > rob > > > >~~~ > >I am super impress with all that write in and are so brave with there >pains > >and there with their situations. I feel moved everyday with everyone's > >strength. CONGRATS & THANK YOU!! > > > >God bless you all. > > > >Many Kind Regards, > >Sam & Marisol. > > > > > > > _________________________________________________________________ > Express yourself instantly with MSN Messenger! Download today - it's >FREE! > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ > > > > > > Quote Link to comment Share on other sites More sharing options...
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