Re: Appointment with rheumy today

[Guest guest]

:  I will be thinking of you. Give us update when you can.  Hope you had a

wonderful birthday!!!

 

Sending prayers & happy thoughts,

Beth

________________________________

From: Salvucci <lsalvucci42@...>

Sent: Thursday, December 18, 2008 11:24:06 AM

Subject: Appointment with rheumy today

I have an appointment with my rheumy today the first one since starting back on

treatment. I have noticed such a huge improvement and I am hoping she sees it as

well. My fingers are finally hypermobile again which means the swelling is no

longer impairing my ability to straighten them out all the way (Ok I'm not

doctor but that is my assessment of the situation). So we will see how it goes,

I really have only one complaint which is my left knee so I have my fingers

crossed and I am hoping that everything goes well. Keep me in your thoughts.

Love always,

(MCTD, 24)

[Guest guest]

, I've forgotten, what treatment are you on now?? Glad that its working!!!

YAY!

and Rob 19 JAS

Appointment with rheumy today

> I have an appointment with my rheumy today the first one since

> starting back on treatment. I have noticed such a huge

> improvement and I am hoping she sees it as well. My fingers are

> finally hypermobile again which means the swelling is no longer

> impairing my ability to straighten them out all the way (Ok I'm

> not doctor but that is my assessment of the situation). So we

> will see how it goes, I really have only one complaint which is

> my left knee so I have my fingers crossed and I am hoping that

> everything goes well. Keep me in your thoughts.

>

> Love always,

> (MCTD, 24)

>

>

>

>

>

>

[Guest guest]

I am on a low dose of prednisone (5mg once a day). Dr. C was ecstatic about how

well I am doing. She came in and said " you look great! " She said she had been

thinking about me a lot and really hoping this treatment would work, because

unfortunately the other medicines have had so many adverse reactions that there

is always concern about putting me back on them. She said she was a bit worried

that we had run out of options and would have to stick me back on one of the

harsher treatments (while they work the bone marrow supression, perforated

bowel, ect were not great side effects). However it appears that I am doing

fabulous and she wants me to maintain this dose for the next couple of months

and hopefully I will just keep doing better and better. I absolutely love her

though. In the past I wasnt a huge fan because I was seeing one of her fellows

and she would stop by at the end to make sure the fellow covered everything it

didnt seem like she knew who I

was which I hated. Now the fellow is gone and I get to see just her and she

seems to remember everything, like today she asked me if I was on break now or

still teaching kindergarten. She sees a ton of patients and yet she remembered

that. It feels good that she knows about me not just my disease. But she was

incredibly happy with how I was doing and glad that I am feeling well. I am

getting an MRI on my left knee because it hasn't responded too well to the

prednisone and she wants to make sure that we aren't missing anything. So it was

a great appointment, I don't have to go back for three months, and the treatment

is working. All in all I am feeling quite happy.

With Love,

(MCTD, 24)

From: and Schulz <snooksmama@...>

Subject: Re: Appointment with rheumy today

Date: Thursday, December 18, 2008, 5:24 PM

, I've forgotten, what treatment are you on now?? Glad that its

working!!! YAY!

and Rob 19 JAS

Appointment with rheumy today

@group s.com

> I have an appointment with my rheumy today the first one since

> starting back on treatment. I have noticed such a huge

> improvement and I am hoping she sees it as well. My fingers are

> finally hypermobile again which means the swelling is no longer

> impairing my ability to straighten them out all the way (Ok I'm

> not doctor but that is my assessment of the situation). So we

> will see how it goes, I really have only one complaint which is

> my left knee so I have my fingers crossed and I am hoping that

> everything goes well. Keep me in your thoughts.

>

> Love always,

> (MCTD, 24)

>

>

>

>

>

>

[Guest guest]

Hi ,

    That is so awesome to hear that you are doing better!!

     You are right about Fellows and Doctors! Maggie goes to the University of

Iowa Childrens Hospital and it is students,residents,fellows and FINALLY the

actual doctor. Sometimes it gets overwhelming for me as a parent but it is

certainly overwhelming to her as the patient and the child. We have asked for

now to just please see her actual doctor to keep her anxiety levels down, also

it helps her to NOT have to explain and explain things, by the time her doctor

got in the room she was basically done speaking to any of them.

  We will be keeping you in our prayers!! Have a wonderful holiday!!

    Diane and Maggie

From: and Schulz <snooksmama@insightb b.com>

Subject: Re: Appointment with rheumy today

@group s.com

Date: Thursday, December 18, 2008, 5:24 PM

, I've forgotten, what treatment are you on now?? Glad that its working!!!

YAY!

and Rob 19 JAS

Appointment with rheumy today

@group s.com

> I have an appointment with my rheumy today the first one since

> starting back on treatment. I have noticed such a huge

> improvement and I am hoping she sees it as well. My fingers are

> finally hypermobile again which means the swelling is no longer

> impairing my ability to straighten them out all the way (Ok I'm

> not doctor but that is my assessment of the situation). So we

> will see how it goes, I really have only one complaint which is

> my left knee so I have my fingers crossed and I am hoping that

> everything goes well. Keep me in your thoughts.

>

> Love always,

> (MCTD, 24)

>

>

>

>

>

>

[Guest guest]

It seems like the more interesting the medical case the more random doctors you

see during one appointment too. It can be frustrating

Sent via BlackBerry by AT & T

Re: Appointment with rheumy today

@group s.com

Date: Thursday, December 18, 2008, 5:24 PM

, I've forgotten, what treatment are you on now?? Glad that its working!!!

YAY!

and Rob 19 JAS

Appointment with rheumy today

@group s.com

> I have an appointment with my rheumy today the first one since

> starting back on treatment. I have noticed such a huge

> improvement and I am hoping she sees it as well. My fingers are

> finally hypermobile again which means the swelling is no longer

> impairing my ability to straighten them out all the way (Ok I'm

> not doctor but that is my assessment of the situation). So we

> will see how it goes, I really have only one complaint which is

> my left knee so I have my fingers crossed and I am hoping that

> everything goes well. Keep me in your thoughts.

>

> Love always,

> (MCTD, 24)

>

>

>

>

>

>