Guest guest Posted December 14, 2008 Report Share Posted December 14, 2008 I'm Kris, I am a young mom of a 2yr old little man name . About 3 weeks ago my son was dx with Still's Disease (Systemic-Onset Juvenile Rheumatoid Arthritis). He is taking Anakinra and steroids and is so much better, A total different kid. He still is in pain sometimes. We have our second rumy doctor appointment Tuesday. Last time it didn't go so well because we was so tired. I hope they can better assess him and they are doing the first blood work since the dx. Please can ya wish us luck. And if i don't get back on here before Christmas. I hope you all have a safe and merry one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2008 Report Share Posted December 20, 2008 Hi Kris! Welcome to this group. I have an 8 year old daughter that was diagnosed with systemic jra at the age of 3. I know how scary it can be at first. That is wonderful that has responded to kineret. There have been so many new drugs since my daughter was diagnosed. We have had many ups and downs, but through it all my daughter is a very happy girl and excels at academics. You have to redefine " normal " for your family. Take care and feel free to ask questions. Sophie 's mom, age 8, systemic jra > > I'm Kris, I am a young mom of a 2yr old little man name . About 3 > weeks ago my son was dx with Still's Disease (Systemic-Onset Juvenile > Rheumatoid Arthritis). He is taking Anakinra and steroids and is so > much better, A total different kid. He still is in pain sometimes. We > have our second rumy doctor appointment Tuesday. Last time it didn't > go so well because we was so tired. I hope they can better assess him > and they are doing the first blood work since the dx. Please can ya > wish us luck. And if i don't get back on here before Christmas. I hope > you all have a safe and merry one. > Quote Link to comment Share on other sites More sharing options...
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