ELLIE!!!!!!!!!!!!!!!!

[Guest guest]

Hi Ellie! I'm so glad to see you posting! Can you believe, I was just thinking

about you the other day. I was also so glad to hear that Riley is STILL in

remission! WOW!! Miraculous!

Rob is now 19 and he is also in remission!! He is off all meds now. He was

allowed to go off the methotrexate, and he decided to wean himself off the

Enbrel, too. He is getting buff and working out several days a week. He had

surgery a year and a half ago to correct his chest deformity (it was pressing on

his heart). He will get the titanium bar out in 2009; he is hoping for getting

it out spring break. He is a 3rd semester freshman at IUPUI in Indianapolis and

majoring in criminal justice. I'm so proud of him!

Dear Uncle Rusty just underwent several major surgeries for a fracture in his

spine. He is in a halo traction device for months until it heals. He is also

doing great and has his usual amazing spirit.

I am so glad we got to meet you in person in San Diego, way back in 2004. It is

so good to see you posting and hear the good news! How are Skylar and your

hubbie?

and Rob 19 JAS

hi

> Hi everyone, it has been so long since I have checked in with

> the JRA list. For those of you

> who remember us, Riley is still blessed with remission after

> almost 3 years.

>

> I wanted to check and see how everyone's doing. Everybody on

> this list weather or not I know

> them on a personal level are in my nightly prayers.

>

> I also wanted to mention a 2 day soccer camp in Culver City, CA

> called Camp Courage. If any

> one is in the Los Angeles area and you would like information

> please let me know. This camp

> has been created by a 15 year old girl named a who was

> diagnosed with Poly JRA a

> year ago. She is the camps founder and

> director...amazing. The dates are December 20th

> and 21st from (I think) 8:30 am to 12:30 pm both days. Her

> mother asked me to mention it

> to any one that I thought might be interested. Riley will

> be attending.

>

> Thanks!

>

> Ellie

> mom to Riley 11 poly

>

>