Re: Help needed please! Joann

January 7, 2011

Kaylee is currently on 4mg of Intuniv; she's been on that dose for about 3 weeks

now.

I have seen no signs of that contributing to her fatigue. Kaylee takes it to

help with

her ODD. It has seemed to help. I have seen no signs of side effects and Kaylee

has done well on it. She started out on 1mg and now is on 4mg. Hope this helps.

, Kaylee 8

Re: Help needed please!

Hi ,

I understand how worrisome and frustrating (because you want to fix it) Kaylee's

fatigue must be; I agree with n that the JIA can cause a lot of fatigue. My

daughter is almost 21, yet she often takes naps and may sleep the better part of

a weekend if it has been a too busy week - her body demands it. That being said,

whoever mentioned having her thyroid checked, I agree. Also, has she been

checked for anemia? Both were a problem for my daughter (she has autoimmune

thyroid disease) - treatment helps but even so, her fatigue is significant. She

has accepted it as part of her illness and most of the time adjusts accordingly,

but sometimes thinks she can do as much as her peers and it catches up with her.

I don't know what meds Kaylee is taking but does she take folic acid? My rheumy

says it is most needed to help prevent anemia from RA/JIA meds.

Ask Kaylee's primary dr if they will do some blood work to check her blood count

and thyroid.

I hope things improve.

(, 20, poly, PIDD, hashimotos)

> Kaylee, 8 : Ext. Oligo, Uveitis, ADHD and ODD

>

> Kaylee has been extremely tired lately and no one seems to know why.

> She saw the rheumy Dec 7th and I talked with her about it and she insists it

is not from her JA. It doesn't seem to be getting any better and she just

started back to school yesterday and was out today. She slept til 1pm. I tried

looking at some causes, but there are so many and I don't know which way to go

or turn. Can someone please help?

> I looked at Celiac Disease, Crohn's Disease, and Chronic Fatige syndrome, but

not sure that she fits any of those. What do I do?

> Kaylee has so many issues currently going on with the ADHD and ODD that it

keeps me in a turmoil; her dad isn't supportive in matters like this at all. I

appreciate any help.

> THanks

> and Kaylee, 8

>

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