Re: Update about contacting congress, etc about my daughter and no healthcare

[Guest guest]

e;

It took about 2 months for us to get a reply. As I said, Evan Bayh was the one

who helped us.

Have you thought about contacting the media? If you could get a reporter to do a

story on Joe, I think it would help a lot. Once they see the ridiculousness of

the situation in the paper, they usually take it more seriously. Please keep us

posted.

Most of all, CONGRATULATIONS to Joe!!! WOW!!!!!!!!!!!!!

and Rob 19 JAS

Update about contacting congress, etc about my daughter and no

healthcare

> Well, I have to say, it has been rather disappointing. Out of

> the more than 10 letters I sent out I only heard from 2. One was

> a guy from the local state congress person who basically said

> there is nothing he can do. He contacted people who gave him the

> same run around as I have received. The other was a national

> senator's office who were so rude it was ridiculous. After

> speaking with the DSHS office consumer complaint dept who it

> appears has the job of saying " I'm sorry ma'am and how does that

> make you feel? " --I found out my daughter can qualify for

> medical if she were pregnant, in jail, or an illegal alien but

> as a college student she should be able to work full time and

> receive benefits. They reviewed her records and she is stable on

> medication--really? And so therefore she does not qualify. I

> mentioned how she would become rapidly unstable without her

> Remicade etc and would end up in the ER or hospital and was told

> they would cover her then. I can't

> believe they would rather pay emergency bills than keep

> her stable. She will graduate from university in 9 days but the

> possibility of finding full-time employment soon in her field is

> highly unlikely. That doesn't mean we aren't praying for a

> miracle here. We joke around that instead of marrying a man for

> a green card (like in some movie we watched) she'll marry him

> for health insurance!!!

>

> e, mom to " joe " 21 poly/lupus (and we just found out

> severely deficient in Vitamin D) who will graduate from

> University on the 13th!!!!--Take that JRA!!!!!!)

>

>

>

>

>

[Guest guest]

e:

Despiste the insurance issue (which I know is huge) please tell Joe how proud of

her we are.  She is a role model to every child on this list.  She will inspire

so many to not give up and pursue their dreams.  What an awesome Christmas gift

for all of you!

What are they doing for her vitamin D deficiency?  Hannah is also very

deficient, we go back next week for more labs...

Beth & Hannah, 12, unspecified arthritis; asthma; gerd; migraines & vitamin D

deficiency.

 

Sending prayers & happy thoughts,

Beth

________________________________

From: bound for london <boundforlondon@...>

Sent: Friday, December 5, 2008 2:22:59 AM

Subject: Update about contacting congress, etc about my daughter and no

healthcare

Well, I have to say, it has been rather disappointing. Out of the more than 10

letters I sent out I only heard from 2. One was a guy from the local state

congress person who basically said there is nothing he can do. He contacted

people who gave him the same run around as I have received. The other was a

national senator's office who were so rude it was ridiculous. After speaking

with the DSHS office consumer complaint dept who it appears has the job of

saying " I'm sorry ma'am and how does that make you feel? " --I found out my

daughter can qualify for medical if she were pregnant, in jail, or an illegal

alien but as a college student she should be able to work full time and receive

benefits. They reviewed her records and she is stable on medication-- really?

And so therefore she does not qualify. I mentioned how she would become rapidly

unstable without her Remicade etc and would end up in the ER or hospital and was

told they would cover her then. I can't

believe they would rather pay emergency bills than keep her stable. She will

graduate from university in 9 days but the possibility of finding full-time

employment soon in her field is highly unlikely. That doesn't mean we aren't

praying for a miracle here. We joke around that instead of marrying a man for a

green card (like in some movie we watched) she'll marry him for health

insurance!!!

 

e, mom to " joe " 21 poly/lupus (and we just found out severely deficient

in Vitamin D) who will graduate from University on the 13th!!!!--Take that

JRA!!!!!!)