Warped perception?

[Guest guest]

G'day all,

I write, embarrassed, but have to be totally honest in order to be of

benefit to anyone here, including myself.

Do you think we have a warped perception of everyday life, because of

this disease?

Do you think that at times we have higher expectations for our children-

because they overcome so much- that the little things are blown out of

proportion?

Bayly wet the bed again this morning. And I was very cranky about it.

Not because he wet the bed, but the reason why: he didn't want to get

cold feet.

This isn't the first time he's wet the bed, and won't be the last I

know, but every other time has been because he's too stiff or sore to

get out of bed to go to the toilet. Those are the days that I carry him

to the bath to warm and wash him. And though I can tell you, I am so

sick of stripping/washing/making beds, and it hurts my back something

fierce to do it or to carry my 6 y.o. boy...I still don't get as mad as

I did this morning. And let's face it, taking a mattress outside to try

find sunshine probably isn't as heavy as my 20 kilo son, but I grumbled

the entire time!

Mind you, HE grumbled because I made him take a shower instead of a

bath. (I wanted to get him clean, quick!)

Now I feel guilty and ashamed of myself for being so cross because it's

absolutely NORMAL for a 6 y.o. to do things like this. I think I expect

too much of him, because he is so capable and extraordinary in so many

other ways. I mean, he even came up with the solution for not getting

cold feet when getting out of bed in winter - wear socks to bed! []

I guess I just needed a reality check.

Jo

Bayly, 6, extended oligo