Guest guest Posted August 23, 2003 Report Share Posted August 23, 2003 > told me the more records I send, the better. I am a > revision and have had 4 (soon to be 5) abdominal surgeries including > ectopic pregnancy, RNY gastric bypass, hernia and hysterectomy, > gallbladder, and now oophorectomy/appendectomy. He wants the records > from the RNY and the hernia and will probably want the ones from this > week also. > > > Laurie Well, that makes sense since you are a re-do. Ugh! I don't envy him, he will have lots of reading material, then! Marta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2003 Report Share Posted August 23, 2003 > > Well, that makes sense since you are a re-do. Ugh! I don't envy > him, he will have lots of reading material, then! > LOL...I've only been going to the Marshfield Clinic for 10 years and have 4 charts that are about 6 inches high when stacked on top of each other. Good thing he doesn't ask for ALL the records. At .10 cents a page that could cost as much as the surgery!!!!! 8^) I paid for 50 pages and hopefully they won't need to copy more than that. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Tim Take a look at this website http://www.rushcliff.com/pps/index.html They produce a medical records database for multiple locations, with central data storage, which may just be what your looking for. This is something that I looked at some time ago for a similar situation as yourself, although it didn't develop into anything due to lack of support from onshore. I had some communcations with the company and it looked as if it would do the job The licencing isn't too expensive. Best regards Colin Marshall Original Message: ----------------- From: Tim Betts tim.betts@... Date: Wed, 01 Nov 2006 11:33:41 -0000 Subject: Medical Records Good morning all from a stormy North Sea. I am currently looking into the issue of medical records software for use in the field. What we are after is a database for recording patient consultations, examinations, health surveillance etc. We do not need anything too complex - simple is always good in my opinion... We require a system which will allow all patients to be logged centrally as we like many have a large number of personnel moving about the field. One of my colleagues is looking at bespoke systems whereas I am trying to find an off the shelf system that will meet our needs. If any of you could share any thoughts, leads or advice on this I would be very grateful. Thanks in anticipation Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 I would consider looking at the document that was recently posted on this site from I think 2006 that puts an outline together of HOW TO Diagnose treat PIDs. It was Fantastic because it was EXPLICIT about aggressive use of antibiotics with these kids etc etc. You might just say you found it and thought it might be helpful to her because it has a very clear course of treatment and that it is put out from Asthma, Allergy and Immunologist Association. It may not be as awkward as specifically confronting. But instead reinforcing the standard of care that you expect for you sons. If you did not download it let me know I should be able to pull it up for you. BARBIE Medical Records Ok I want to pose an interesting question, and am interested in peoples views.No rights or wrongs I just want others opinions. So I am collecting more of my kids records as Max and will be going to National Jewish in September for a 2nd opinion by an immunologist there. I am hand deliviering the records next week. As I was looking through the peds records ( this is a new ped to us as we just moved from MN to NM in April and have only had this ped since May) I saw some comments and notations regarding my sons that proves she not only does not understand PIDD, but that she also has not been listening to what I've been saying about the boys' history. Nor has she spoken with our previous pediatricians (whom I adored) like she stated she would. Had she talked to our old peds they would have been able to explain them and the reasons why we treat so aggressively etc. That said... I am wondering if I should confront this ped aobut these notations and why she hasn't called our old ped etc. etc. I don't want to switch peds AGAIN (this is our 2nd one in NM the 1st did NOT work out well at all) so I really would rather get her on the same page if I can. One of the comments that really bothered me was that she stated that she didn't want to keep " throwing antibiotics at them " because she is unsure of their specific type of immune deficiency and if she knew what she was dealing with she would be more comfortable. Thank you for listening to me vent. I am so frustrated I could scream!!! We have worked very hard in the past to keep our kids looking so healthy, and I feel I have to jepordize that to get these people to listen. Thanks Missy Mom to 10, hypogamma, antibody deficiency, neutropenia, GERD, asthma, hypoplastic sinus', Max 2, antibody deficiency, T cell dysfunction, anemia, GERD, asthma, hypoplastic sinus' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2008 Report Share Posted August 7, 2008 if you can find it I would appreciate it, I don't have it. That would be a great way to help me reinforce my expectations, without seemingly overly biased and have hard core facts besides. Thanks in advance... Missy From: Barbara Jimenez <mother5590@...> Subject: Re: Medical Records Date: Thursday, August 7, 2008, 7:17 PM I would consider looking at the document that was recently posted on this site from I think 2006 that puts an outline together of HOW TO Diagnose treat PIDs. It was Fantastic because it was EXPLICIT about aggressive use of antibiotics with these kids etc etc. You might just say you found it and thought it might be helpful to her because it has a very clear course of treatment and that it is put out from Asthma, Allergy and Immunologist Association. It may not be as awkward as specifically confronting. But instead reinforcing the standard of care that you expect for you sons. If you did not download it let me know I should be able to pull it up for you. BARBIE Medical Records Ok I want to pose an interesting question, and am interested in peoples views.No rights or wrongs I just want others opinions. So I am collecting more of my kids records as Max and will be going to National Jewish in September for a 2nd opinion by an immunologist there. I am hand deliviering the records next week. As I was looking through the peds records ( this is a new ped to us as we just moved from MN to NM in April and have only had this ped since May) I saw some comments and notations regarding my sons that proves she not only does not understand PIDD, but that she also has not been listening to what I've been saying about the boys' history. Nor has she spoken with our previous pediatricians (whom I adored) like she stated she would. Had she talked to our old peds they would have been able to explain them and the reasons why we treat so aggressively etc. That said... I am wondering if I should confront this ped aobut these notations and why she hasn't called our old ped etc. etc. I don't want to switch peds AGAIN (this is our 2nd one in NM the 1st did NOT work out well at all) so I really would rather get her on the same page if I can. One of the comments that really bothered me was that she stated that she didn't want to keep " throwing antibiotics at them " because she is unsure of their specific type of immune deficiency and if she knew what she was dealing with she would be more comfortable. Thank you for listening to me vent. I am so frustrated I could scream!!! We have worked very hard in the past to keep our kids looking so healthy, and I feel I have to jepordize that to get these people to listen. Thanks Missy Mom to 10, hypogamma, antibody deficiency, neutropenia, GERD, asthma, hypoplastic sinus', Max 2, antibody deficiency, T cell dysfunction, anemia, GERD, asthma, hypoplastic sinus' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 , here is the link: http://www.guideline.gov/summary/summary.aspx? ss=15 & doc_id=7500 & nbr=4445. Hope this helps. Best wishes, mom to Mark 7 CVID > > From: Barbara Jimenez <mother5590@...> > Subject: Re: Medical Records > > Date: Thursday, August 7, 2008, 7:17 PM > > > > > > > I would consider looking at the document that was recently posted on this site from I think 2006 that puts an outline together of HOW TO Diagnose treat PIDs. It was Fantastic because it was EXPLICIT about aggressive use of antibiotics with these kids etc etc. You might just say you found it and thought it might be helpful to her because it has a very clear course of treatment and that it is put out from Asthma, Allergy and Immunologist Association. It may not be as awkward as specifically confronting. But instead reinforcing the standard of care that you expect for you sons. If you did not download it let me know I should be able to pull it up for you. > > BARBIE > > Medical Records > > Ok I want to pose an interesting question, and am interested in peoples views.No rights or wrongs I just want others opinions. > > So I am collecting more of my kids records as Max and will be going to National Jewish in September for a 2nd opinion by an immunologist there. I am hand deliviering the records next week. > > As I was looking through the peds records ( this is a new ped to us as we just moved from MN to NM in April and have only had this ped since May) I saw some comments and notations regarding my sons that proves she not only does not understand PIDD, but that she also has not been listening to what I've been saying about the boys' history. Nor has she spoken with our previous pediatricians (whom I adored) like she stated she would. Had she talked to our old peds they would have been able to explain them and the reasons why we treat so aggressively etc. > > That said... I am wondering if I should confront this ped aobut these notations and why she hasn't called our old ped etc. etc. I don't want to switch peds AGAIN (this is our 2nd one in NM the 1st did NOT work out well at all) so I really would rather get her on the same page if I can. One of the comments that really bothered me was that she stated that she didn't want to keep " throwing antibiotics at them " because she is unsure of their specific type of immune deficiency and if she knew what she was dealing with she would be more comfortable. > > Thank you for listening to me vent. I am so frustrated I could scream!!! We have worked very hard in the past to keep our kids looking so healthy, and I feel I have to jepordize that to get these people to listen. > > Thanks > Missy > Mom to > 10, hypogamma, antibody deficiency, neutropenia, GERD, asthma, hypoplastic sinus', > Max 2, antibody deficiency, T cell dysfunction, anemia, GERD, asthma, hypoplastic sinus' > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 I can't get that link to pull up .. Medical Records > > Ok I want to pose an interesting question, and am interested in peoples views.No rights or wrongs I just want others opinions. > > So I am collecting more of my kids records as Max and will be going to National Jewish in September for a 2nd opinion by an immunologist there. I am hand deliviering the records next week. > > As I was looking through the peds records ( this is a new ped to us as we just moved from MN to NM in April and have only had this ped since May) I saw some comments and notations regarding my sons that proves she not only does not understand PIDD, but that she also has not been listening to what I've been saying about the boys' history. Nor has she spoken with our previous pediatricians (whom I adored) like she stated she would. Had she talked to our old peds they would have been able to explain them and the reasons why we treat so aggressively etc. > > That said... I am wondering if I should confront this ped aobut these notations and why she hasn't called our old ped etc. etc. I don't want to switch peds AGAIN (this is our 2nd one in NM the 1st did NOT work out well at all) so I really would rather get her on the same page if I can. One of the comments that really bothered me was that she stated that she didn't want to keep " throwing antibiotics at them " because she is unsure of their specific type of immune deficiency and if she knew what she was dealing with she would be more comfortable. > > Thank you for listening to me vent. I am so frustrated I could scream!!! We have worked very hard in the past to keep our kids looking so healthy, and I feel I have to jepordize that to get these people to listen. > > Thanks > Missy > Mom to > 10, hypogamma, antibody deficiency, neutropenia, GERD, asthma, hypoplastic sinus', > Max 2, antibody deficiency, T cell dysfunction, anemia, GERD, asthma, hypoplastic sinus' > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 When I tried it, I couldn't either. Type in " Practice Parameter for Diagnosis and Management of primary immunodeficiency " in your search engine.. Choose the one that has guideline.gov/summary... Sorry about the technical failure! It must be the computer's fault... Best wishes, mom to Mark 7, CVID > > > > From: Barbara Jimenez <mother5590@ ...> > > Subject: Re: Medical Records > > groups (DOT) com > > Date: Thursday, August 7, 2008, 7:17 PM > > > > > > > > > > > > > > I would consider looking at the document that was recently posted > on this site from I think 2006 that puts an outline together of HOW > TO Diagnose treat PIDs. It was Fantastic because it was EXPLICIT > about aggressive use of antibiotics with these kids etc etc. You > might just say you found it and thought it might be helpful to her > because it has a very clear course of treatment and that it is put > out from Asthma, Allergy and Immunologist Association. It may not be > as awkward as specifically confronting. But instead reinforcing the > standard of care that you expect for you sons. If you did not > download it let me know I should be able to pull it up for you. > > > > BARBIE > > > > Medical Records > > > > Ok I want to pose an interesting question, and am interested in > peoples views.No rights or wrongs I just want others opinions. > > > > So I am collecting more of my kids records as Max and will be > going to National Jewish in September for a 2nd opinion by an > immunologist there. I am hand deliviering the records next week. > > > > As I was looking through the peds records ( this is a new ped to us > as we just moved from MN to NM in April and have only had this ped > since May) I saw some comments and notations regarding my sons that > proves she not only does not understand PIDD, but that she also has > not been listening to what I've been saying about the boys' history. > Nor has she spoken with our previous pediatricians (whom I adored) > like she stated she would. Had she talked to our old peds they would > have been able to explain them and the reasons why we treat so > aggressively etc. > > > > That said... I am wondering if I should confront this ped aobut > these notations and why she hasn't called our old ped etc. etc. I > don't want to switch peds AGAIN (this is our 2nd one in NM the 1st > did NOT work out well at all) so I really would rather get her on the > same page if I can. One of the comments that really bothered me was > that she stated that she didn't want to keep " throwing antibiotics at > them " because she is unsure of their specific type of immune > deficiency and if she knew what she was dealing with she would be > more comfortable. > > > > Thank you for listening to me vent. I am so frustrated I could > scream!!! We have worked very hard in the past to keep our kids > looking so healthy, and I feel I have to jepordize that to get these > people to listen. > > > > Thanks > > Missy > > Mom to > > 10, hypogamma, antibody deficiency, neutropenia, GERD, asthma, > hypoplastic sinus', > > Max 2, antibody deficiency, T cell dysfunction, anemia, GERD, > asthma, hypoplastic sinus' > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 , I just wanted to make sure that you knew about #2 (below). Also, please know that a good specialist has usually " seen it all " and knows that you're there because you received unsatisfactory or incomplete care. They typically put more stock into " objective data " like labs, CT scans, etc. Still, you could talk with the nurse at National Jewish if you are concerned...and express that some of the records are not accurate and see how the docs deal with that. If there is something they'd like you to do... (see below) _____________ This comes from the U.S. Dept of Health and Human Services, Office of Civil Rights http://www.hhs.gov/ocr/hipaa/consumer_rights.pdf This is a brief summary of your rights and protections under the federal health information privacy law. Providers and health insurers who are required to follow this law must comply with your right to: 1. Ask to see and get a copy of your health records (within 30 days, but this can be extended for another 30 days if you are given a reason.) 2. Have corrections added to your health information.You can ask to change any wrong information in your file or add information to your file if it is incomplete. For example, if you and your hospital agree that your file has the wrong result for a test, the hospital must change it. Even if the hospital believes the test result is correct, you still have the right to have your disagreement noted in your file. In most cases the file should be changed within 60 days, but the hospital can take an extra 30 days if you are given a reason. 3. Receive a notice that tells you how your health information is used and shared. You can learn how your health information is used and shared by your provider or health insurer. They must give you a notice that tells you how they may use and share your health information and how you can exercise your rights. In most cases, you should get this notice on your first visit to a provider or in the mail from your health insurer, and you can ask for a copy at any time. Get a report on when and why your health information was shared. You can get this report for free once a year. 4. You can ask your provider or health insurer not to share your health information with certain people, groups, or companies. For example, if you go to a clinic, you could ask the doctor not to share your medical record with other doctors or nurses in the clinic. However, they do not have to agree to do what you ask. File complaints If you believe your information was used or shared in a way that is not allowed under the privacy law, or if you were not able to exercise your rights, you can file a complaint with your provider or health insurer. The privacy notice you receive from them will tell you who to talk to and how to file a complaint. You can also file a complaint with U.S. Government. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 Oh my goodnes, YES! I would ask why. You are to be a team, and and Max need to be followed very closly. She can NOT drop the ball with them. Here is the good old... " sick, but not " that I hate. Is there a tactfull way, maybe through e-mail, that you can ask her? Just my two cents because I have followed your kiddos for about a year and would not like to be placated in any situation, but especially not with my children's health. www.caringbridge.org/visit/alexsmith @...: m_boggio@...: Thu, 7 Aug 2008 14:15:59 -0700Subject: Medical Records Ok I want to pose an interesting question, and am interested in peoples views.No rights or wrongs I just want others opinions. So I am collecting more of my kids records as Max and will be going to National Jewish in September for a 2nd opinion by an immunologist there. I am hand deliviering the records next week. As I was looking through the peds records ( this is a new ped to us as we just moved from MN to NM in April and have only had this ped since May) I saw some comments and notations regarding my sons that proves she not only does not understand PIDD, but that she also has not been listening to what I've been saying about the boys' history. Nor has she spoken with our previous pediatricians (whom I adored) like she stated she would. Had she talked to our old peds they would have been able to explain them and the reasons why we treat so aggressively etc. That said... I am wondering if I should confront this ped aobut these notations and why she hasn't called our old ped etc. etc. I don't want to switch peds AGAIN (this is our 2nd one in NM the 1st did NOT work out well at all) so I really would rather get her on the same page if I can. One of the comments that really bothered me was that she stated that she didn't want to keep " throwing antibiotics at them " because she is unsure of their specific type of immune deficiency and if she knew what she was dealing with she would be more comfortable. Thank you for listening to me vent. I am so frustrated I could scream!!! We have worked very hard in the past to keep our kids looking so healthy, and I feel I have to jepordize that to get these people to listen. ThanksMissyMom to 10, hypogamma, antibody deficiency, neutropenia, GERD, asthma, hypoplastic sinus', Max 2, antibody deficiency, T cell dysfunction, anemia, GERD, asthma, hypoplastic sinus'[Non-text portions of this message have been removed] _________________________________________________________________ Get Windows Live and get whatever you need, wherever you are. Start here. http://www.windowslive.com/default.html?ocid=TXT_TAGLM_WL_Home_082008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 About 5 years ago when I was trying to get hold of records from one of my drs., I was told that they were sent off-site to a warehouse. It would take quite awhile to procure them as the dr. had a large practice, even though it was just himself and one other dr. He also did lab work and x-rays on site, so he was very popular, in Las Vegas that's not the norm-you see a primary care dr. and then get an appt. with a separate lab to do lab. and x-rays. So I had to wait a couple months while they went digging in the warehouse for my files and all that came with it. I saw him for many years, so I had more than one file. Maybe that's what's taking awhile for you to receive your records. A lot of offices just don't have the space to keep all their patients' files onsite.I'm clueless on how you'd know if you had received all your info. Through the years I've just kept a journal of what procedure or surgery was done, when and where it was done and what medications I'm currently taking. Maybe someone else in this group can help you out with the information you need? Good luck in your search Sincerely  Jeannie ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 You'd probably get better results if your doctor was sending the request with your authorization. Most places charge money for copies of records but not if they are being sent to your doctor's office. Jennette ________________________________ I'm sure someone (or many of you) here has dealt with obtaining medical records. Do you have any suggestions for me? Is it typically for them to take so long? What do I need to do to ensure that I receive all of my records? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 , the medical records are your personal property...i once had to confront anoffice that i paid for them and they were my property...they proptly suplied them . AQre you familiar with H.I.P.A act? It has to do with records and privacy and access. It has been in effect only a few months but it confirms those records are yours and no one elses and makes it more dificult for anyone to see them with out YOUR permision. MY wife works in health care in EMR (Electronic Medical Records) where the records are computer accessable anywhere with your permission like at the ER so they can see your problems and meds list ect so to better deal with the problem at hand. I will ask her about it and her Email is cse6072@... tell her you talked to Harold and he referred u to her...she can enlighten you better than me as rights and proccesses and laws. hope this helps u! harold_ewing@... ________________________________ From: <damgalnuna@...> neck pain Sent: Monday, August 31, 2009 11:59:46 AM Subject: Medical Records  The current discussion about keeping x-rays reminded me of a question I have regarding medical records. Over the past year, my doctors have been treating me for herniated discs in my lumbar spine. This is a recurring problem. I previously had a herniated disc in 1996 for which I had surgery. And I also had two other surgeries on my back relating to scoliosis. I've recently been trying to obtain copies of my prior medical records, so I am able to provide my doctor with important information (e.g. which disc was previously herniated, what levels were fused during my scoliosis surgery, prior medications, and important dates). However, I've been having difficulty obtaining those records. I submitted requests to four different hospitals / medical care groups, and have only received records from one so far. The requests were sent about a month ago. The dates of care covered are 1992-present. The records I received were from care at one hospital from 1992-2000. However, the amount of records they sent me seems very thin, and doesn't include reports from imaging studies I know they did (I did specifically request this information) . I'm sure someone (or many of you) here has dealt with obtaining medical records. Do you have any suggestions for me? Is it typically for them to take so long? What do I need to do to ensure that I receive all of my records? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Also, if you have a lawyer he can request the same files with no cost if they are sent to him. From: Jennette <rosetazoriginal@...> Subject: Re: Medical Records neck pain Date: Monday, August 31, 2009, 2:41 PM Â You'd probably get better results if your doctor was sending the request with your authorization. Most places charge money for copies of records but not if they are being sent to your doctor's office. Jennette ____________ _________ _________ __ I'm sure someone (or many of you) here has dealt with obtaining medical records. Do you have any suggestions for me? Is it typically for them to take so long? What do I need to do to ensure that I receive all of my records? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 My only question, concern or comment is how do you keep the "bad" guys from accessing the information if it is lost or stolen? Jane From: genericallyloud <jennifer.leggett@...>infantile scoliosis treatment Sent: Fri, August 6, 2010 6:35:41 AMSubject: Medical Records Ok so I just saw this and thought it was pretty cool. http://www.my-bandsonline.com/index.htmIt is a bracelet that has a USB drive that your kids can wear that contains their medical records, x-rays, personal info incase there is an emergency and you aren't there. Just thought I'd share.JennMommy to Cole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 I think most of you know that I am taking my daughter for a second opinion on her arthritis treatment next Tuesday. For the past 11 months or so I have been wanting to make a 3-ring binder of all her medical info that I can get my hands on (and fit into a binder - something about those 16x20 xrays won't fit!). So far for her appointment I have a current med list, lab results, imaging/test results (xrays, MRI, and EMG), therapy notes, and doctor's notes from her office visits. I'm working on a huge list of questions and ideas to talk about with the new doctor as well. Is there anything else you can think of that I should include/get copies of? The last time I asked for a second opinion for her, all I had to carry with me was 6 x-ray pictures. Now I would need half a ream of paper to reproduce what she has! When we saw her first peds rheumy I had asked several times for her records to be faxed from two different places and when we arrived all the doctor had to look at was the last two pages of her therapy evaluation!!! Really frustrating! I'm not going to drive 3 hours from my home to see a doc for her and him not have anything to go on. , the Rotweiler for is (5) psoriatic or pauci (hoping to get some answers soon!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2011 Report Share Posted February 8, 2011 Dear , the Rotweiler Go Girl. I am praying that this rheumy will have time to listen to you and look at what you have for him/her to see. Most of all I pray that they will look at is completly and give her the care she deserves. I have been so blessed to have a good rheumy for Jaye. Actually we are blessed to have an awesom neurologist and pediatrician also that give us all the time we need for each appointment. If you do not get all the answers you want on the first visit give this one a chance to digest all that you give him. I assume that you are making a copy to leave with them and not going to give them your only copy of information. You have to be patient yet persistant and demanding all at the same time. A good rheumy will talk alot to is and ask her questions as well as you. We get the time we need from our rheumy, but our first rheumatologist would maybe give us 10 minutes tops and that is not a joke. Sometimes we were lucky to have her in the room with us for more then five minutes. Our current rheumy looks at every joint. He checks out each finger and each joint in each finger, he checks out each toe, he is very thourough and we are blessed to have him. I actually think that most of the pediatric rheumys out there are that good. There are just a few that do not really have what it takes to work with kids, or should I say the rotweillers that come attached to the kids. Be sure to let us know how it goes. Veri & Jaye 17 poly Medical Records I think most of you know that I am taking my daughter for a second opinion on her arthritis treatment next Tuesday. For the past 11 months or so I have been wanting to make a 3-ring binder of all her medical info that I can get my hands on (and fit into a binder - something about those 16x20 xrays won't fit!). So far for her appointment I have a current med list, lab results, imaging/test results (xrays, MRI, and EMG), therapy notes, and doctor's notes from her office visits. I'm working on a huge list of questions and ideas to talk about with the new doctor as well. Is there anything else you can think of that I should include/get copies of? The last time I asked for a second opinion for her, all I had to carry with me was 6 x-ray pictures. Now I would need half a ream of paper to reproduce what she has! When we saw her first peds rheumy I had asked several times for her records to be faxed from two different places and when we arrived all the doctor had to look at was the last two pages of her therapy evaluation!!! Really frustrating! I'm not going to drive 3 hours from my home to see a doc for her and him not have anything to go on. , the Rotweiler for is (5) psoriatic or pauci (hoping to get some answers soon!) Quote Link to comment Share on other sites More sharing options...
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