Re: Something to contribute

[Guest guest]

The numbing cream is awesome! At our first visit with our current pediatrician,

one of the girls needed a vaccine and they put the cream on it and waited a

while for it to work before giving her the shot and then gave me a prescription

so I could put it on them before future appointments when they would need shots.

I was amazed. I'd never heard of it before. Then when my youngest daughter was

born, they gave me a prescription at her 1 month check up so I'd have it when I

started vaccines! Ella is only 3, but she's started screaming every time she

finds out she has an appointment She's been through SOO much testing and

blood draws the past several months and it breaks my heart.

How is your daughter doing on the Enbrel? I hope she's doing well!

On Feb 22, 2011, at 12:37 PM, Francis wrote:

> I've used a lot of advice from this site and want to share some information.

My daughter has been through a lot during initial testing to determine the cause

of her symptoms by ruling out other causes. We've had numberous blood tests by

random technicians, one I made stop because she was poking around my daughters

vein trying to find it while my daughter sat with tears streaming down her eyes.

We've had an MRI with a dye IV that I wasn't allowed to be with my child during.

(I will never let my child receive a procedure again that I can't be there with

her)

>

> I wrote not long ago that my 12 year old suddenly refused any more shots. Her

JRI (polyarticular) progressed during this time. We had tried everything:

bribing her, scaring her, holding her down, talking to her. We met with a

psychologist.

>

> Here's what finally worked: We got a prescription for EMLA ( a recommendation

I got from this site) and Enbrel in the form that we mix that eliminates the

burning from the preservative in the prefilled form (also a recommendation from

this site). We also switched to the smallest needle we could find. It is 5/16 "

long and 31 gauge. Much smaller than what comes with the Enbrel kit.

>

> I hope this helps someone. I will never give my daughter another blood test or

shot or other test involving needles without the use of numbing cream. I'm angry

that the doctors at Children's hospital didn't provide this information in the

beginning of our treatment? I also don't understand messing around for 2 years

with Methotrexate shots and labs that had little effect when there were way

better biologics available?

>

>

>

>

[Guest guest]

Thank you . I hope that things continue to improve for you. I am glad that

you found something that works for your daughter.

Veri & Jaye 17 poly

Something to contribute

I've used a lot of advice from this site and want to share some information. My

daughter has been through a lot during initial testing to determine the cause of

her symptoms by ruling out other causes. We've had numberous blood tests by

random technicians, one I made stop because she was poking around my daughters

vein trying to find it while my daughter sat with tears streaming down her eyes.

We've had an MRI with a dye IV that I wasn't allowed to be with my child during.

(I will never let my child receive a procedure again that I can't be there with

her)

I wrote not long ago that my 12 year old suddenly refused any more shots. Her

JRI (polyarticular) progressed during this time. We had tried everything:

bribing her, scaring her, holding her down, talking to her. We met with a

psychologist.

Here's what finally worked: We got a prescription for EMLA ( a recommendation I

got from this site) and Enbrel in the form that we mix that eliminates the

burning from the preservative in the prefilled form (also a recommendation from

this site). We also switched to the smallest needle we could find. It is 5/16 "

long and 31 gauge. Much smaller than what comes with the Enbrel kit.

I hope this helps someone. I will never give my daughter another blood test or

shot or other test involving needles without the use of numbing cream. I'm angry

that the doctors at Children's hospital didn't provide this information in the

beginning of our treatment? I also don't understand messing around for 2 years

with Methotrexate shots and labs that had little effect when there were way

better biologics available?