Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 I've used a lot of advice from this site and want to share some information. My daughter has been through a lot during initial testing to determine the cause of her symptoms by ruling out other causes. We've had numberous blood tests by random technicians, one I made stop because she was poking around my daughters vein trying to find it while my daughter sat with tears streaming down her eyes. We've had an MRI with a dye IV that I wasn't allowed to be with my child during. (I will never let my child receive a procedure again that I can't be there with her) I wrote not long ago that my 12 year old suddenly refused any more shots. Her JRI (polyarticular) progressed during this time. We had tried everything: bribing her, scaring her, holding her down, talking to her. We met with a psychologist. Here's what finally worked: We got a prescription for EMLA ( a recommendation I got from this site) and Enbrel in the form that we mix that eliminates the burning from the preservative in the prefilled form (also a recommendation from this site). We also switched to the smallest needle we could find. It is 5/16 " long and 31 gauge. Much smaller than what comes with the Enbrel kit. I hope this helps someone. I will never give my daughter another blood test or shot or other test involving needles without the use of numbing cream. I'm angry that the doctors at Children's hospital didn't provide this information in the beginning of our treatment? I also don't understand messing around for 2 years with Methotrexate shots and labs that had little effect when there were way better biologics available? Quote Link to comment Share on other sites More sharing options...
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