Re: Pain Syndrome for

February 16, 2011

Sorry to hear this! I hope these additional therapies help quickly. Great that

her labs and MRI were perfect! I hope you can get the painful 1/2 of her life

to near perfect as well.

nn

>

> So we had our rhuemy apt yesterday. Good news is arthritis is finally coming

under control. Yeah! MRI was perfect, labs are perfect, and 1/2 the time

seems perfect. The other 1/2 not so good. Dr. feels she has

developed a pain syndrome. Thankful that it isn't something worse although she

will continue to watch carefully. We already know she is in tremendous pain and

now we will try to find a way to alleviate it. Pt, swimming, TENS machine, deep

tissue massage, sleeping meds (starting with Melatonin). I also intend to throw

in Reiki and Hypnotherapy. Hopefully with time and these therapies she can

re-train her brain and nervous system not to over-react to pain. Thanks to

those who shared their stories. You were bothright our kids are going thru

similar things. Any tips from those that have dealt with this are more than

welcome!!

> Thank you,

> Kirsten, mom to , 6, spondy & now " Pain Syndrome "

>

February 18, 2011

Hi! Well our experiences with pain disorders started a while back. My advice?

See a pain specialist. It helped me A LOT. Sometimes the pain doctor would do

more than the rhuemy. She does NOT need to be on heavy duty pain killers. Once

you get those than all of the milder pills don't feel like relief, even though

it is. I suggest clonidine, I was on it for a while until our pharmacy messed it

up and it caused blood pressure issues that wouldn't go away. Keep it in low

doses and she should be fine. melatonin is you best friend. There is also a book

about pain syndromes that our doctor gave us. If you would like that than please

let me know and i will get the title and author. In the book it explains that

some pain syndromes are similar to " phantom pains " after and amputation. When

your brain sends so many signals of pain sometimes it gets confused and sends

pain even though it's not supposed to be hurting. Phantom pains are when after

something is amputated you feel pain where that amputated body part used to be.

(so this means that if you ask a doctor to cut off your leg because it hurts so

bad, you probably won't solve anything)

I wish you luck

Xoxo

Shea

On Feb 16, 2011, at 11:51 AM, " kirsten " <wilderhealing@...> wrote:

> So we had our rhuemy apt yesterday. Good news is arthritis is finally coming

under control. Yeah! MRI was perfect, labs are perfect, and 1/2 the time

seems perfect. The other 1/2 not so good. Dr. feels she has developed

a pain syndrome. Thankful that it isn't something worse although she will

continue to watch carefully. We already know she is in tremendous pain and now

we will try to find a way to alleviate it. Pt, swimming, TENS machine, deep

tissue massage, sleeping meds (starting with Melatonin). I also intend to throw

in Reiki and Hypnotherapy. Hopefully with time and these therapies she can

re-train her brain and nervous system not to over-react to pain. Thanks to those

who shared their stories. You were bothright our kids are going thru similar

things. Any tips from those that have dealt with this are more than welcome!!

> Thank you,

> Kirsten, mom to , 6, spondy & now " Pain Syndrome "

>

February 18, 2011

Thanks Shea! I'm glad you're getting some relief with a Pain Specialist. I

figure that will be our next step if the PT doesn't help. We started Kat on

Melatonin (and cut back the steriods) just a few nights ago and she has slept

thru since. I feel tons better already so imagine it's helping her feel better

as well! Take care,

Kirsten

>

> > So we had our rhuemy apt yesterday. Good news is arthritis is finally coming