Fed up with our Specialist

[Guest guest]

We saw our specialist over 2 weeks ago, and he said Amy needed to go

up to the children's hospital for steroid injections and a tailored

treatment plan, as well as Orthoptist and Occupational Therapist

appointment. He also said he'd notify our GP so I could get repeat

prescriptions from there

It took over a week for our GP to get official notice of Amy's

condition so they would authorise the prescription, and that was with

my daily nagging on the phone to his secretary

Now after over 2 weeks we still have had no appointments through and

have only just recieved a copy of the specialist letter sent to our

GP!

I decided today to turn into a pest, and after the specialist

secretary keep saying she'll phone back, I have resorted to daily

phone calls and even telephoned Orthoptist and OT myself to check if

they'd had a referral yet - Orthoptist haven't and OT only just

recieved it today!!!

It's my birthday next week, then our eldest finishes school for

christmas holidays on the 19th Dec so I'll have to take him to the

children's hospital too if it's not soon!

I did however get some more info from the letter sent to my GP -

can't understand all of it - if someone can explain...

" Amy has a degree of anaemia with HGB of 89g and platelets of 399.

She has not had her Ferritin done but there is a little hypochromia "

If someone could explain it that would be great

Amy in herself is grouchy and although the increase in pain and anti

inflammatorys was good at first she is now in pain again and her

knees are often stiff. In the morning first thing she can't weight

bear and takes ages to get moving - it's heartbreaking to se her in

such pain

Love

xxxxxxxxxxxxx

Mum to Amy age 2 1/2 - Pauci-articular/Oglio-articular Immune

Arthritis