Re: Son fighting metho shots. Please HELP!

[Guest guest]

let him go to sleep, when he is sound asleep put some emla on him for a good

while, then give him the shot while he is sleeping, we had to do that for

awhile, my daughter was very anxious about shots as well............hope that

helps.............sometimes there is just nothing you can say to make it

better....i hate that!!!

n and Holly (14)

Systemic jra since 9/94

**************Life should be easier. So should your homepage. Try the NEW

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[Guest guest]

Sounds very stressful.... I wonder what the fear is for him? It sounds like

very severe anxiety right now.

That's sad that the ped office will not give it just b/c they did not

presribe it!!! Gee, what happend to unfied joint care for the child!!! =/

Anyways, it might only be at childrens hospital so things are far but you

might want to ask about a consultation with child life specialist if they

are there or a counselor/psychologist, etc that works with kids with these

illnesses.

Here, I know that the child life specialist will do desensitation therapies

to help the children deal with being able to take injections. I know of a

girl with SysJRA that had a horrible anxiety over injections and becuase she

had to get IVIG, and many other injections, blood work and more....

Anyways, child psychologist, child life specialist and some other counselors

that specialize in working with kids with chronic illness are trained in

these techniques and how to help kids learn to manage anxiety over the

injections, etc.

It ussualy doens't take a lot of sessions to learn either.

So just another suggestion...

Issadora

On Wed, Nov 26, 2008 at 9:10 PM, <ajaomom@...> wrote:

> let him go to sleep, when he is sound asleep put some emla on him for a

> good

> while, then give him the shot while he is sleeping, we had to do that for

> awhile, my daughter was very anxious about shots as well............hope

> that

> helps.............sometimes there is just nothing you can say to make it

> better....i hate that!!!

>

> n and Holly (14)

> Systemic jra since 9/94

>

> **************Life should be easier. So should your homepage. Try the NEW

> AOL.com.

> (

> http://www.aol.com/?optin=new-dp & icid=aolcom40vanity & ncid=emlcntaolcom00000002

> )

>

>

[Guest guest]

Hello,

Giving shots are always difficult no matter what age. I too has that problem but

some how and some way word had spread and 6 nurses in the neighbor offter to

help. Sometimes the school nurse would help. Its worth asking. Also I did get my

daughter help by talking to the school social worker or getting therphy. We as

parents really have no idea what are babies are going thru. We think we know but

like my daughter says, I know God has a plan for me and it might take me a life

time to find out but its a journey that I must take and he gave it to me for a

reason.

I hope that helps and I will be thinking of you.

and 14 pauc with uvesitis and kidney diease and kimuras

From: dharani319 <dharani319@...>

Subject: Son fighting metho shots. Please HELP!

Date: Friday, November 21, 2008, 6:53 PM

Hi there,

I have been reading this group for a long time but have been too shy

to post. That should give you some idea about how desperate I am.

To make a long story short, my son was diagnosed with pauci two and a

half years ago (in both knees). Since then, it has spread to both

feet, both ankles, both hands, and one hip. He has been on

methotrexate for over a year but only started injections about six

weeks ago.

For the last month, my son (now 7) has been getting progressively

more anxious about his shots. Last week, he freaked out for two

hours - screaming, crying, running away from me, and telling me he

would never get shots again. He is normally a very mild-mannered,

rational child. I have never seen him like this before. He was

terrified! He even started counting the letters in my sentences under

his breath to try and calm himself down. His eyes looked glassy too.

Tonight, though I showed him the video taped message he made himself

last week after he finally got the shot, where he told himself that

it didn't hurt at all (thank you EMLA cream!) and it wasn't a big

deal, he is already saying he won't get the shot and that he was

lying to himself in the video.

I am supposed to give him his shot in 40 minutes. Anyone have any

ideas? Please???

Oh, his pediatrician' s office won't give him the shot because they

didn't prescribe it and his rheumy is 45 miles away - so no help

there.

[Guest guest]

The same thing happened to my son. This isn't going to get better

until something is changed. You should call your rheumy and let

them know what is happening. When this happened to us I spoke to

the rheumy about it and they took it very seriously. They reduced

his dosage increased his folic acid and put him on an anti nausea

medication. Even though Grant couldn't really say why he was

reacting the way he was, they felt as though he is associating the

mtx with feely yucky after taking it and therfore doesn't want to

take. Doing those things helped Grant for a little while but

eventually he got worse again and he would throw up seconds after

giving him the injection. Our rheumy said we need to see a

therapist (like Issadora mentioned)or we could try the oral meds

again. Luckily for us the oral MTX has worked. Grant still can't

stand the MTX he takes the pills just fine but will not, can not,

talk about MTX or he will not open the drawer that we store the mtx

in.

Good Luck with whatever you decide to do!

Keep us posted!

& Grant (11, PsA/Uvetiis)

>

> From: dharani319 <dharani319@...>

> Subject: Son fighting metho shots. Please HELP!

>

> Date: Friday, November 21, 2008, 6:53 PM

>

>

>

>

>

>

> Hi there,

>

> I have been reading this group for a long time but have been too

shy

> to post. That should give you some idea about how desperate I am.

> To make a long story short, my son was diagnosed with pauci two

and a

> half years ago (in both knees). Since then, it has spread to both

> feet, both ankles, both hands, and one hip. He has been on

> methotrexate for over a year but only started injections about six

> weeks ago.

>

> For the last month, my son (now 7) has been getting progressively

> more anxious about his shots. Last week, he freaked out for two

> hours - screaming, crying, running away from me, and telling me he

> would never get shots again. He is normally a very mild-mannered,

> rational child. I have never seen him like this before. He was

> terrified! He even started counting the letters in my sentences

under

> his breath to try and calm himself down. His eyes looked glassy

too.

>

> Tonight, though I showed him the video taped message he made

himself

> last week after he finally got the shot, where he told himself

that

> it didn't hurt at all (thank you EMLA cream!) and it wasn't a big

> deal, he is already saying he won't get the shot and that he was

> lying to himself in the video.

>

> I am supposed to give him his shot in 40 minutes. Anyone have any

> ideas? Please???

>

> Oh, his pediatrician' s office won't give him the shot because

they

> didn't prescribe it and his rheumy is 45 miles away - so no help

> there.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>