A Message from the Moderator ... was Re: Re: Hanna's Ped appt

[Guest guest]

I understand why you need to post the information regarding the ASLAT

testing. I guess this can stir up some controversy. But I am also

all for finding " what works " . In our case we had 4 months to wait to

even get into see a rheumatologist for a diagnosis and so we took her

to a naturopathic doctor (and her regular pediatrician in the

meantime). Quite suprisingly, the homeopathic remedies that were

prescribed made her able to jump right out of bed the next morning

when she had been unable to walk in the morning for two months

prior! But I admit our glee was short-lived and within another week

her swelling returned. By the time we finally saw the rheumy, she

needed 3 doses of Ibuprofen each day.

We have also done extensive food allergy testing (blood serum--IGe by

pediatrician and stool sample through our Pediatric GI specialist) to

at least rule out food allergies/Celiac. Isabelle, although not

Celiac, does have gluten sensitivity and although milk didn't show up

in results we are certain through food diary analysis that she had

less flaring when not drinking it (although she hasn't had a flare

now since July of '07).

Isabelle has been on MTX since April of 2007 and is now in

a " medicated remission " . We still watch her intake of sugar, wheat,

and milk. I wish that the mainstream medical views would be more

supportive when you are a parent that uses complimentary care along

with traditional care. Our ped rheumy just tells me, " it can't hurt "

which is a baby step in the right direction .

-Hadley (Isabelle, 4.5 yrs.)

>

> Hello Georgina,

>

> First of all I want to thank for providing so much information on

the

> ALCAT test. It was an intersting read.

>

> We had a naturopath perfom Aundrea's blood test and run the ALCAT

> test.

>

> The one thing I am fairly certain of is she wont have any terrible

> side effects from removing sugar or coco from her diet. :-) It's

> worth a try for us to see if it helps.

>

> On the other hand we did try methotrexate for two years and high

dose

> NSAIDS for a few years and the side effects from those treatments

had

> quite a negative experience for Aundrea.

>

> Parents face so many challenges in trying to find the answers for

> their chronically ill children. The search opens up doors to

> supplements, biofeedback, physical therapy, aquatic therapy,

> chiropractic, yoga, diet changes and the list just goes on and on.

>

> I am glad to be able to share what are experiences have been and

for

> the most part it's been sharing what hasn't worked while still

> searching for answers.

>

> Thank you for providing this forum that allows us to share our

> experience in this journey as we determine what we believe is the

> best path for out child.

>

> Blessings,

>

> (Aundrea 13 Fibromyalgia, IBS)

>