A Message from the Moderator ... was Re: Re: Hanna's Ped appt

[Guest guest]

Hello Georgina,

First of all I want to thank for providing so much information on the

ALCAT test. It was an intersting read.

We had a naturopath perfom Aundrea's blood test and run the ALCAT

test.

The one thing I am fairly certain of is she wont have any terrible

side effects from removing sugar or coco from her diet. :-) It's

worth a try for us to see if it helps.

On the other hand we did try methotrexate for two years and high dose

NSAIDS for a few years and the side effects from those treatments had

quite a negative experience for Aundrea.

Parents face so many challenges in trying to find the answers for

their chronically ill children. The search opens up doors to

supplements, biofeedback, physical therapy, aquatic therapy,

chiropractic, yoga, diet changes and the list just goes on and on.

I am glad to be able to share what are experiences have been and for

the most part it's been sharing what hasn't worked while still

searching for answers.

Thank you for providing this forum that allows us to share our

experience in this journey as we determine what we believe is the

best path for out child.

Blessings,

(Aundrea 13 Fibromyalgia, IBS)

> >

> > We had an awesome visit with Hannah's ped today for her annual

> physical. Obviously we talked about all her issues. He's pleased

> with her asthma (first time ever). He is not as concerned about

> her weight loss as the GI doctor was because she does not look like

> she's underweight and is mostly muscle. He agreed with having her

> take the Carnation Instant breakfast every day (even told her to

make

> a smoothie out of it). He is adding a daily mulit-vitamin with iron

> and a calcium supplement. He will recheck her weight in one month.

> The hope is she stays the same (he said he would not be concerned

> with even a 1-2lbs more weight loss, but more than that would be

very

> concerning).

> >

> > As far as her joints go, he was totally open to all of the

> suggestions we brought back from conference. He is checking her

> cholesterol (for the weight issues). He also ordered a full thyroid

> panel (I believe it is 4 separate tests). We then talked about the

> parathyroid, which is not his area. I called my endocrinologist

> friend and he suggested that a calcium and vitamin D level be

checked

> first. If those are normal there is no need for parathyroid. So the

> ped called me this evening and added those too. He is checking into

> where around here we can have a bone density done. Our clinic does

> not have the software for anyone under 18. So that is in process,

> but on hold too. He is going to hold off on ordering any MRI's until

> he sees the results of the bone density. He also agreed that she

> could very well have " mechanical arthrits " . Again he will wait for

> the bone density.

> >

> > He also checked her skin for those strange spots she has. He will

> be watching them and told her to wash the spots with Head N

> Shoulder's shampoo. There is a derm problem that this helps.

> >

> > So overall a great visit. Will keep you posted on the results.

> >

> > Beth & Hannah, 11, unspecified arthritis; asthma; gerd; migraines;

> stomach ulcers

> > Sending prayers & happy thoughts,

> > Beth

> >

> >