Re: My girl is going to prom

[Guest guest]

I thank God for the medications that help our children function normally -

yeah!! How exciting for her to be going to prom

nn

>

>

> For those of you that see my fb posts you may have read that I took

Jaye prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all

night. I wondered how she would do today but she got up and went to church this

morning as well. After church and lunch we headed back to Wichita to shop for a

wrap, handbag, shoes and a puffy slip for her dress. We had so much fun and came

home with everything except the shoes. I share this with you to say even though

she is totally exhausted today she is still functioning. Before Enbrel, I am

not sure we would have been able to do all of this in two days. Before Enbrel i

do not think we would have even been able to do the all day Saturday thing we

did moreless add todays things. I do not like all the med's but I sure do like

my girl doing the things she wants to do.

>

> Veri & Jaye 17 poly

>

>

>

>

>

>

[Guest guest]

Your email made me smile.

Sent from my iPhone

On Mar 6, 2011, at 6:38 PM, veristroud@... wrote:

>

> For those of you that see my fb posts you may have read that I took

Jaye prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all night.

I wondered how she would do today but she got up and went to church this morning

as well. After church and lunch we headed back to Wichita to shop for a wrap,

handbag, shoes and a puffy slip for her dress. We had so much fun and came home

with everything except the shoes. I share this with you to say even though she

is totally exhausted today she is still functioning. Before Enbrel, I am not

sure we would have been able to do all of this in two days. Before Enbrel i do

not think we would have even been able to do the all day Saturday thing we did

moreless add todays things. I do not like all the med's but I sure do like my

girl doing the things she wants to do.

>

> Veri & Jaye 17 poly

>

>

[Guest guest]

I just had to share this because things are going better then they have in such

a long time. I am so excited about Jaye going to prom that I can hardly

stand it. We discussed today that if she gets half as excited as I am about it

she will be doing good. When I talk about it she will look at me, shake her

head, kind of roll her eyes and just smile as if to say. Ok, Mom, enough is

enough. she has just come so far I cant describe it. All of you can relate,

you watch your kids not doing the things they should be able to do and we get

used to it and sometimes even accept it as normal. Now that we are moving

toward a new normal I am thrilled.

Veri & Jaye 17 poly

Re: My girl is going to prom

Your email made me smile.

Sent from my iPhone

On Mar 6, 2011, at 6:38 PM, veristroud@... wrote:

>

> For those of you that see my fb posts you may have read that I took

Jaye prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all night.

I wondered how she would do today but she got up and went to church this morning

as well. After church and lunch we headed back to Wichita to shop for a wrap,

handbag, shoes and a puffy slip for her dres s. We had so much fun and came home

with everything except the shoes. I share this with you to say even though she

is totally exhausted today she is still functioning. Before Enbrel, I am not

sure we would have been able to do all of this in two days. Before Enbrel i do

not think we would have even been able to do the all day Saturday thing we did

moreless add todays things. I do not like all the med's but I sure do like my

girl doing the things she wants to do.

>

> Veri & Jaye 17 poly

>

>

[Guest guest]

Your email made me smile AGAIN!!!

Sent from my iPhone

On Mar 6, 2011, at 7:09 PM, veristroud@... wrote:

>

> I just had to share this because things are going better then they have in

such a long time. I am so excited about Jaye going to prom that I can

hardly stand it. We discussed today that if she gets half as excited as I am

about it she will be doing good. When I talk about it she will look at me, shake

her head, kind of roll her eyes and just smile as if to say. Ok, Mom, enough is

enough. she has just come so far I cant describe it. All of you can relate, you

watch your kids not doing the things they should be able to do and we get used

to it and sometimes even accept it as normal. Now that we are moving toward a

new normal I am thrilled.

>

> Veri & Jaye 17 poly

>

> Re: My girl is going to prom

>

> Your email made me smile.

>

> Sent from my iPhone

>

> On Mar 6, 2011, at 6:38 PM, veristroud@... wrote:

>

> >

> > For those of you that see my fb posts you may have read that I took

Jaye prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all night.

I wondered how she would do today but she got up and went to church this morning

as well. After church and lunch we headed back to Wichita to shop for a wrap,

handbag, shoes and a puffy slip for her dres s. We had so much fun and came home

with everything except the shoes. I share this with you to say even though she

is totally exhausted today she is still functioning. Before Enbrel, I am not

sure we would have been able to do all of this in two days. Before Enbrel i do

not think we would have even been able to do the all day Saturday thing we did

moreless add todays things. I do not like all the med's but I sure do like my

girl doing the things she wants to do.

> >

> > Veri & Jaye 17 poly

> >

> >

[Guest guest]

Veri,

It's so good to hear that Jaye has responded well to the Enbrel and

was able to go out and have a wonderful, busy day! Your email brought a

smile to my face!

Liz

From: [mailto: ] On Behalf

Of veristroud@...

Sent: Sunday, March 06, 2011 9:39 PM

Subject: My girl is going to prom

For those of you that see my fb posts you may have read that I took

Jaye prom dress shopping yesterday. The day started early with a Cookout at

our church where the youth worked for about five hours with setup, games,

moonwalk, obsticle course and cleanup. At the end of the event Jaye

swept the fellowship hall, vacuumed most of the halls in the church and did

other clean up jobs. After we left the church she went home to shower and we

headed to Wichita to prom dress shop. She was on the go from 9:30 a.m. til

8:30 p.m. Yes she was exhaused, totally by the time we got home but she had

fun and only at one time during the afternoon did she comment that her feet

hurt. No other joint complaints. She did go to bed after we got home and

slept like a baby all night. I wondered how she would do today but she got

up and went to church this morning as well. After church and lunch we headed

back to Wichita to shop for a wrap, handbag, shoes and a puffy slip for her

dress. We had so much fun and came home with everything except the shoes. I

share this with you to say even though she is totally exhausted today she is

still functioning. Before Enbrel, I am not sure we would have been able to

do all of this in two days. Before Enbrel i do not think we would have even

been able to do the all day Saturday thing we did moreless add todays

things. I do not like all the med's but I sure do like my girl doing the

things she wants to do.

Veri & Jaye 17 poly

[Guest guest]

Hi Veri-

 

Shopping is a powerful motivator... and prom, even moreso!  But how wonderful

that she was able to do all of that, without suffering for it.  YAY!!!!! Here's

to the best spring in a long time for Jaye

Colleen

From: veristroud@... <veristroud@...>

Subject: My girl is going to prom

Date: Sunday, March 6, 2011, 6:38 PM

 

For those of you that see my fb posts you may have read that I took Jaye

prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all night.

I wondered how she would do today but she got up and went to church this morning

as well. After church and lunch we headed back to Wichita to shop for a wrap,

handbag, shoes and a puffy

slip for her dress. We had so much fun and came home with everything except the

shoes. I share this with you to say even though she is totally exhausted today

she is still functioning. Before Enbrel, I am not sure we would have been able

to do all of this in two days. Before Enbrel i do not think we would have even

been able to do the all day Saturday thing we did moreless add todays things. I

do not like all the med's but I sure do like my girl doing the things she wants

to do.

Veri & Jaye 17 poly

[Guest guest]

Prom time is so exciting!! Glad the med is helping her to keep moving, Michele

( 23, spondy)

From: [mailto: ] On Behalf Of

veristroud@...

Sent: Sunday, March 06, 2011 8:39 PM

Subject: My girl is going to prom

For those of you that see my fb posts you may have read that I took Jaye

prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all night.

I wondered how she would do today but she got up and went to church this morning

as well. After church and lunch we headed back to Wichita to shop for a wrap,

handbag, shoes and a puffy slip for her dress. We had so much fun and came home

with everything except the shoes. I share this with you to say even though she

is totally exhausted today she is still functioning. Before Enbrel, I am not

sure we would have been able to do all of this in two days. Before Enbrel i do

not think we would have even been able to do the all day Saturday thing we did

moreless add todays things. I do not like all the med's but I sure do like my

girl doing the things she wants to do.

Veri & Jaye 17 poly

[Guest guest]

So glad to hear Jaye is going to the prom and able to enjoy two busy days

fully!

>

> Prom time is so exciting!! Glad the med is helping her to keep moving, Michele

( 23, spondy)

>

> From: [mailto: ] On Behalf Of

veristroud@...

> Sent: Sunday, March 06, 2011 8:39 PM

>

> Subject: My girl is going to prom

>

>

>

> For those of you that see my fb posts you may have read that I took

Jaye prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all night.

I wondered how she would do today but she got up and went to church this morning

as well. After church and lunch we headed back to Wichita to shop for a wrap,

handbag, shoes and a puffy slip for her dress. We had so much fun and came home

with everything except the shoes. I share this with you to say even though she

is totally exhausted today she is still functioning. Before Enbrel, I am not

sure we would have been able to do all of this in two days. Before Enbrel i do

not think we would have even been able to do the all day Saturday thing we did

moreless add todays things. I do not like all the med's but I sure do like my

girl doing the things she wants to do.

>

> Veri & Jaye 17 poly

>

>

[Guest guest]

YEAH Jaye!!! I have a 15yr old girl without JRA and sometimes after alot

of walking her feet will hurt and after a full day or two of shopping it is not

uncommon for her to take a nap or go to bed early.Can't say her complaints

aren't from the JRA , but I just wanted to let you know it happens to my healthy

teen too.

I am sure she is going to be beautiful on her big night and have a blast.

Hugs,

Becki and 12 SoJRA

________________________________

From: " veristroud@... " <veristroud@...>

Sent: Sun, March 6, 2011 8:38:49 PM

Subject: My girl is going to prom

For those of you that see my fb posts you may have read that I took Jaye

prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all

night. I wondered how she would do today but she got up and went to church this

morning as well. After church and lunch we headed back to Wichita to shop for a

wrap, handbag, shoes and a puffy slip for her dress. We had so much fun and came

home with everything except the shoes. I share this with you to say even though

she is totally exhausted today she is still functioning. Before Enbrel, I am

not sure we would have been able to do all of this in two days. Before Enbrel i

do not think we would have even been able to do the all day Saturday thing we

did moreless add todays things. I do not like all the med's but I sure do like

my girl doing the things she wants to do.

Veri & Jaye 17 poly

[Guest guest]

Thanks Becki, yes I know she is going to be so beautiful on Prom night. She is

beautiful already, inside and out. She just feels like a princess with the dress

on and she just smiles. It is so good to see her feeeling so good. I poste

pictures of her in the dress on my facebook page.

Veri

My girl is going to prom

For those of you that see my fb posts you may have read that I took Jaye

prom dress shopping yesterday. The day started early with a Cookout at our

church where the youth worked for about five hours with setup, games, moonwalk,

obsticle course and cleanup. At the end of the event Jaye swept the

fellowship hall, vacuumed most of the halls in the church and did other clean up

jobs. After we left the church she went home to shower and we headed to Wichita

to prom dress shop. She was on the go from 9:30 a.m. til 8:30 p.m. Yes she was

exhaused, totally by the time we got home but she had fun and only at one time

during the afternoon did she comment that her feet hurt. No other joint

complaints. She did go to bed after we got home and slept like a baby all

night. I wondered how she would do today but she got up and went to church this

morning as well. After church and lunch we headed back to Wichita to shop for a

wrap, handbag, shoes and a puffy slip for her dress. We had so much fun and came

home with everything except the shoes. I share this with you to say even though

she is totally exhausted today she is still functioning. Before Enbrel, I am

not sure we would have been able to do all of this in two days. Before Enbrel i

do not think we would have even been able to do the all day Saturday thing we

did moreless add todays things. I do not like all the med's but I sure do like

my girl doing the things she wants to do.

Veri & Jaye 17 poly

[Guest guest]

Great news...very exciting!

& , 7, poly...nystagmus...SPD

Sent from my iPhone

[Guest guest]

I seen the pics. Absolutely beautiful Dress. I am so happy for and cant

wait to see prom pics!!!

Donna