Re: Our first joint injection

[Guest guest]

That is fabulous news. Be sure to always go to the eye doctor though. Even if

the jra goes away. I am glad you are finally on the right track. (

n, systemic)

Sent from my iPhone

On Mar 6, 2011, at 8:45 PM, " " <twinsmommy2005@...> wrote:

> Hi again! It's , the Rotweiler for my daughter, is. We saw a new

peds rheumy almost 3 weeks ago now. He said that if he had seen her initially 10

months ago he would have started with a steroid injection for her left wrist and

never messed with prednisone, MTX, or naproxen. Lexi got her first injection

this past Friday at Children's Hospital of the King's Daughters in Norfolk, VA.

I was so worried about it, but the staff there were wonderful! I was able to

stay with Lexi the entire time. They gave her a little versed before starting

her IV so she doesn't remember anything at all about getting an IV or her

injection. I'm already seeing a big improvement in her ROM - she's got to be in

the upper 50's to low 60's now (seems like she's been in the 30's and 40's

forever). Its such a nice feeling to now have a plan for her and no longer feel

like we're just driving in circles around the parking lot trying to figure out

how to work the GPS. The new doctor said we can now use the naproxen as needed

instead of scheduled twice a day and with using it less frequently we can also

stop the zantac for her heartburn caused by the prednisone and naproxen

together. He said if she is doing really well in 6 weeks at her next visit we

can even talk about stopping the MTX!!! Wow! He also said to go to occupational

therapy and have them work on her wrist and arm and " get yourself graduated as

soon as you can. "

> On another note, I have thought for almost a year that Lexi's wrist problems

were precipitated by her broken collar bone from March of 2010. I was on

facebook about a week ago and came across a picture of her from 6 weeks before

the injury and the wrist problem is so obvious! I don't know how we had missed

it for so long. I'm estimating that she had wrist problems for at least 8 months

prior to us finding out about it (gotta love the computer and being able to go

waaay back looking at pictures!)

> The new doc also gave us her official diagnosis " oligoarticular JIA. " Like

said, such a relief to know what we're dealing with and how we're going to deal

with it!

> , Rotweiler for is, 5, oligo

>

>

[Guest guest]

I am so happy to hear that you are already seeing improvement. Hope things

continue to improve and that soon is is doing all the fun things that non

jra kids can do.

Veri & Jaye 17 poly

Our first joint injection

Hi again! It's , the Rotweiler for my daughter, is. We saw a new peds

rheumy almost 3 weeks ago now. He said that if he had seen her initially 10

months ago he would have started with a steroid injection for her left wrist and

never messed with prednisone, MTX, or naproxen. Lexi got her first injection

this past Friday at Children's Hospital of the King's Daughters in Norfolk, VA.

I was so worried about it, but the staff there were wonderful! I was able to

stay with Lexi the entire time. They gave her a little versed before starting

her IV so she doesn't remember anything at all about getting an IV or her

injection. I'm already seeing a big improvement in her ROM - she's got to be in

the upper 50's to low 60's now (seems like she's been in the 30's and 40's

forever). Its such a nice feeling to now have a plan for her and no longer feel

like we're just driving in circles around the parking lot trying to figure out

how to work the GPS. The new doctor said we can now use the naproxen as needed

instead of scheduled twice a day and with using it less frequently we can also

stop the zantac for her heartburn caused by the prednisone and naproxen

together. He said if she is doing really well in 6 weeks at her next visit we

can even talk about stopping the MTX!!! Wow! He also said to go to occupational

therapy and have them work on her wrist and arm and " get yourself graduated as

soon as you can. "

On another note, I have thought for almost a year that Lexi's wrist problems

were precipitated by her broken collar bone from March of 2010. I was on

facebook about a week ago and came across a picture of her from 6 weeks before

the injury and the wrist problem is so obvious! I don't know how we had missed

it for so long. I'm estimating that she had wrist problems for at least 8 months

prior to us finding out about it (gotta love the computer and being able to go

waaay back looking at pictures!)

The new doc also gave us her official diagnosis " oligoarticular JIA. " Like said,

such a relief to know what we're dealing with and how we're going to deal with

it!

, Rotweiler for is, 5, oligo

[Guest guest]

Hello Rottweiler !! It sounds like the joint injection was exactly

what is needed. So glad things are finally on the right track!!

Liz

From: [mailto: ] On Behalf

Of

Sent: Sunday, March 06, 2011 11:46 PM

Subject: Our first joint injection

Hi again! It's , the Rotweiler for my daughter, is. We saw a new

peds rheumy almost 3 weeks ago now. He said that if he had seen her

initially 10 months ago he would have started with a steroid injection for

her left wrist and never messed with prednisone, MTX, or naproxen. Lexi got

her first injection this past Friday at Children's Hospital of the King's

Daughters in Norfolk, VA. I was so worried about it, but the staff there

were wonderful! I was able to stay with Lexi the entire time. They gave her

a little versed before starting her IV so she doesn't remember anything at

all about getting an IV or her injection. I'm already seeing a big

improvement in her ROM - she's got to be in the upper 50's to low 60's now

(seems like she's been in the 30's and 40's forever). Its such a nice

feeling to now have a plan for her and no longer feel like we're just

driving in circles around the parking lot trying to figure out how to work

the GPS. The new doctor said we can now use the naproxen as needed instead

of scheduled twice a day and with using it less frequently we can also stop

the zantac for her heartburn caused by the prednisone and naproxen together.

He said if she is doing really well in 6 weeks at her next visit we can even

talk about stopping the MTX!!! Wow! He also said to go to occupational

therapy and have them work on her wrist and arm and " get yourself graduated

as soon as you can. "

On another note, I have thought for almost a year that Lexi's wrist problems

were precipitated by her broken collar bone from March of 2010. I was on

facebook about a week ago and came across a picture of her from 6 weeks

before the injury and the wrist problem is so obvious! I don't know how we

had missed it for so long. I'm estimating that she had wrist problems for at

least 8 months prior to us finding out about it (gotta love the computer and

being able to go waaay back looking at pictures!)

The new doc also gave us her official diagnosis " oligoarticular JIA. " Like

said, such a relief to know what we're dealing with and how we're going to

deal with it!

, Rotweiler for is, 5, oligo

[Guest guest]

Hi,

Glad everything is coming together for your daughter and I'm glad you got a

diagnosis.

Jo

>

> Hello Rottweiler !! It sounds like the joint injection was exactly

> what is needed. So glad things are finally on the right track!!

>

> Liz

>

>

>

> From: [mailto: ] On Behalf

> Of

> Sent: Sunday, March 06, 2011 11:46 PM

>

> Subject: Our first joint injection

>

>

>

>

>

> Hi again! It's , the Rotweiler for my daughter, is. We saw a new

> peds rheumy almost 3 weeks ago now. He said that if he had seen her

> initially 10 months ago he would have started with a steroid injection for

> her left wrist and never messed with prednisone, MTX, or naproxen. Lexi got

> her first injection this past Friday at Children's Hospital of the King's

> Daughters in Norfolk, VA. I was so worried about it, but the staff there

> were wonderful! I was able to stay with Lexi the entire time. They gave her

> a little versed before starting her IV so she doesn't remember anything at

> all about getting an IV or her injection. I'm already seeing a big

> improvement in her ROM - she's got to be in the upper 50's to low 60's now

> (seems like she's been in the 30's and 40's forever). Its such a nice

> feeling to now have a plan for her and no longer feel like we're just

> driving in circles around the parking lot trying to figure out how to work

> the GPS. The new doctor said we can now use the naproxen as needed instead

> of scheduled twice a day and with using it less frequently we can also stop

> the zantac for her heartburn caused by the prednisone and naproxen together.

> He said if she is doing really well in 6 weeks at her next visit we can even

> talk about stopping the MTX!!! Wow! He also said to go to occupational

> therapy and have them work on her wrist and arm and " get yourself graduated

> as soon as you can. "

> On another note, I have thought for almost a year that Lexi's wrist problems

> were precipitated by her broken collar bone from March of 2010. I was on

> facebook about a week ago and came across a picture of her from 6 weeks

> before the injury and the wrist problem is so obvious! I don't know how we

> had missed it for so long. I'm estimating that she had wrist problems for at

> least 8 months prior to us finding out about it (gotta love the computer and

> being able to go waaay back looking at pictures!)

> The new doc also gave us her official diagnosis " oligoarticular JIA. " Like

> said, such a relief to know what we're dealing with and how we're going to

> deal with it!

> , Rotweiler for is, 5, oligo

>

>

>

>

>

>

[Guest guest]

So happy things are working out better with this doctor and that you now have

him on your 'team'. All the best.

& , 7, poly...nystagmus...SPD...

Sent from my iPhone