Ibuprofen isn't cutting it...

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Ella was officially diagnosed with JRA (pauci) on 1/21. The rheumatologist told

us to start giving her 150 mgs of ibuprofen 3 times a day and follow up with her

pediatrician in a month to see how she's doing. He said if, after 2 months, she

was still having problems they would do another ultrasound and if she still had

fluid on her knee, they would do steroid injections. They said they are going

to try to do as much follow up with her pediatrician (who will talk to the

rheumy) as possible to cut down on the amount of traveling we have to do (the

rheumy is a little over 3 hours from here). Well, the ibuprofen isn't working.

Her follow up appointment is on 2/23. I know it takes some time to build up in

her system, etc, but even before we were told to give it to her 3 times a day,

we were giving it to her any time she was hurting which was pretty often...at

least several times a week. She's still waking up almost every day stiff and

limping. She's still in pain almost every day. Today she woke up from her nap

today complaining of her ankle and heel hurting. DH thinks I should push for

the doctor to try a different medicine or do something else. Should I? Or

should I give the ibuprofen another month and see if it helps? I don't want to

put her on a bunch of meds, but I want her to feel better! Maybe I'm just being

impatient. I don't know....

I'm sorry for posting my intro and then disappearing. Things have been crazy

around here. On top of everything with Ella, DH is working overtime a lot

(January-February is always crazy busy for him) and I've had the flu. DD#2 is

having some problems with seizures and headaches (she has epilepsy, but until

recently it was well controlled with meds) so they are doing more tests on her.

Things have just been really busy. I have been reading almost all of the posts

and you guys are in my thoughts and prayers. Thanks for the warm welcome!

-Mom to five beautiful little girls!