Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Good luck - I hope she feels some relief soon. Pam Orencia Thursday > Hi Everyone, > We decided to try Orencia. was excited that she > didn't need > her kineret shot last night. She will get her first > infusion on > Thursday. Everything went well with her insurance company, > and we > should be receiving her shipment of Orencia today. > > Her wrist looks really horrible, and the poor thing is > hurting. We are > praying that Orencia kicks in fast (although I have read it > takes a > while). I will let everyone know how it goes. > > Sophie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi Sophie, Thanks for responding to my post. I was wondering how lindsay reponded to Kineret? With joey being only 2 it's so hard not knowing what he is feeling. I was also wondering if you know of any website for sjra or kineret. Thanks Kris > > > Good luck - I hope she feels some relief soon. > > Pam > Orencia Thursday > > > > Hi Everyone, > > We decided to try Orencia. was excited that she > > didn't need > > her kineret shot last night. She will get her first > > infusion on > > Thursday. Everything went well with her insurance company, > > and we > > should be receiving her shipment of Orencia today. > > > > Her wrist looks really horrible, and the poor thing is > > hurting. We are > > praying that Orencia kicks in fast (although I have read it > > takes a > > while). I will let everyone know how it goes. > > > > Sophie > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi Kris, didn't respond to kineret, but kineret (or anakinra) has shown amazing results in systemic kids in some trials. There are a couple systemic kids here that it has really helped too. I would say it is worth a shot. I was really, really disappointed b/c I had my hopes up after reading the studies. actually responded better to the TNF A meds like Enbrel and Humira. The only problem is that the benefits didn't last long enough. There are some posts here on kineret. Go to the top and search " kineret " and you will find the messages. has had systemic jra for 5 1/2 years, since the age of three, so we have been here awhile. Feel free to ask any questions! Take care. Sophie > > > > > > Good luck - I hope she feels some relief soon. > > > > Pam > > Orencia Thursday > > > > > > > Hi Everyone, > > > We decided to try Orencia. was excited that she > > > didn't need > > > her kineret shot last night. She will get her first > > > infusion on > > > Thursday. Everything went well with her insurance company, > > > and we > > > should be receiving her shipment of Orencia today. > > > > > > Her wrist looks really horrible, and the poor thing is > > > hurting. We are > > > praying that Orencia kicks in fast (although I have read it > > > takes a > > > while). I will let everyone know how it goes. > > > > > > Sophie > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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